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Any advice for super high anxiety and some depression?

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Posted 12/10/2017 4:29 PM (GMT 0)
Hello group..
This battle is quite frustrating! Bit by a tick 4-5 years ago, got the red rash and it went untreated.no symptoms up until September this year when I had several heart arrhythmia. Had brain fog, unusually high blood pressure h and severe anxiety along with twitching and facial numbness. Diagnosed 6 weeks ago with Protomyxzoa Rheumatica. Initially the Doxycicline seemed to help and alot of the symptoms went away. I felt quite good there for a stretch of 3-4 weeks! Now however over the last week and a half my anxiety has roared back. There is no one thing that triggers it, it’s just a constant state of severe uneasiness and a bit of depression. There are points it’s so bad I feel nausea. Any advice on supplements I can take to help with this? I’d rather not go on Zoloft or Lexipro if I can avoid it..

Currently I’m on
Doxy 100 mg per day
B12
B minus
Vitamin D
Probiotic 8 hours after doxy

Thanks

Frank
Posted 12/10/2017 5:54 PM (GMT 0)
Frank, I'm not super good with antibiotics but I think you may not be taking enough. Are you seeing a LLMD?
Posted 12/10/2017 6:03 PM (GMT 0)
Yes I believe she is Lyme literate. She works with Dr F inn Scottsdale, a well known microbiologist. She took over all is Lyme patients when he sold his practice. I was on twice a day and it helped initially and then I started what we think was herxing. I guess it couldn’t hurt to go twice a day? She scaled me back to once a day. Also been doing nystatin for what we think might be minor oral thrush. Don’t know if this all coulda be candida related?
Posted 12/10/2017 6:06 PM (GMT 0)
Killing the critters will just make more anziety if you cant detox fast enough.

Candida from the ABX can create anxiety.

Anxiety is also related to adrenals, ever have the adrenal saliva test?

Quick fix:

1)If your not real low on cortisol, (some of us are high and low), holy basil is an instant calmer - it "levels" adrenals but more on the calming side..

2)Lithium Orotate 5mg- dont freak out, its a mineral not salt much different than magnesium. Not the same as the Rx. This will calm you.

These two together are nearly guaranteed to work but might make you a little tired. Thee are many others but take time to figure out, you sounded like you want relief right NOW.

Note: I've tried many others and use lighter duty ones today..

Also high and low thyroid, both create anxiety. These bugs mess the thyroid up.

Super quick fix in 5 minutes: face flushing niacin
Posted 12/10/2017 6:09 PM (GMT 0)
Like Astroman said, killing the buggers will cause anxiety, especially if you can't rid the body of the dead buggers as fast as you are killing them.

Detoxing is important! That is how you can help yourself to not herx.

Ways to detox: www.tiredoflyme.com/detox-methods.html
Posted 12/10/2017 6:12 PM (GMT 0)
Thanks for the replies. Don’t think I’m abnormal or cortisola, would that have shown up on a regular blood test? Lithium orotate, where does one get this and holy basil? Been to the ER a coupe of times and I believe they tested my thyroid and it seemed normal. Also what does face flushing niacin mean? I have the liquid form been swishing in my mouth and swallowing a little a 3 times a day.
Posted 12/10/2017 6:18 PM (GMT 0)
Frank - One antibiotic isn't recommended to treat chronic lyme.

Also, you need to be bumping the doxy up. 100 mg once daily is not going to cut it.
Not only that, montherapy is not recommended. You need to be on a second antibiotic with the doxy.

At your next appt., I would discuss what the Dr.'s plans are...
Ask the Dr. about treatment of the co-infections.
Posted 12/10/2017 6:23 PM (GMT 0)
"abnormal or cortisola" Its not clear on what you mean by that.. The test I mentioned is not part of a normal blood test.

Oh, I see your a newer member. Lyme can be a very educational experience in natural medicine. Everything I mentioned is natural medicine related.

Cortisol is released from adrenal glands. Its an organ. Looks like you need to research this.(?) Its mentioned quite often on all lyme forums.

Niacin- common supplement, another name for B3. Comes in two forms. The regular one makes your face feel flushed for a couple minutes- that is what you want. NOT the one that say non-face flushing.

The supplement I mentioned are pretty common in vitamin stores. Everywhere on line to.

The ER wont help you much.
Posted 12/10/2017 6:35 PM (GMT 0)
Precisely. He ER billed me $1000 for 3 visits only to tell me I have anxiety. Useless.

