My Journey to Healing Lyme

Day 16

I started rebounding in the morning after I wake up to help aid with detox and lymph movement. No major symptom changes. Woke up a few times throughout the night but much less "abdominal paralysis" this morning. I'm trying to work my water intake up to 4 liters of water per day to help with moving toxins out of my body. Aside from that, nothing major to report on.

-Mav

EDIT - no liver pain at all today. I started taking activated charcoal twice per day to help with binding toxins. That seems to be helping!

Post Edited (Maverick6981) : 12/29/2017 2:37:05 PM (GMT-7)

PeppermintTea said...
Glad to hear you are having less abdominal paralysis. Keep up the great work!

Thank you! Just taking it one day at a time. Just over half way in my first month of self-treatment!

DAY 17 - Added Inositol Powder

After doing much research, I have decided to add Inositol into my treatment regimen. I still have crazy bloating all day long as well as "paralyzed abdominals." These symptoms have not diminished at all. Aside from that strange knee symptoms I had yesterday, nothing new to report on. I really hope this bloating goes away soon, I look ridiculously fat and I am usually a pretty fit guy. It's very uncomfortable when breathing as I feel like I have a huge beer belly. My girlfriend and I are going Ice Climbing for New Years instead of going out and partying so this is going to be a fun way to bring in the New Year. I have never had this much bloating EVER. Not sure what's going on. Anybody have any insight on crazy bloating?

Mav, lyme loves joints so I think it is just a symptom.

However, the way you describe it is exactly how my torn medial meniscus felt.

Traveler said...
I haven't read this whole thread, but if this is a recent change, try to remember what changes took place in your treatments or diet when the change happened. If it happened when you got infected, the issues may be much deeper and may take time to correct.

Do you know if you have enough stomach acid to "do the job"? hansacenter.com/simple-at-home-test-for-low-stomach-acid/ That's where I'd start. I too have essentially paralyzed intestines, and have had to do a lot of work to get them working again - and they are, just not efficiently yet, but I'm working on that.

Next, it could be that you have a nervous system infection that is interfering with the signals that travel through the nerves to the stomach and intestines that give them the cue to work properly. If that's the case, nervous system treatment is needed, and you may need to take lion's mane to help rebuild the myelin sheath that protects and helps with nerve conduction. Lyme disease is a demyelinating disease, and it can affect any part of the nervous system.

From there, it depends on the answers to the above questions as to where to go next though. Best of luck on this!

Thank you for this info Traveler! I will look into the home test! :D

DAY 18-20

Happy New Year everyone! I have changed up my herbal dosages. I felt that two full teaspoons per day of each herb was a little much and I have decided to drop it down to 1/2 tsp of each herb 3x per day. While I am taking them more frequently now, I am still taking a smaller dose than before (down to 1.5 tsp each from 2 tsp per day). I am hoping that this will keep a more stable amount of the herbs in my body so there is no lapse in time where my body doesn't have any. My Acetyl L-Carnitine arrived today so I started taking that as well. Below is my most current dosage schedule:

Morning:
1. Japanese Knotweed - 1/2 tsp
2. Salvia Miltiorrhiza - 1/2 tsp
3. Scutellaria Baicalensis - 1/2 tsp
4. Ginkgo - 15 drops
5. Eleuthero - 15 drops
6. Inositol Powder - 1/4 tsp
7. Acetyl L-Carnitine - 500 mg

Lunch Time:
1. Japanese Knotweed - 1/2 tsp
2. Salvia Miltiorrhiza - 1/2 tsp
3. Scutellaria Baicalensis - 1/2 tsp
4. Ginkgo - 15 drops
5. Eleuthero - 15 drops

Evening:
1. Japanese Knotweed - 1/2 tsp
2. Salvia Miltiorrhiza - 1/2 tsp
3. Scutellaria Baicalensis - 1/2 tsp
4. Ginkgo - 15 drops
5. Eleuthero - 15 drops
6. Inositol Powder - 1/4 tsp
7. Acetyl L-Carnitine - 500 mg

*I have added one to two fresh juices per day (cucumber, celery, parsley, ginger, and garlic) to help with the immune system and detox. I also will add 1 scoop per day of Green Vibrance (no specific time of day). If there are no issues by the end of the week, I will begin to add in the first supplement for Collagen Protection. So far, so good. I noticed that my paralyzed abdominals have been doing better and the bloating seems to be slightly going down since adding in the fresh juices (look up the benefits of juicing garlic and ginger). Here's to hoping I start to feel better mentally soon!

-Mav

DAY 21 - STARTED COLLAGEN PROTECTION

After speaking with my very knowledgeable friend about the importance of gut health, I have decided to add in 200 mcg of Selenium and 1 tbsp of Gelatin Powder (Great Lakes brand) per day. This is two of the 3 recommended supplements in the Collagen Protection of the Core Protocol. I will also need to pick up some Vitamin C. I also added in 1g of glutamine per day. All of these will help immensely with gut health. I am close to being up to the amount of supplements I was taking last year when I tried the protocol. I am starting to notice that my head is getting more clear than before! My abs aren't paralyzed anymore! I would say they are now a 1 or 2 out of 10 down from an 8/10 earlier last week. My friend also has been telling me about the necessity of getting a NEAR infrared sauna. Supposedly it denatures the proteins of the bacteria making them visible to our immune system. It doesn't kill the bacteria but instead alters its form to make it findable by our immune system to kill it. I will share more information about this as it comes!

