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B6 Toxicity????

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Posted 5/10/2018 7:39 AM (GMT 0)
I’m pretty sure I’m only getting B6 from food now.

I will do another test in a couple months - unfortunately it’s one that I’ll have to pay for, but it’s worth it for peace of mind.


Well I may be taking abx longer than I need to then because I won’t be stopping with symptoms that may or may not be nerves that need healing time.

Time will tell.
Posted 5/10/2018 3:05 PM (GMT 0)

sandyfeet said...
Girlie, do you know if you have the MTHFR gene? It seems that people with this gene have difficulty converting b6 (as well as folate) and need to take a different form of b6.

No I haven’t tested for the MTHFR gene

The b complex I have is the methylated b’s - so it’s the p5p I’m getting.

But I haven’t been taking it regularly - very infrequent.
Posted 5/10/2018 3:12 PM (GMT 0)
B6 threads not to long ago:

/www.healingwell.com/community/default.aspx?f=30&m=3933894


/www.healingwell.com/community/default.aspx?f=30&m=3861093


/www.healingwell.com/community/default.aspx?f=30&m=3350007

****Ive had three types of b6 test****, 3 diff ranges too of course


Many non natural and processed foods have cheap B6 added, even some milk. Eat grains/cerials - its added in those too.

Post Edited (astroman) : 5/10/2018 9:19:04 AM (GMT-6)

Posted 5/10/2018 5:22 PM (GMT 0)
www.drorestesg.com/blog/are-you-overdosing-on-vitamin-b6-

/www.livestrong.com/article/317889-vitamin-b6-toxicity-symptoms/

Not so funny- For a couple months I took a suppliment which aimed at nerve health, of course it had synthetic B6 in it.

Post Edited (astroman) : 5/10/2018 11:30:55 AM (GMT-6)

Posted 5/10/2018 5:31 PM (GMT 0)
Astro:
That's the strange thing - Its not from taking supplements... in my case.
Usually high B6 levels is from people dosing with vitamin b pills/capsules. usually high quantities.

But when I was searching - googling - I did come across blogs/forums with people having high levels without supplementation.


Interesting the link you posted....there's another link to how to reduce your levels...so I'm going to focus on that....
Posted 5/10/2018 7:01 PM (GMT 0)

Girlie said...
Astro:............there's another link to how to reduce your levels...so I'm going to focus on that....

In this current thread? I like to read that, since I,ve had this in the past.
Posted 5/10/2018 7:13 PM (GMT 0)

astroman said...

Girlie said...
Astro:............there's another link to how to reduce your levels...so I'm going to focus on that....

In this current thread? I like to read that, since I,ve had this in the past.

You posted the link ( the second one you posted) and there's another link to take you there - it's at the bottom of the page.

right hand corner - says something like " Next post: detox from"
Posted 5/10/2018 7:45 PM (GMT 0)
Ha!......I just browzed over them.

detox b6:
www.drorestesg.com/blog/detox-from-dangerous-supplements-and-b6-toxicity-

Interesting, when I first discovered my high b6:

1)I was not taking a multi with b6

2)Dr said B6 was pooling from cheap b6 in processed foods, cereals ect - as i was not on my clean diet in 2015.

3)He convinced me to take a methalated b6 to get b6 cell absorbtion activated again. This sounded nuts, but I did it. B6 was still high.

4)Then another Dr said to try an even better but lower B6 containing multi, I tested 3 different ways and was normal. I should test this again, as I still take the Pure Encapsulations multi.

So I normalized B6 levels while taking a high quality B6 and eliminating cheap B6.

Post Edited (astroman) : 5/10/2018 1:59:13 PM (GMT-6)

Posted 5/13/2018 7:03 PM (GMT 0)
Hi Girlie,

I was a patient of Dr. J and had elevated plasma B6 as well as elevated plasma ammonia when first tested. I was worried for a long time about these two things, and avoided B6 supplementation altogether.

It ends up there can easily be hemolysis (red blood cell bursting) of the sample - increasing the plasma B6 concentration (and ammonia) causing a falsely elevated test result. Your local labs will probably never be too meticulous with collection.

You very well might need b6 supplementation to alleviate some of your neurological symptoms (under supervision, of course).

From Quest diagnostics sample rejection criteria:

https://www.questdiagnostics.com/testcenter/BUOrderInfo.action?tc=926&labCode=SJC

"Reject Criteria
Hemolysis • Lipemia • Received room temperature • Received refrigerated"

You should really take another look into Pyroluria (profound deficiencies of B6 and Zinc) and Methylation status (Over and Under) to help with your symptoms. This has been far more effective for bringing my life to normalcy than treatment with the Jemsek Clinic.

In fact, sadly, looking back at what I have been through as a patient of the clinic, I see the situation which had transpired with Dr. Jemsek's legal battle inadvertently allowing him to fall into a role as a "messiah" for lyme disease patients. Given that he has already been "crucified" (unjustly), his clinic, treatment, and protocol failures are pretty much immune to further and future criticism. You see where this can get out of hand?
Posted 5/13/2018 7:19 PM (GMT 0)
Testing for Zinc and B6 Status:...............

/drjockers.com/pyroluria-common-unknown-disorder/

new to me....hmm
Posted 5/13/2018 11:33 PM (GMT 0)

astroman said...
Testing for Zinc and B6 Status:...............

/drjockers.com/pyroluria-common-unknown-disorder/

new to me....hmm

This is the HPU/KPU stuff Klinghardt talks about. I think more people were looking into this a few years back. Never hear anyone talk of it anymore.

www.publichealthalert.org/kpuhpu-a-major-piece-of-the-puzzle-in-overcoming-chronic-lyme-disease.html

Interestingly, when my first labs were done in Sep 2016 my zinc RBC levels were inexplicably high. On the labs I had done in April, they were low. I looked into this a while back and ordered some of the supplements to treat this but never really went anywhere with it. Now that my zinc is low, I guess it's one more thing I need to start treating (sigh).
Posted 5/14/2018 3:44 AM (GMT 0)
At this point I’m going to do a retest and see what it shows.