Girlie: The anxiety and depression seems to be my only real discernible symptom. No pain, no stomach issues, is this odd? I am going to talk to the dr on the 18th regarding also going on an Diflucan. Doxy andnit seem to work well.
Posted 12/10/2017 7:00 PM (GMT 0)
The advice I gave you is concrete from years of studying this and experiencing it. smile

Dont discount it if it sounds new. Some of this is shockingly new to newbies not familiar with natural medicine.

Lyme is complicated and conventional medicine as we once knew it will not help. There is a lot to learn that your conventional doctors were never taught in medical (pharmaceutical) school.
Posted 12/10/2017 7:05 PM (GMT 0)
making progress with lyme will help.
Its complicated but find a doc that helps and some therapies that help. You
are in charge. Not every doc helps every patient and not every therapy helps everyone-don't be afraid to change.
Posted 12/10/2017 7:18 PM (GMT 0)

eldonkey said...
Thanks for the replies. Don’t think I’m abnormal or cortisola, would that have shown up on a regular blood test? Lithium orotate, where does one get this and holy basil? Been to the ER a coupe of times and I believe they tested my thyroid and it seemed normal. Also what does face flushing niacin mean? I have the liquid form been swishing in my mouth and swallowing a little a 3 times a day.

Cortisol would not show up on a regular blood test...it would have to be ordered.

For total cortisol I did the 24 hour urine collection...and mine was high.

I repeated it a few months later and it was in range.

To know how your cortisol levels are throughout the day, you should do the 4 pt saliva test.
It will measure your cortisol levels at 4 different times of the day (via spit) and then you can see if you're in range.

ZRT Labs does it.

You can purchase Holy Basil online - some health food stores will have it, too. It's a supplement, not a pharmaceutical.
I think you should be able to purchase lithium orotate online as well.
Posted 12/10/2017 7:18 PM (GMT 0)
Do you all think I’m experiencing die off or has this thing roared back? Is this what some would call a flare up? Sorry for all the questions.

Maybe a more important question..

We know I was bitten 5 years ago with the red bullseye rash. Didn’t know what the meant so non treatment. Many on here have said this is a diagnosable event for Lyme. I fully believe that. My question is if blood tests are so unreliable ( mine was only igm 41 positive, taken shortly after my heart arrhythmia episode 3 months ago) how does one actually get “diagnosed “ with Lyme clinically speakin? The PR was diagnosed via a bio fluorescent microscope via blood sample.
Posted 12/10/2017 7:21 PM (GMT 0)

eldonkey said...
Precisely. He ER billed me $1000 for 3 visits only to tell me I have anxiety. Useless.

Girlie: The anxiety and depression seems to be my only real discernible symptom. No pain, no stomach issues, is this odd? I am going to talk to the dr on the 18th regarding also going on an Diflucan. Doxy andnit seem to work well.

So the rest of your symptoms have resolved?

That often happens, some go away with treatment quite quickly...and others' linger longer.
It could still be active infection.
How long have you been treating? Six weeks only?

Chronic lyme needs more than that -
Posted 12/10/2017 10:07 PM (GMT 0)
Been in the doxy for about 2 months.. first it was 200 mg per day, which got me feeling really good for about a week and then I crashed with a big herx. From then it’s been 100 mg doxy a day with a pro biotic 8 hrs after . All this along with b comped c and d vitamins.. seemed to be helping keep me fairly normal. Really good diet changes too. Eating way less fat and whole grains and lots of greens. Is it just seems like every day my anxiety is way high and with no trigger. It’s gotten progressively worse this entire week. Also depressed but not the main driver. Only other symptoms are occasional facial numbness . Seems to coincide with the anxiety however. Could this be non excreted toxins causing this?
Posted 12/11/2017 5:40 AM (GMT 0)
Neuro Lyme is a big suck for sure. I can only speak for myself in that I had sudden onset neuro symptoms and gritted through it for years before beginning treatment. I started with Japanese knotweed and Eleuthero, those really helped bring down the inflammation which helps shut down the cytokines and pathways that cause the neuro symptoms. Also it took a few weeks for the panic attacks to stop. The ptsd and panic disorder takes longer but hang in there; it will get better.
Posted 12/11/2017 6:01 AM (GMT 0)

eldonkey said...
Do you all think I’m experiencing die off or has this thing roared back? Is this what some would call a flare up? Sorry for all the questions.

Maybe a more important question..

We know I was bitten 5 years ago with the red bullseye rash. Didn’t know what the meant so non treatment. Many on here have said this is a diagnosable event for Lyme. I fully believe that. My question is if blood tests are so unreliable ( mine was only igm 41 positive, taken shortly after my heart arrhythmia episode 3 months ago) how does one actually get “diagnosed “ with Lyme clinically speakin? The PR was diagnosed via a bio fluorescent microscope via blood sample.

