Success stories -

Hi, Im pretty new to all this and it has been a pretty steep learning curve I have to admit..

This forum and its members are so helpful when you have no idea where to turn and it has been a great place to educate myself byt I have also found it to be a little dissheartening due to the fact that there are not so many stories of people beating this horrible disease.

I would like to think this is due to the fact that the people who get better just dont spend time on the forums anymore but I just dont know.

Maybe It would be a good idea to have a separate section where people can tell their stories and also a success section where people can read about people who got better and how they achieved it.

I feel It would give people hope and help them remain positive which can only be a good thing or am I missing something?

Post Edited By Moderator (Girlie) : 12/27/2017 10:49:10 AM (GMT-7)

Here's a link to some of the success stories

/www.healingwell.com/community/default.aspx?f=30&m=3562412



EDIT: I realize that the success story should be posted in it's own thread and then just the link posted here.

If you have a healing story...start a new thread so it has it's own 'space' and we can add the link to the thread of successes.
Do not add it to the thread (linked above)

Sorry for the confusion!!!

astroman said...
I just made a post for new ones.

I'm thinking we should just keep building on the original one?
That way they're all in one thread?

I think it's fixed now - not sure what happened

Fantastic just what I was looking for... we could all do with some positivity from time to time.

Well, actually I was talking about a place for posting new threads on this. Hoping they (posters) would see the title and post here. There should be new posts pretty soon, usually a few come back around new years.

Linking works too, to past or new success stories.

as many as 1 in 15 people have lyme and co. That's approximately 500M (half a billion) people worldwide.

a minscule percent of those people are on online forums or writing a blog about their lyme disease. People treat, get better, and then move on with life.

I even did that myself the first time I put lyme into remission.

Then when I relapse I came crawling back with my tail between my legs. Now as I have lyme 90%+ back into remission once again, I've decided I will not do that again.

I'm consistently back on to share hope and advice. I'm not just going to use this place (the place that taught me so much about getting well and helped keep my sanity during really dark times) only when I'm down and out.

But to stick around and give back how I can.

Edit: to give some perspective. I was listening to a podcast where a guy was being interviewed. The interview had NOTHING to do with lyme disease. But through the natural progression of the conversation of this 2hr+ podcast lyme disease happened to come up.

And the guest said "oh yea I had lyme disease" and the conversation continue for about 30 minutes on lyme disease. He had it for 3 years undiagnosed. He was in terrible shape. At one point bed ridden. Aand it took 3 years for him to fully recover. He shared his complete story. Once again the interview and podcast originally had nothing to do with lyme disease.

It just shows you how common it is and how people get, get better, and move on.

1000Daisies- Sounded good to me at first too (just 2018), but were not exactly overflowing with new stories (ex; healed in 2018), much less older ones.

We had more posting this the last few years. But this week/year is still young.

And although partial healing is a partial success, but doesn't full recovery sound better? I've been "partial" for almost two years. Sounds greedy, but I'd like more than that!

dacarte3 said...
as many as 1 in 15 people have lyme and co. That's approximately 500M (half a billion) people worldwide.

a minscule percent of those people are on online forums or writing a blog about their lyme disease. People treat, get better, and then move on with life.

I even did that myself the first time I put lyme into remission.

Then when I relapse I came crawling back with my tail between my legs. Now as I have lyme 90%+ back into remission once again, I've decided I will not do that again.

I'm consistently back on to share hope and advice. I'm not just going to use this place (the place that taught me so much about getting well and helped keep my sanity during really dark times) only when I'm down and out.

But to stick around and give back how I can.

Edit: to give some perspective. I was listening to a podcast where a guy was being interviewed. The interview had NOTHING to do with lyme disease. But through the natural progression of the conversation of this 2hr+ podcast lyme disease happened to come up.

And the guest said "oh yea I had lyme disease" and the conversation continue for about 30 minutes on lyme disease. He had it for 3 years undiagnosed. He was in terrible shape. At one point bed ridden. Aand it took 3 years for him to fully recover. He shared his complete story. Once again the interview and podcast originally had nothing to do with lyme disease.

It just shows you how common it is and how people get, get better, and move on.

This is SO true! When I first found out I had Lyme I felt so alone. Then as you start to talk to people about it you find that almost everyone knows SOMEONE that has/had Lyme.

-My sister is a teacher and one of the teachers at her school had it for a few years and then beat it.
-My manager had a friend at her last job that had it for awhile
-One of my friends just got it a few months ago
-I went out with some work friends and they said someone in another department is struggling with it
-My uncles best friend had Lyme. Doctors told him he had cancer but they couldn't find it. They told him he would die. He found an LLMD and did IV Rocefin and got 100% better almost instantly. I think he only did it for a month.

The list goes on and on. People get Lyme, beat Lyme and don't want to look back in my opinion. Usually if I try to talk to someone about how they got better they are really short. Like Astroman said, it's like an extended nightmare that we just want to forget when it is all over.

When I heal, though, I will be sure to help in every way I can if someone comes to me.

Post Edited (NicHostetler) : 1/3/2018 7:15:02 AM (GMT-7)

astroman said...



I worked out yesterday, a full body workout (but no "maxing out"), hopped out of bed feeling pretty good this morning.

That's great!

I am slowly getting my strength back...but still fairly weak in certain areas some days. But, I do still have active infection....so a ways to go yet.

Great posts guys! To keep the success storries visible without bumping could we not make it a sticky at the top of the forum under the new to lyme thread? It might also encourage more people to post in it