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Lyme Disease
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tonyaraven
Regular Member
Joined : May 2017
Posts : 398
Posted 8/17/2017 8:12 PM (GMT 0)
Hello again, I can just never understand how I can feel totally fine one minute and then like I'm dying the next! I felt pretty good yesterday and even the day before and then suddenly today my switch went off and I feel so, so bad! It can be so scary at times! I feel terribly shaky, weak, achy, my right eye always gets extra fuzzy when things are bad so I think that's part of why I feel dizzy and off. My head hurts so much too. I tried epsom salt bath, alka selzer gold, dry brushing and cholrella, nothing is helping I just want to cry! I'm so tired of being sick, I want my life back! Sorry to complain, I know I shouldn't when there are people in the world much worse off, it's just so hard when things look so dark! I think I was better off last summer before I started treatment, there are times like this when I question everything, like is my diagnosis correct and I doing the right kind of treatment. I guess I should be thankful I had a couple days that were ok...but I feel greedy, I want more then just a couple days!!! Thanks so much for listening!
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 8/17/2017 8:24 PM (GMT 0)
I understand, tonya!
I get my hopes up every time I have a good day.. only to be disappointed the next day or two days later.
goshawk
Veteran Member
Joined : Sep 2016
Posts : 2653
Posted 8/17/2017 8:29 PM (GMT 0)
Me too. I hear you. Unfortunately for all of us these are complex infections and there doesn't seem to be one straightforward cure or solution to fix it.
We have to just keep trying to move forward somehow by adjusting, deleting, adding what have you....different things to try to make it work for us.
There are people worse off than me and I feel so sad for them, but we are suffering in our own right also and its valid.
Give your self a hug and a smile because you deserve it.
Tell yourself one more time...that you wont give up, that there has to be a treatment or combination of things that will work.
For some of us there are going to be many ups and downs but together with the support of each other we can make it.
I question if I'm doing the right things also and its easy to be very hard on ourselves when the symptoms increase or don't stabilize.
Come here to let it out anytime.
Here's to brighter days and to the morning when we someday wake up and all this craziness is just a memory.
Take care, Jo
PeteZa
Veteran Member
Joined : Jul 2015
Posts : 9729
Posted 8/17/2017 8:41 PM (GMT 0)
(((((tonyaraven))))) There are some cyber hugs for you.
Lyme frustrated the heck out of me and on top of that I was terribly impatient. It was ups and downs the entire time. Then one day I was fine and it lasted!! I was so cautious...... and then finally, I had no more symptoms.
It will happen to you. Maybe down the road a little further, but it will happen.
Purrrsiankitty
Veteran Member
Joined : Dec 2016
Posts : 1780
Posted 8/17/2017 9:05 PM (GMT 0)
All we can do is keep trying.... I had three weeks of amazing, then a big old crash in the middle of family visiting.
Hang in there, as others have said, it will get better. Be kind to yourself.
WV Mike
Veteran Member
Joined : May 2017
Posts : 517
Posted 8/17/2017 9:27 PM (GMT 0)
Right there with you Tony, it sucks but hey what can we do? Ride it out and hope the light at the end of the tunnel isn't to far off. Hope you feel better soon.
Post Edited (WV Mike) : 8/17/2017 3:33:35 PM (GMT-6)
dacarte3
Veteran Member
Joined : Feb 2016
Posts : 1910
Posted 8/17/2017 9:57 PM (GMT 0)
Yea buddy, it happens.
I feel good the majority of the time but then out of no where get hit hard and I'm out of commission. You feel it coming too, at least there's "some" warning. I just lay down and ride it out for couple hours and then like you describe a switch flips and I feel fine again.
It happen to me the other day, I was about
to go somewhere and then it hit me. Had to ride it out and I was 2 hours late.
There seem to be two types of herxing for me. One kind is when it's just a slow drip all day, where I feel mild symptoms and feel like a bit hungover all day. Then there's the kind that hits like a ton of bricks but it's "quicker" (an hour or two) and not all day. Not sure which one I prefer, probably the latter, since when it's over I can move on with my day.
Like you I detox, epsom foot soaks, lemon water, etc. But sometimes there's just too many toxins.
But just remember that it is a "good" thing. Your body is doing some good killin.
WalkingbyFaith
Veteran Member
Joined : Aug 2017
Posts : 8146
Posted 8/17/2017 10:25 PM (GMT 0)
Tony,
I'm sorry you're having it rough right now. I echo everything goshawk said. I had an amazing breakthrough a few weeks ago that only lasted part of a day, but during that part, I felt almost normal. It was enough to give me hope that it's possible, and I haven't had a good day since. I'm not even doing antibiotics. All I'm doing is herbs, but I am very toxic still from mold and God only knows what else. Keep detoxing and don't be afraid to take breaks or adjust things. When you're doing everything right and the symptoms are horrible, I believe it's because your body is flooded with more toxins than you can pee, poop, or sweat out at one time. I'm sure it's also a strain on your liver and kidneys. Again, everything goshawk said is what I have found to be true. Praying you'll get relief very quickly and have peace and clarity of mind regarding how to proceed with treatment. Listen to your body and your gut instincts. God bless.
Denver1
Regular Member
Joined : Apr 2017
Posts : 146
Posted 8/17/2017 10:33 PM (GMT 0)
Wish I could give some helpful advice.
We're in it together. We can do it!
Peace,
Denver1
borrelioburgdorferii
Veteran Member
Joined : Feb 2017
Posts : 731
Posted 8/18/2017 3:15 AM (GMT 0)
Well I also feel your pain...I had a pretty bad night yesterday trying Cymbalta+Wellbutrin (duloxetine+bupropion) to deal with the depression and anxiety of this disease. Now feeling nauseous and achy from fast food earlier. And I know it's always something, so frustrating when you have a day or two almost symptom free and then the familiar aches and fatigue return.
raspberryswirlgirl
Regular Member
Joined : Jul 2017
Posts : 44
Posted 8/18/2017 3:35 AM (GMT 0)
Just sending gentle hugs and completely understand the feeling. I hate not being able to plan anything .
Loads of best wishes! 💜
tonyaraven
Regular Member
Joined : May 2017
Posts : 398
Posted 8/18/2017 5:13 AM (GMT 0)
I honestly don't know how I managed without this site! I am lying here crying as I read all of your posts because I all of a sudden don't feel so very alone! Thank you so, so much! I so long for the day when we can all look back on this time and be thankful we got through it! It's been a pretty horrible day but I guess all I can do is hope and not give up, even though there are times when I just don't know how I can go on like this! I have 3 children and they need there mom so given up just can't be an option! Thanks again all of you💕
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