Well, the bullseye rash is one way to be diagnosed without blood tests.

Other LLMD's will do a clinical diagnosis based on your history (live in endemic area, had ticks on you...known bites...), and your symptoms.
When an antibiotic is prescribed and taken, a subsequent herxheimer reaction can be confirmation.

Also, a negative test result can have positive lyme 'specific' bands that also indicate lyme.
Posted 12/11/2017 8:31 AM (GMT 0)
Your story is my story. Exactly the same, first arythmia and then the other things. I had not read all responses.
For anxeity i take following herbs.

Ashwangada
Skullcap thincture

A spectra of vitamin B (natural not synthetic)
Magnesium

Beside meditation and yoga.
Posted 12/11/2017 8:44 AM (GMT 0)
Hello, Hans-Peter - welcome!


Do you find the supplements you take helpful for the anxiety you experience?

How long have you been treating lyme disease?
Posted 12/11/2017 3:05 PM (GMT 0)
Magnessium that ends in "ate", such as magnesium glycinate by KAL, or magnessium malate help with anziety too, but will make you sleepy.

The Niacin I mentioned is so fast acting it can be used to ward off an anziety attack. Your face WILL feel flushed for a few minutes, thats the only odd symptom. The type than says "no face flushing" on the lable WONT work for calming- dont buy that.
Posted 12/11/2017 3:54 PM (GMT 0)
All great information. Thank you so much! I broke down last night and popped a low grade xanax. It helped level me out quite a bit, although this morning I can feel it wearing off and I am groggy and have a slight headache. I dont see this being a long term solution.

Girlie, based on the symptoms I have described ( muscle twitching, high anxiety, whiteish tongue, depression, heart arrythmea ( none since on doxy)brain fog, having my "zest for life" robbed, High blood pressure ( gone since on the Doxy) Could this be Neuro lyme, Candida, or something else?

So the list you all have provided so far ( below) which would be a good place to start in terms of lowest risk of side effects or reaction?

Japanese Knot weed
Niacin
Ashwaganda
Skullcap tincture
Eleuthero
I am on vitamin b 12 and a b minus deal from Pure
Kava Kava
Valerian
St Jon Wort
5htp ( I have read not to take these while Xanax is in your system)

Any others I am missing?

Thanks

Frank

Post Edited (eldonkey) : 12/11/2017 9:27:48 AM (GMT-7)

Posted 12/11/2017 4:28 PM (GMT 0)

NW_Lyme_Guy said...
Neuro Lyme is a big suck for sure. I can only speak for myself in that I had sudden onset neuro symptoms and gritted through it for years before beginning treatment. I started with Japanese knotweed and Eleuthero, those really helped bring down the inflammation which helps shut down the cytokines and pathways that cause the neuro symptoms. Also it took a few weeks for the panic attacks to stop. The ptsd and panic disorder takes longer but hang in there; it will get better.

May i ask what your symptoms where?
Posted 12/11/2017 4:30 PM (GMT 0)

Hans-Peter said...
Your story is my story. Exactly the same, first arythmia and then the other things. I had not read all responses.
For anxeity i take following herbs.

Ashwangada
Skullcap thincture

A spectra of vitamin B (natural not synthetic)
Magnesium

Beside meditation and yoga.

Hello Hans Peter, can you expand on the natural vitamin B?
Posted 12/11/2017 5:34 PM (GMT 0)
I'm too have anxiety lifelong but it is worse because of the Lyme, found out my cortisol testing started off ok in the am but dropped later in the day. Had to go back on an ssri. Be careful with ssri"s alot screw up your sleep cycles, I found out when my LLMD ordered a sleep study for my fatigue. Poor sleep can drive anxiety too.
Posted 12/11/2017 6:03 PM (GMT 0)

Kct said...
I'm too have anxiety lifelong but it is worse because of the Lyme, found out my cortisol testing started off ok in the am but dropped later in the day. Had to go back on an ssri. Be careful with ssri"s alot screw up your sleep cycles, I found out when my LLMD ordered a sleep study for my fatigue. Poor sleep can drive anxiety too.

Good to know! Thats the one thing I haven't had trouble with is sleeping. I am getting 7-8 hours a night or longer sometimes. How does one go about getting a cortosol test? I too feel somewhat ok in the AM for the first half hour or so, and then I crash with a build up of anxiety and underlying depression. Completely unlike me prior to my heart arrythmea episode.

One of the links for detoxing mentioned Activated Charcoal, is this something that I can try with limited risks? I have the powdered form it says two teaspoons with a full glass of water. I guess I have become quite the hypochondriac too with all this LOL!
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