Low Dose Naltrexone, what did it do for you? Do U have Autoimmune antibodies and did LDN?

This has been on my back-burner for a long time. I've been away from the "weird Drs/LLMD's ect" for two years now. Its nice not having these non-covered $300-400 hr Dr bills.

However, I have recently seen a Osteo Dr (slightly in the "Weird Dr" category) who will/has Rx'd LDN for patients. The kicker is insurance accepts Osteo MD's and a $30 co-pay is my ticket to try LDN, affordably.

I'd like to know what general symptoms LDN improved. If you have any real autoimmune, this would be even better to hear about. LDN is controversial with autoimmune, I cant find straight answers.

Notes: Per my signature, I have not needed to treat lyme for a few years. I'm in repair mode (muscles/tendon repair)and part of this is dealing with autoimmune. In addition to a history of elevated antibodies, I have multiple copies of autoimmune genes so the kindling was already there to happen, and I think lyme was the trigger which set off this out of control train.

My quest may never be finished and I refuse to give up learning about this. Without the internet, myself and many of you would be much worse, so I really appreciate the info here and everywhere on the web.

The web really needs a good autoimmune forum filled with "brainiacs" instead of breaking up into specific diseases like conventional medicine does. To bad most autoimmune people only listen to clueless conventional Drs who in-turn, only cover symptoms with Rx medicine.

Post Edited (astroman) : 2/3/2018 2:20:18 PM (GMT-7)

There quite a few LDN users here a couple years ago. I might have to goggle this place some more and maybe e-mail them.

LDN has been wonderful for me. However, I do not have any autoimmune issues. Sorry I can't help in that respect.

I was diagnosed with MS in 2010 due to white matter brain lesions. I started LDN in January 2017 because my LLMD said it would help modulate my immune system. I worked my way up to 2 mg and stopped after 4 months. I couldn't tell if it was doing anything good or bad so I quit.

An MRI in October of 2017 showed my lesions had advanced and my Integrative doctor said I should start and stay on it. I've been back on LDN for 3 months. Still no help with my lyme, bart and babs symptoms but I will continue to take it to stop lesion progression-I hope.

Girlie, you are right. I am just taking my time going up 1/2 mg at a time because it does cause me great sleep disturbances for about 3 weeks each time I increase. I'm hoping that I'll feel better once I make it to the higher dose.

acarined, thanks. That is an option I might try.

After starting treatment for lyme, my ANA turned positive, though just slightly. They weren't concerned it was an actual autoimmune disease, but that the lyme had caused it. A few months later, one of my drs put me on LDN. I started at 2.5 and worked up to 4.5 where I am currently. It seemed to help with my muscle weakness, fatigue and sleep issues. Next time I see my dr she is going to decide if it's time to wean off it. I haven't noticed any negative effects from it.

Good to know you didn't backslide when you stopped the LDN bmoberg.


I always wonder about these supportive meds we take - can we get off them eventually.