Insane muscle twitching with mino.

My 8 year old son experienced this.

He never had muscle twitches before taking mino, just fatigue, achy joints, painful feet, and anxiety.

When he started Artemisinin and mino, he soon developed the muscle twitches. The muscle twitches eased over time (3-4 months), then he stopped taking both Artemisinin and mino, and now he only occasionally gets the muscle twitches.

I had lots of muscle twitching through my treatment and it's been one of my longest lasting symptoms. Mine definitely wasn't caused by mino bc I stopped taking that in August but continued to have major issues with it. In the past month, about a year after my symptoms started, my muscle twitching is close to gone. But it took forever and I was very frustrated with it.

Hi OriolCarol,

So sorry to read that you are suffering from this. Are you detoxing (dry skin brushing, detox baths with Epsom salts and hydrogen peroxide, foot baths, etc.)? When bacteria die off they leave over toxins. If toxins are not eliminated they can cause havoc.

When I was sick with chronic lyme I suffered from the toxin Ammonia that caused joint pain, brain fog, fatigue, etc. What helped me was taking a remedy called Neuro-Antitox CNS/PNS which targeted the ammonia in my body and brain (it crosses the BBB).

Some people can actually smell the ammonia from their body. It kind of smells like cat urine..

Hope this helps,
Denise

I know that Zith has the warning of Long QT Syndrome, but wasn't aware of the Plaquenil.


It is rare.

You're not taking the Artemisinin daily are you?

Or is it Artemisia (whole herb) you're taking?

Your liver enzymes need to be tested once a month...are you doing that? (along with kidney function and CBC)

OriolCarol said...
Girlie when you had muscle twitching, was it constantlly? Not in the same muscle but every 1 or 2minutes...

Yes, when it happens...it's constant - even quicker than every 1 or 2 minutes. Like maybe 20 seconds intervals... Sometimes in one muscle...sometimes in several.

OriolCarol said...
Yes Girlie,it's an EMG.

My llmd says that it is a small damage to the nerves, in response to the bacteria leaving my body ... it is true that my anxiety, panic attacks, shortness of breath, have improved a lot, but these symptoms of muscle twitching surpass me. ... I have them in the back, lumbar, hand, fingers, neck ....

it is hard to get rid of that twitching. i still have it from time to time.

so what do u think your neurologist will tell u? i have axonal damage and pathological EMG. that was in 2014 so 4 yrs ago. dr told me it's either one of the 3: cancer, autoimmune or infection. lol... thank you doc.

seriously. unless your doc is lyme trained he will only get you more confused.

im still around and can run, jump etc.... so after 4 yrs i guess that rules out als in my case.

probably if i go to a neurologist he'll tell me i have RRMS and hook me to interferon and some -lizulabs for rest of my life... no thanks

DS had a lot of this twitching before and throughout the first part of his treatment. He has been on mino for 2.5 years now (pulsed mostly). He now has no twitching anymore, but oddly he did appear to have some nerve damage as his knee reflex was awful at the last appt a few weeks ago. His NP said, don't worry, that will come back over time as Lyme tends to cause that kind of damage but it should heal.

I hope it wasn't antibiotic damage because he's never had that poor reflex response before. On the other hand he is in peak physical form and running around all the time, all muscles firing at top performance while he plays lacrosse so it seems ok.

I do think you'll find it subsides but it may take some time. Magnesium and potassium are important. DS herxed fiercely on magnesium supplements during the time he had twitching so we had to do epsom salt baths which didn't cure them but may have helped a bit.

twitching means that the abx are reaching the brain...when i use tetra, in combo with japanese knotweed my twitching increases....eyelids, toes, thigh, wrist etc. as my llmd uses pulsing, during a 2 wk off pulse the twitching greatly calms down...but when taking something that is actually getting into my brain, its twitch city...and mino def gets into the brain...my dr uses tetra as you can do alot more of it (1500 mg a day) as compared to mino or doxy...Donta used tetra as well...not sure why so few doctors use it

so i take twitching from treatment as a necessary evil...hopefully when there it nothing left to kill the twitching will stop