Hello Everyone, I am turning here for advice on issues I have been having. A little over a year ago I was diagnosed with Lyme and then Bartonella a few months later. Been on antibiotics for a year and recently been on Rifabutin and Biaxin (after being on Rifabutin and Minocyclin for some time) and that helps the most. But over the past few months I have developed joint pain (symmetrical on both sides of the body) along with stiffness. It is in my hands, and fingers, wrists, ankles, knees (esp when I get up after sitting), and elbows. The elbows are the weirdest, when I touch the inside of them its painful, when I pick up anything it hurts through both elbows, they pop when I move them back and forth, and this has just gotten worse over time.
My aunt has RA so I scheduled an apt with a rheumatologist. They told me there was no visible symptoms of inflammation, did about
1000 dollars (with insurance ) of bloodwork that came up with nothing besides my white blood cell being a little high. They gave me 60 tablets of 75 mg diclonofec sodium and that is the ONLY thing that helps. If I don't take it one day like I skipped last night it makes daily tasks (such as typing and writing) very hard. The stiffness is worst at night when I am not moving and I wake up with my hands bent and stiff and it is very painful to straighten them out esp when I have had no pain meds.
My Lyme doctor told me that it could possibly be the bartonella or lyme (she is thinking bart) but added ceftin for now to see if the arthritis issues are lyme related but yet nothing better after about
2 weeks. She said after 6 weeks if no better she wanted to try Levaquin (I think that's the name) for bartonella, but that scares me based on what I read.
I don't know what to do but I am tired of feeling like an old lady, not able to lift things, type, etc. Please help