Kidney pain after abx. Herx?

I'll try to keep this as short as possible. I have been off of abx. For several years for LD because they did not seem to be helping after a certain point but I did make some lasting progress with them. But here's my current problem. I was diagnosed with a UTI back in September. I was told that it was Ecoli. I took 10 days of augmentin and then 5 more days because symptoms were better but not completely gone.
Then I end up in the ER with excruciating pain in my left side kidney area. I had a 6 mm kidney stone in my ureter. Also I was still having UTI symptoms but they were much better .

The next day I had a stent placed Because my white blood cell count was up and they were afraid to do lithotripsy with an infection .

I had 3 days of iv rocephin in the hospital and then was started on one cipro pill A-day for 5 days . When i had my follow up I was put on two cipro pills A-day More blood work was done and I was cleared for surgery.
I had lithotripsy And another stint placed. That stayed in for a week . I then went back for surgery and had the stent removed . Now most of my UTI symptoms or gone Like bladder pain urgency, frequency and burning during urination. The only symptoms that I have left now are Pain in both kidneys and more overall pain and aching than usual. The cipro made my legs ache very bad also foot and heel pain was very bad . All of the antibiotics seem to have caused a herxheimer reaction.
This morning I used A UTI test strip that was negative. I am just wondering if this kidney pain is just inflammation from all of the toxins from medication and pain meds. That I have had over the last month and a 1/2 .
I am supposed to go back to my urologist tomorrow but I'm wondering if I should just give it a few days and see if it gets better? I forgot to mention that before the 2nd stent was placed I had a culture that came back negative . But I was on antibiotics at the time . The nurse said that that didn't matter. Should I go back tomorrow and get catheterized again for another culture? That procedure causes me pain and irritation every time . Ugh. I'm afraid to go back on antibiotics if I don't really need them .
Also I am having my monthly cycle right now and I'm afraid that it will affect the testing. I'm feeling so stresses and traumatized from pain, hospital stay, and 3 surgeries in 3 weeks.

Hi Sunflower73 -

I'm also sorry for all of the issues. I hope others with specific experience with UTI and kidney stones will be along quickly with input. I don't have this experience.

But I agree with you 100% that the abx are making you herx! I experienced that for about a year when I was given various oral abx for relentless sinusitis and bronchitis (although the infection was fungal, not bacterial) and I started herxing so severely that I FINALLY was able to recognize the symptoms and get to an LLMD and finally got my Lyme & Co diagnosis after going 16+ years undiagnosed. So, for me, it was a good ending. For you, the herxing is making things overly complicated.

I also agree with PeteZa - you should consult w/ your Lyme MD if you can. We never really "get rid of" the Bb microbes in our bodies - we just build up our immune response to dominate. And, when trauma or illness occurs, our immune systems can get railroaded and opportunistic pathogens can cause problems.

You might need to carefully, gently and slowly detox your liver & kidneys with a cleanse. I can't even really advise you how to do this although there is good info online. Maintaining some level of detoxing is going to be important for you too. Whenever my Mycoplasma pneumonia rears its ugly head, or I get dehydrated, or have not been keeping up with my liver support (milk thistle seed and burdock root), my kidneys start hurting.

Also, be sure your GI health is optimal - 70% of our immune system IS our GI so when it is burdened with damage or an unhealthy diet, this is also an "opening" for illness.

Unless there is a threat for serious infection, I would hold off on oral abx for now. You can treat Lyme & Co w/ herbal protocols and

Wish I had more to offer - hang in there.

-p

Thank you all for your replies and good advice. I have not had a kind or treatment of any kind for several years because I got to a point where the abx. had done all that they could do and my body was telling me to stop.
I also did a lot of natural protocols but everything just got to be so expensive that I really just could not afford it all anymore. I seem to do pretty good until something like this comes up and I have to take abx.
Also I think it just takes us longer to recover from any kind of sickness. I am eating very healthy and drinking ACV and lemon water to detox. Depending on how I feel in the morning I might reschedule my appointment with the urologist just to give myself a break and a few more days to recover and be off of abx. So that if they do end up doing another culture maybe the results would be more accurate .
Thankfully my urog. doctor is 5 minutes away if I need to get there quickly.

