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LLMD in Monmouth County NJ

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Posted 7/1/2017 7:54 PM (GMT 0)
Are you taking any probiotics? The antibiotics rob our gut of the good bacteria and it needs to be replenished. 70% of our immune system is in our gut. We need our immune system up to par to fight off infections. If we don't have enough good bacteria yeast will populate our gut and you will then have to deal with candida/yeast which is another big problem some of us have to deal with. Not fun!! I would highly suggest that you take a binder at least 2 hours before or after anything to remove the toxins produced from the die-off of the bacteria. Fiber alone won't do it.

Patty
Posted 7/1/2017 10:27 PM (GMT 0)
Yes, taking probiotics every day.
Posted 7/3/2017 12:19 AM (GMT 0)
So, what exercises can I do to help with the recovery process? I'm sleeping better now thankfully and improving some. I would like some of the joint swelling to go down in my knees and wrist. The increased fluid intake has helped enormously.
Posted 7/3/2017 5:19 AM (GMT 0)
Re: exercises. It depends on your fatigue level. You don't want to wear yourself down.

Can you go for walks? - even short ones will get the blood flowing. Or would that not be good for your knees?

When I started to rehab my muscle atrophy - i used really light weights and therabands.
I am using heavier weights now and still using therabands.
I also went for walks.

I am finally back on my bike now..it's been a long, slow road.

I would be careful with your knees and wrist - you don't want to aggravate them.
Posted 7/3/2017 3:05 PM (GMT 0)
Also, please do keep your detoxing up. As you noted in a previous post, when you increased your detoxing, your knees felt better. The bacteria release toxins as they die, and we have to help our bodies get rid of those toxins as it lowers the symptom severity.

And, I did want to agree with starting out with walking, or even a bit of swimming. Just remember, swimming works the whole body so it won't take much to overdo it - so please do be careful!! But, it is summer and lots of people do like to swim.
Posted 7/6/2017 1:06 AM (GMT 0)
Hello, yes I'm going to just start doing a little walking and just a little bit of very light resistance for my shoulders etc. If doesn't feel right I will stop it and wait a while longer. Like I said the fluid intake has been helping out with the healing process. I walked into walgreens and asked about a dry skin brush and they had no Idea what I was talking about. So i have yet to find one. I take one Epson salt bath a night and that also helps. People out there that don't know about Lyme have no clue as to how bad it can be at times. I would venture to say that some strains of Lyme are more aggressive than others too.
Posted 7/9/2017 7:37 PM (GMT 0)
The blood test after starting treatment showed a very high C-reactive Protein at 39.7 The doctor was concerned about this but I was also a little Dehydrated at the time the test was taken. I'm thinking its due to the high amount of muscle inflammation.
Posted 7/9/2017 8:17 PM (GMT 0)
Mr Jones - I had some inflammation in the tendon (right shoulder) and certain exercises hurt it.

My physio had me using therabands - starting with the yellow ( It doesn't have a lot of resistance).
I can't effectively describe the one she had me do - most of the exercises would hurt it

she said if it hurt - then don't do it.
Posted 7/12/2017 12:18 AM (GMT 0)
The doctor spoke with me today. Said not to be concerned right now with the C-Reactive protein that I have muscle inflammation and that's most likely a big part of it. I have to say yesterday was one of my better days that I have had in a long time. As the day wore on everything started feeling a little better. Also slept the best I have to date last night, 5 hours straight. So things are improving, slowly, but on a upward trajectory. So, my best advice to others besides following the ABX prescription, is to increase fluid intake and detox regularly. Also, Vitamins as well. I started taking more in the way of B vitamins and noticed that it seemed as though my wrist pains started to diminish after a few days of taking the B-Complex. The Vitamins appear to help quite a bit.

Post Edited (MrJones) : 7/11/2017 6:22:07 PM (GMT-6)

Posted 7/22/2017 4:10 AM (GMT 0)
Making Progress, 95% of the leg pain is gone. Left shoulder pain comes and goes but is manageable for the most part. Seems it worse when first waking up in the morning but gets better. Just for the sake of others that may have been recently diagnosed, It takes a while for the medicine to work, weeks before you will notice a change. Back in the beginning of the month I had been taking the abx for 5 weeks straight before I could get a decent nights sleep, then another 3 weeks before the stiffness and pain started to wane and I could walk well and get out of chair without trouble. What I'm experiencing now is I'm very tired, and takes a while for me to get going in the morning. Taking naps when I can on the weekends. Still have some range of motion issues but its clearing up as time goes on. Still on the ABX and will be for another month most likely. Thanks to this forum, I was able to gain insight on how to manage the pain and other effects from this terrible disease. So a big thanks to everyone who has posted here in this thread and other threads. Many thanks and may you return to good health as soon as possible.
Posted 7/22/2017 5:54 AM (GMT 0)
Good news, MrJones!

I hope you are fully healed soon and we can add your story to our Success Stories.


Please update us again!
Posted 7/22/2017 2:42 PM (GMT 0)
Mr Jones, are you seeing a LLMD? I am glad you are seeing improvements. Remember that you have to treat for at least 2 months after having NO symptoms.

Patty
Posted 7/23/2017 2:08 AM (GMT 0)
Yes, seeing a LLMD. Just as a side note, he co-authored a book on Lyme disease in 1993.
Posted 9/13/2017 1:38 PM (GMT 0)
can you pm me your llmd?
Posted 9/13/2017 5:02 PM (GMT 0)
frikfrak - Just an FYI - Mr. Jones hasn't been on the forum since his last post in July.
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