Are there people out there actually recovered from Lyme dsease?

I am totally broke. Mostly emotionally, I have only been using my antibiotic for 5 weeks and I cannot see any improvemnt. It has been 6 months I was infectec when I cought it, obviously too late. Already I am so worn out. It looks like there is no treatment with Lyme disease, in fact some expercrts even say Lyme disease and MS and other neurological diseases are the same. So... I feel like I am buyng hope each time I buy a herb, I get my antibiotic, I get an appointment with my doctor. All I am wondering is there people out there who recovered from this crapty disease? Who actually got over it, who is way better now? If yes where are they? This information is the only ing that can give me hope. A real hope and power to fight with it.

People do recover I have read their stories and I have met people who have gotten better.

But.....it can take time and for some of us a long time.

I understand how you fell emotionally, these infections can wear you down.

We just have to keep trying to get better and keep moving forward.

I heard someone say "Hope is the best medicine".

Somedays its all we have.

Keep hoping for the best, and keep treating and you will get there.

Take care, Jo

Girlie said...
I'm sorry that you're having a rough time with this.

And, yes people do recover from it.


Here's a thread on some forum members who have gotten better:


/www.healingwell.com/community/default.aspx?f=30&m=3562412


I also know several people in my general location and their stories aren't in that thread.

Thank you very much Girlie, maybe because I am still in the stage of accepting it, I talked nonsense there and maybe even brought some negativity here. I regret for both writing it and drinking lots of wine meanwhile and breaking my very strict diet... But like you say, there are people out there recovers and none of them is by chance I guess. It requires time and dedication. It is a different kind of challenge for each one of of us. I do hope the best for all of us, even communicating here and exchanging knowledge is awesome. I guess people who had lyme 15 years ago they were not as lucky as we are now. Thanks again for your response, it did help.

Hypatiac said...

Girlie said...
I'm sorry that you're having a rough time with this.

And, yes people do recover from it.


Here's a thread on some forum members who have gotten better:


/www.healingwell.com/community/default.aspx?f=30&m=3562412


I also know several people in my general location and their stories aren't in that thread.

Thank you very much Girlie, maybe because I am still in the stage of accepting it, I talked nonsense there and maybe even brought some negativity here. I regret for both writing it and drinking lots of wine meanwhile and breaking my very strict diet... But like you say, there are people out there recovers and none of them is by chance I guess. It requires time and dedication. It is a different kind of challenge for each one of of us. I do hope the best for all of us, even communicating here and exchanging knowledge is awesome. I guess people who had lyme 15 years ago they were not as lucky as we are now. Thanks again for your response, it did help.

No worries - this forum is great for support when we’re feeling overwhelmed by this nasty disease.

Just dig in for a fight and don’t give up

Well, most of the healed people have moved on and are living their lives again. I am a person that is in remission or healed. I healed with herbs. My husband is healed and he healed with herbs also. I did Beyond Balance and Buhners. I really relied on a moderator of this forum (she no longer posts here and has moved on with her life), my common sense, intuition, a heck of a lot of positiveness and my faith.

There is no ONE way to cure lyme. It is a heck of a lot of trial and error. There is no timeline for curing lyme either. It will take as long as it takes.

I got a plan and I stuck with it. It was not fun. It was restrictive in many ways, but I wanted to be well more than I wanted carbs, wine, sport activities, etc. Every time I did something I should not, it put me back a few days. I had to be consistent.

I quit watching the news and only did positive, happy movies. It was depressing enough being sick.

Now, it is hard for me to come here because it breaks my heart to see so many hurting. It is ridiculous that so many must hurt in this day and age and there is no consistent treatment YET. -- there's my hope for everyone.

My lyme is not gone. My lyme is managed or in remission. I know that if I overdo things, I still will pay for it.

I hope this is helpful. My wish is that this forum gets less and less people. I hope awareness is brought to people so more do not have to suffer.

I think of my husband. No bite, no bull's eye. If I had not gotten lyme before him and got a blood diagnosis, we would have been to doctor after doctor trying to treat his tinnitus and aches and pains. I know there are still people out there that haven't a clue that they have lyme. They are just suffering and that makes me sad.

Healing hugs to all and I'll pop in once in awhile. I have an ailing Mom that I am spending a lot of time with now.

I am pretty close to recovered I think. I have been off antibiotics for almost 3 weeks now, and my symptoms haven't started creeping back. Knock on wood.

People do get better

Hi Hypatiac,

I have been healed from chronic lyme for over 12 years so please don't lose hope! When time allows I try to post to help others.

Antibiotics didn't agree with me so the short version of my healing story is I bought Dr. Jernigan's book "Beating Lyme Disease" which has a "healing at home" protocol that I followed. It wasn't only taking his remedies but I incorporated a detox routine (detox baths, dry skin brushing, etc.), changed my diet, addressed my stress levels. There is more but that's the short version.

Thus I didn't see any doctors but self-treated with the help of the above mentioned book and that worked for me. I am also an avid researcher (always was and always will be).

That said, for the past couple of years to present I am a full time caregiver for my elderly Mom who has Alzheimer's so I'm a busy girl!

As Peteza said what works for one person doesn't mean it will work for everyone.

Hang in there okay?
Denise

I hope there are people out there that have been cured. I was diagnosed last night because I had a rash on my back that was a bit odd. I was immediately put on antibiotics which I'm not happy about. I just retired, I just hit the road to travel for the next 3 to 5 years. Now what is going to happen? I have no other symptoms other than the rash so my hope is this medication will rid me of the disease. My doctor did not do lab work because he felt the rash was significant enough for diagnosis. I wish all the best to each of you.

Sorry you are dealing with Lyme. Yes most likely you will need to see a Lyme Literate Dr to get the best chance of full recovery. Unfortunately, most ID docs will do 28 days of Doxycycline and declare you "cured" and dismiss you; even if your symptoms are progressing.

Some people are lucky and a few weeks of Doxy does knock the infection(s) into remission.

Not sure on the LLMDs in VA.

Girlie- Any recommendations?

What?Lyme?Me? said...
I hope there are people out there that have been cured. I was diagnosed last night because I had a rash on my back that was a bit odd. I was immediately put on antibiotics which I'm not happy about. I just retired, I just hit the road to travel for the next 3 to 5 years. Now what is going to happen? I have no other symptoms other than the rash so my hope is this medication will rid me of the disease. My doctor did not do lab work because he felt the rash was significant enough for diagnosis. I wish all the best to each of you.

I hope you see this.

You need to be on antibiotics for a minimum of 6 weeks if all you have is the EM rash.

If you're taking doxy, it should be 200 mg twice daily.
You are fortunate - you caught it early - if it's just the rash you have...and your Dr. is correct - the rash is enough to diagnose.

Girlie, how do you convenience the doctor to up my meds and extend treatment? All my medical care is at the VA Hospital as a Disabled Veteran.

What?Lyme?Me? said...
Girlie, how do you convenience the doctor to up my meds and extend treatment? All my medical care is at the VA Hospital as a Disabled Veteran.

Perhaps ask your doctor to review the International Lyme and Associated Disease Society (ILADS) website:

www.ilads.org

And, the ILADS Treatment Guidelines

www.ilads.org/lyme/treatment-guideline.php

It would probably be more likely that a doctor would listen to another doctor, versus listening to a patient.

Welcome to the forum, friend. As a fellow Veteran, I sincerely appreciate your Military service.