If it’s still high, then when I go to my next in person appt, I will get tested at the Quest lab (there’s one in the same bldg )
and take it from there.

It appears that the deficiency symptoms mimic the toxicity symptoms.

Nothing is ever simple with this dang diseaae....is it.

Trying to not get too worried... rabbit holes are calling me tho.

It’s always something!!! cry
Posted 5/14/2018 3:01 PM (GMT 0)
They were just talking about KPU again on the Lyme Summit. I've always thought this could be an issue for me due to my low Alkaline Phosphatase (it actually did normalize on rifampin which I thought was weird). The doctor on the summit - Todd something or other said he finds that KPU is turned on by parasites. And once you clear the parasite you no longer need to supplement the b6/zinc. Klinghardt says it is genetic and for life you need to supplement. I also did the zinc assay taste test where you hold liquid zinc in mouth and if you can't taste anything it usually means you are deficient. I am not sure how valid this test is. It tasted like water for all 5 of us in my family.

/www.amazon.com/Liquid-Assay-Premier-Research-Labs/dp/B007SOV1YA

My doctor here knows nothing about KPU and I had asked him to look into it but he didn't.
Posted 5/14/2018 9:31 PM (GMT 0)

k07 said...
They were just talking about KPU again on the Lyme Summit. I've always thought this could be an issue for me due to my low Alkaline Phosphatase (it actually did normalize on rifampin which I thought was weird). The doctor on the summit - Todd something or other said he finds that KPU is turned on by parasites. And once you clear the parasite you no longer need to supplement the b6/zinc. Klinghardt says it is genetic and for life you need to supplement. I also did the zinc assay taste test where you hold liquid zinc in mouth and if you can't taste anything it usually means you are deficient. I am not sure how valid this test is. It tasted like water for all 5 of us in my family.

/www.amazon.com/Liquid-Assay-Premier-Research-Labs/dp/B007SOV1YA

My doctor here knows nothing about KPU and I had asked him to look into it but he didn't.

The parasite theory sounds plausible and more likely than lifetime genetic thing to me - at least for us. I can't remember but it seems like the zinc issue is also related to heavy metals - is it not? If so, then the parasite thing definitely would fit.
Posted 5/14/2018 9:35 PM (GMT 0)
BTW, I took the supplements today - zinc, molybdenum, B6, P5P.
Posted 5/15/2018 12:55 AM (GMT 0)

WalkingbyFaith said...

k07 said...
They were just talking about KPU again on the Lyme Summit. I've always thought this could be an issue for me due to my low Alkaline Phosphatase (it actually did normalize on rifampin which I thought was weird). The doctor on the summit - Todd something or other said he finds that KPU is turned on by parasites. And once you clear the parasite you no longer need to supplement the b6/zinc. Klinghardt says it is genetic and for life you need to supplement. I also did the zinc assay taste test where you hold liquid zinc in mouth and if you can't taste anything it usually means you are deficient. I am not sure how valid this test is. It tasted like water for all 5 of us in my family.

/www.amazon.com/Liquid-Assay-Premier-Research-Labs/dp/B007SOV1YA

My doctor here knows nothing about KPU and I had asked him to look into it but he didn't.

The parasite theory sounds plausible and more likely than lifetime genetic thing to me - at least for us. I can't remember but it seems like the zinc issue is also related to heavy metals - is it not? If so, then the parasite thing definitely would fit.

I’m not sure about metals but does make sense. He said clinically after treating parasites all levels normalized and supplementation was no longer needed. I wish I would have taken more notes. He also mentioned strongylides and how they effected the liver. Said they are difficult to clear - he liked some of the pharma parasite drugs and mimosa pudica.
Posted 5/15/2018 1:14 AM (GMT 0)

WalkingbyFaith said...
BTW, I took the supplements today - zinc, molybdenum, B6, P5P.

The p5p is B6
Posted 5/15/2018 5:07 AM (GMT 0)
Lyme patient are bad absorbers. You're not absorbing or using the vitamins and it just stays in your system. You need to work on your absorption. I only know that's a problem, not how to solve it. I'm working on that myself. It's why herbs and supplements don't seem to work. You hear it all the time, people say things like, "Oh, I tried such and such and it didn't work for me." It's because they're not absorbing and utilizing properly. Most likely leaky gut is a major problem. Pretty much everyone with Lyme has leaky gut.

You should be working on your leaky gut and building your immune system at the same time.
Posted 5/15/2018 5:42 AM (GMT 0)

10LymeB said...
Lyme patient are bad absorbers. You're not absorbing or using the vitamins and it just stays in your system. You need to work on your absorption. I only know that's a problem, not how to solve it. I'm working on that myself. It's why herbs and supplements don't seem to work. You hear it all the time, people say things like, "Oh, I tried such and such and it didn't work for me." It's because they're not absorbing and utilizing properly. Most likely leaky gut is a major problem. Pretty much everyone with Lyme has leaky gut.

You should be working on your leaky gut and building your immune system at the same time.

Are you talking to me?

I don't know if everyone with lyme has leaky gut.
Aren't there symptoms associated with it (besides not absorbing nutrients) - like diarrhea...or other intestinal symptoms ?
I though if they weren't absorbed due to leaky gut...then they don't even get into the blood stream...?


I seem to be absorbing other nutrients.
I was able to raise my vitamin d and my Ferritin as well though supplementation.
Posted 8/18/2020 6:51 PM (GMT 0)
Bumped this older post up from interest here lately.
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