Posted 4/19/2018 1:52 PM (GMT 0)
Dear forum,
Last year I suddenly got massive round shaped hives on my body, I got crawling sensations UNDER my skin everywhere (nerve damage?), burning under skin, stomach pain from hell, something that seemed like MS/meningitis like symptoms, big cyst like bumps under my skin (and acne/cysts on my skin). tinnitus, collagen thats gone/indentations in skin, visual snow , floaters, massive hair thinning and shedding, Livedo/vitilligo (my skin was perfect before this) and randomly appearing striae on my back and bum and hips, while i am lean and never got or lost any weight.
I have NEVER had anything in my life before this.
Now doctors couldnt find a single thing, they tested me for lyme (LTT, elisa, pcr, every test imaginable), MS, ALS, various tickborne diseases (including babs and bart with PCR and elisa's) and mostly all parasites, I got a CT scan and all, the only thing they found was EBV and CMV titers, liver enzymes that were in the 200's (now theyre slightly elevated @ 60ish). And massive ammonia in my blood (X10 max value). A private doctor found neurotoxins and IL8 markers up and now treats me for expected SIBO.
Here's my question: I think I must've gotten Bartonella (everything suddenly started during summer) and it's not only suppressing my immune system but spread to everywhere in my body, is this correct? What do you guys think? The oval shaped Hives, the random striae that HURT like hell on my hips/bum and the crawling under the skin/hair loss/eye problems all point to Bart, but no doctor will recognize or treat me for it. (I live in Europe).
Any opinions are appreciated!