Here are all the supplements/herbs I am currently taking:

1. Japanese Knotweed - 1/2 tsp three times per day
2. Salvia Miltiorrhiza - 1/2 tsp three times per day
3. Scutellaria Baicalensis - 1/2 tsp three times per day
4. Ginkgo - 15 drops three times per day
5. Eleuthero - 15 drops three times per day
6. Inositol Powder - 1/4 tsp two times per day
7. Acetyl L-Carnitine - 500 mg two times per day
8. Glutamine - 1g per day
9. Great Lakes Gelatin Powder - 1 tbsp per day
10. Selenium - 200 mcg per day

I also try to drink at least 1 fresh green juice per day and use my rebounder for at least 10 minutes per day. I am starting to feel more clear headed today! It isn't much of an improvement but it IS an improvement! I'm starting to feel that I am beginning to make some progress!!! We can do this everyone! We CAN heal ourselves!

-Mav

Post Edited (Maverick6981) : 1/3/2018 1:14:17 PM (GMT-7)

DAY 22

Today hasn't been the best of days and it's been adding a lot of stress. I elected $2600 for my FSA for 2018 to use to pay off the remaining balance of my LASIK procedure I had done last year. Turns out, I can't use that money for a procedure I had last year. So now I'm stuck fronting $3500 out of pocket for that procedure on top of having $2600 in my FSA that I can't use on anything. I'm going to see if I can repay that amount to my employer so they don't deduct $100 out of each paycheck. If not, I'm sure I can find a way to spend that $2600 on Lyme treatment. I also gained 10 pounds over the holidays as well as dealing with a very bloated stomach. I'm not feeling emotionally well today and am starting to feel down about getting in so much more debt. I just want to be debt free. Debt is the worst thing on the face of the planet to me. I'm feeling like there's no way to get ahead financially in this world. But I know that isn't a productive mindset so hopefully that goes away soon. Hoping you're all having a better day than I am!

-Mav

SYMPTOMS TO DATE

I have been on the Buhner Protocol for 22 days now and I want to make an update of my symptom profile. I'm not sure which of these can be attributed to Lyme or the Herbs.

1. VERY bloated stomach (new symptom since beginning treatment)
2. Sometimes paralyzed abs; this has decreased in intensity over the past week or so (new symptom since beginning treatment)
3. Dry/Itchy skin (new symptom since beginning treatment)
4. Still feel "spacey" (depersonalization, derealization)
5. VERY tired all of the time
6. Very dark circles under my eyes (have gotten worse since beginning treatment)
7. Hard to focus - there seems to be ever so slight times of day when this improves.
8. Feeling like I'm not present - the intensity is diminishing slowly
9. "Filmy" vision
10. Severe Brain Fog

*I feel that most of my symptoms have stayed the same with some diminishing in intensity. I have developed two new symptoms over the past 22 days (bloated stomach and paralyzed abs). All in all, so far I have noticed a slight reduction in a few symptoms (focus is slightly improving, feeling like I'm not present is slightly improving, and I'm starting to feel a tad bit more focused throughout the day). Within the next 2 weeks I plan to be taking all of the herbs in the entire Core Protocol. I'm going to have to order some more here soon and that will be an expensive purchase. I just need to add in Vitamin C to be at all the supplements for Collagen Protection. After that, it is the immune remodulating herbs and finally the Antispirochetals. Here's to making 2018 the year I heal Lyme!

-Mav

EDIT - One thing I admit that I haven't been doing enough of is detoxing. In fact, I haven't really done anything besides taking Activated Charcoal once or twice per day. And even that hasn't been consistent. I haven't been feeling terrible so I haven't done it. I know it's an important part of recovery even if I'm not herxing. I want to start doing the detox baths. I'm also going to be making myself a NEAR infrared sauna (one of the best forms of detox) and will start implementing that as well. However, that is still a few weeks away.

Post Edited (Maverick6981) : 1/4/2018 4:26:31 PM (GMT-7)

MistyLaird said...
How are you making the sauna?

My friend is starting a sauna company and will be making me a prototype. He's built all of his own saunas and some for his friends and family. He's very knowledgeable about health and has healed many of his own health issues. He recommended this book /www.amazon.com/Therapy-Detoxification-Healing-Lawrence-Wilson/dp/0962865761/ref=sr_1_1?ie=UTF8&qid=1515114093&sr=8-1&keywords=sauna+therapy After reading that book, I will have more information and will post it on here.

Maverick - I do hope you look into the coinfections after Lyme.

Few of us are healed with lyme only treatment.


Good luck!

DAY 28

Today is the second day I have been taking the Cats Claw. I have noticed that I have been getting stiff necks since taking it. I am only using 1/4 tsp 3x per day. I think this may be a herx. It's nothing too major, but it's something that hasn't occurred while taking any other herbs. I have heard of other people having this same reaction with Cats Claw but said it went away a few days later. I will monitor this and decide whether or not to decrease the dosage. Aside from that, nothing major to report on.