Thanks for the update -

So, have you checked the obvious off the list? Dehydration, yeast/fungus, stuff like that? Have you done a cleanse recently?

THe urologist is going to have a limited perspective and might not see a larger picture that your LLMD can - have you consulted him/her yet?

What else are you doing for detoxing?

-p

pain is likely inflammation from the infection/stones

DMSO is a super powerful antiinflammatory. get a quality bottle and rub some on your back where your kidneys are everyday, it will REALLY help

I had the same thing after doing lots of mercury chelation, DMSO took care of it in a few days.

also for kideny stones try hydrangea root, super affective.

sunflower73 said...
Hi. Pir.
What test do you recommend for yeast and fungus? My urine culture was negative.

Also what do you recommend for detox? I am eating a healthy diet and drinking a lot of water only.
I don't currently have a kind. I had to stop treatment a few years ago after several years of antibiotics and natural/herbal.
I did get better with treatment but it only took me so far. I manage pretty well until something comes up and I have to take antibiotics again. I just can't handle them well at all anymore. They make me feel so sick and toxic. I hate them so much!
Also I spent so much money over the years that I just couldn't see the point anymore if I wasn't getting any better and I didn't really have anymore to spend. It's unreal how much LD treatment can cost and over the years it really adds up. I still feel angry when I think about how much I spent and how we have to pay out of pocket for llmd when we have medical insc. Ugh.

Here is my general suggestion for detoxing:

DETOXING
The best approach to detoxing is to cover all the 6 bases:

skin - skin is our largest detox organ so soaking or sweating can help draw out toxins - there are many "recipes" online - always start with one thing at a time, increase temperature, exposure and duration very slowly over time

GI - you're on the right track with the charcoal - you will need to maintain 2 hr time buffers before and after the GI binders since it will drag everything out of your GI with it - incl nutrition and meds/supps so give your body a chance to digest these before and after the binder.

brain - the Pinella & Burber aren't binders or antimicrobials - they help the nerves in the brain and I can't explain it better than that - sorry!

liver - it's wise to support the liver and kidneys as they process a lot of toxins - milk thistle seed, burdock root, Pekana homeopathic drainage kits are helpful

lymph - help your circulatory system carry the toxins out of your body and prevent the nodes from getting clogged with red root, dry brushing and gentle massage, warm compresses - look up directions for the last 3 online - technique is important.

inflammation - SO MUCH of our process involves inflammation - it's a natural defense mechanism our immune system employs (often, w/out our permission!) that is intended to "punt" the gunk out of our tissues. And the inflammation is what causes so many other symptoms to pop up (cold and flu sx) but it usually means your immune sx is at work. My Lyme-knowledgable neurologist suggests that MOST neuropathy is due to inflammation so it's important to also reduce the uncomfortable side effects while we're treating, too. Turmeric is popular on this forum. I also like japanese knotweed.

BINDING
Again - generally, the only binding you're doing is with the charcoal. And again, time buffers are critical and so is drinking a lot of water before, during and after taking the charcoal. Over time you can also add bentonite clay or another binder - double up. You want to take the binders after you're done killing everything for the day. Some people can fit in two doses of binding but with the time buffers, this makes it pretty difficult.

*******

Yeast/fungus
The best approach is to evaluate symptoms - here is more info (it's a lot of reading - maybe just jump to the list of typical symptoms and if they ring a bell, read more of the post):

Y/FO post in the "New to Lyme?" thread:
www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275

*******

I like the DMSO suggestion - worth a try. Heavy metals and yeast/fungus often go hand-in-hand. Chelating heavy metals is tricky though, so I'd exhaust other possibilities before doing that.

I know the cost is astronomical. I've last hundreds of thousands over the years - in lost wages and failed treatment. Again, there are MANY other protocols that people are implementing other than abx so I would explore alternative treatments. Many people on this forum can help you decide what to look into. But you might have to create a specific post requesting input so that it gets more visibility.

-p

Pitoutte,
I noticed that you have the. Cholestyramine on your list for treatments. Do you take it for detox?

Hi, SC Gal! You might have noticed that these posts are from 2017, but maybe some people with recent experience will chime in. I hope that your treatment regimen helps! I had kidney pain after rife treatment for Babesia.