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1 year since starting treatment

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Lyme Disease
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Posted 11/7/2017 4:13 PM (GMT 0)
A year ago I started doing treatment - mostly herbal - it's been a year since I've had a normal life, since I've been able to drive, go to the movies, shop, travel, go to parties, go for long drives, you name it. This time last year my life stopped and I've spent most of it on the couch or in bed. Very few people have called, emailed, or come to check on me. It's been a lonely, sad year and I am so grateful for everyone on this board. I don't think I could have made it through this last year without you all.
Posted 11/7/2017 4:47 PM (GMT 0)
10LymeB,

I pray this next year will bring health and wholeness to you in more ways than you know.smile

Blessings!!
Posted 11/7/2017 4:58 PM (GMT 0)
Big, warm hugs to you, 10LymeB. Thank you for sharing how you feel. I know dealing with this bugger of a disease isn't easy. Sending positive vibes that push you onward to your healing.

Peppermint Tea
Posted 11/7/2017 5:00 PM (GMT 0)
What walkingbyfaith said. This is a great place to get advice and direction from so many others suffering with this crap. Hoping things turn around for you soon.
Posted 11/7/2017 5:49 PM (GMT 0)
10LymeB - I hope you get improvements soon. Hang in there and keep at it. You will get there.


(((HUGS)))
Posted 11/10/2017 3:51 PM (GMT 0)
10LymeB - I have not been treating as long but am in a similar situation as far as dealing with the loneliness and the disease on my own. I just wanted you to know you're not alone, and I believe coming to a community like this to share helps to reinforce that.

I had a horrible few days last weekend. Not sure if I increased herbs too quickly or it was a flare or what, but the pain in my legs was waking me up it was so bad! Today I feel "normal".

I think we have to just keep poking away at this illness while we strengthen our immune and other systems. You are on the right road though it is a long one!
Posted 11/10/2017 5:01 PM (GMT 0)
Hey 10LymeB... glad you came here to share what you're going through... so sorry you're going through it though!

I know the sadness & loneliness that can come along with this disease.... just wanted to say I'm thinking of you!

Hope you see some real improvements soon !
Posted 11/10/2017 5:03 PM (GMT 0)
10LymeB I've been at this for 3 years and running into the same situation as you. Folks don't understand chronic disease let alone what lyme and its buddies can do to a person 24x7x365. Even those who really care about you get 'sympathy fatigue' after a while asking you how you're feeling only to hear the same thing that they eventually just fade away.

That's partly why this board is here as a place for support and advice. Imagine what folks did before the Internet where you couldn't connect like this.

Keep plugging away and take it one day at a time. When everything is lost we still have hope that tomorrow will bring a better day and closer to full health.
Posted 11/10/2017 8:21 PM (GMT 0)
I don't think I have ever been as lonely in my life. Even my dogs have to be taken away for 5 days of the week now and i have a friend (the only person who has stuck by me) bring them back and shop for me a couple of days a week. Family, friends have all disappeared. You definately know who cares with chronic illness!



10LymeB said...
A year ago I started doing treatment - mostly herbal - it's been a year since I've had a normal life, since I've been able to drive, go to the movies, shop, travel, go to parties, go for long drives, you name it. This time last year my life stopped and I've spent most of it on the couch or in bed. Very few people have called, emailed, or come to check on me. It's been a lonely, sad year and I am so grateful for everyone on this board. I don't think I could have made it through this last year without you all.

Posted 11/10/2017 8:55 PM (GMT 0)
I understand. I'm in the same situation. Found out in June what has been plaguing me all these years. Found out not long after who my real friends are. Very very few. For those of you that have caring, loving, supportive people in your life, even if just a little, you are blessed.

Keep fighting and know you are not as alone as you feel. My daughter keeps me going. I know she needs me and that gives me strength.

Hugs.
Posted 11/10/2017 8:59 PM (GMT 0)
....those pesky xmas adverts are really annoying now! It's like a constant reminder of who is not in your life anymore!sad


Lwnsmld13 said...
I understand. I'm in the same situation. Found out in June what has been plaguing me all these years. Found out not long after who my real friends are. Very very few. For those of you that have caring, loving, supportive people in your life, even if just a little, you are blessed.

Keep fighting and know you are not as alone as you feel. My daughter keeps me going. I know she needs me and that gives me strength.

Hugs.

Posted 11/10/2017 9:54 PM (GMT 0)
10LymeB -

I am not exaggerating when I say that this forum helped save my life.

I'm so glad you've found support here.

I've also lost most people who were in my life before Lyme & co took over. I haven't heard from most in my family or if I do, it's very infrequent. I literally didn't hear from my aunt for 2 hrs. My sister - an entire year. You do find out a lot of truths through this experience.

The "sympathy fatigue" Rikky mentions is very real.

Don't hesitate to rely on this forum for whatever you need.

-p
Posted 11/10/2017 10:17 PM (GMT 0)
We are not alone. The way we all feel is unfortunately normal for people dealing with chronic illness.

These quick videos are excellent and will help you feel less alone. You can see yourself and your situation in what these people say. I found it very interesting that they all mentioned that they isolated themselves and looking back they wished they hadn't done that. I know that I definitely stepped away from my life. It was a survival tactic at the time and than when I was well enough to reach out to people I was way too pissed off at them to bother.

There are lot's of other subjects. Just scroll up or down. These are actual patients, Better Health Guy and 2 LLMD/ND-patienttalk.com/video/support-lyme-dont-isolate-yourself/
Posted 11/10/2017 10:33 PM (GMT 0)
10Lyme -- please hang in there. You can turn a corner and things can get better. I'm so sorry for how you're feeling, but stay strong, and never give up. Come to the forum anytime you need a boost. I've been lifted up more times than I can count, and am so grateful for it.

I know how you're feeling as I just hit the one year mark, too, and it's disillusioning. How can we still be at this after a year? My Lyme, went untreated for 6 months and then it took another 6 months to diagnose Babesia/Bartonella. Once, I treated the Babesia, I made progress. But, I have a long way to go and my neurological are challenging my sanity, literally.

I understand how you feel isolated, but please know you are not alone. You're never alone, and if you're feeling lost come here. We're in this together -- let's keep the faith that we will all get through this [Amen, Rikky1].
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