Neuropathy is fine at night but progresses as day goes on

So far my only lyme symptoms are tingling hands (emg diagnosed carpal tunnel and ulnar neuropathy both mild)
I have some neck pain as well.


If I wear the braces at night it seems fine. I do get weird sensations on my arms sometimes but lately they've been ok. My feet are the worst and get worse as day goes on. Foot pain and burning on outer edge of feet. Some toe numbness but it hasn't been bad lately. Is it normal for it to be ok when you wake up but then get progressively worse. Feet tingle but its random. Had emg on legs that came out normal.

I think physical therapy for your wrist injury is your solution here. I had a friend who had carpal tunnel, she's a freelance writer and typed all day. She recovered completely with physical therapy but she had to stop typing at all for almost an entire year to give her wrists a chance to heal.

This is why I feel like I need a good llmd. I am not surprised that u have carpal tunnel and ulnar neuropathy. From june 2017 to march 2018 I was boxing and kickboxing 4 times a week and I'm not easy on myself. When the rest of the weird symptoms started is when I questioned lyme. I had plantar fasciitis starting last june/July. It got progressively worse and I continued to aggravate it by not listening to my body. By December I could barely walk without shoes and my left foot was getting shooting pains. Went to podiatrist in Feb 2018 and he sent me to PT. After 5 or 6 sessions I noticed weord sensations going up my legs. March 9th was my last day of boxing because I got tingling up my arm through my shoulder. This is when I had my emg on my arms. Then a few days later the tingling escalated into my legs and numbness as well. I immediately suspected lyme and went into freak out mode. Changed my diet in a day and was incredibly anxious.

My western blog igm showed band 41 but not positive
My western blog igg was band 41 positive and band 66 and band 93 were faint. I question lyme because of band 93. Llmd first said it has nothing to do with lyme and said see a neurologist. Well I did that and my brain mri is clear. I did see a neurospinal doc who did the semg and all the areas of my back that were red were areas that could be causing this stuff. I do get some tingling in my face and ears clogged l, stiff neck but I have also been super stressed. I went from exercising and being me to it all crashing down in a week. Just seems weird that I have all these pinched nerves. Arm specialist did the tinsel tests and confirmed they are pinched. Foot doc suspects tarsal tunnel. I also know lyme mimics lots. Just seems odd that it all happened at once.

I guess this is why I'm confused and feel like a indeed a better llmd who doesnt just want to try some antibiotics and see what happens. That to me just seems crazy

Do yours come and go? My llmd explained you can have carpal tunnel and ulnar neuropathy and it can be aggravated by lyme

Nellie2929 said...
Do yours come and go? My llmd explained you can have carpal tunnel and ulnar neuropathy and it can be aggravated by lyme

Yes. My symptoms came and went and new ones emerged from 2009 to 2015. In 2015, I got sick with bronchitis and my immune system crashed. I've never recovered since. I was also being exposed to mold at home and at work. The mold exposure contributed to my demise.

Symptoms of Lyme and coinfections often come and go until something happens that pushes the immune system off a cliff, like surgery, intense stress (emotional, mental, or physical), an acute illness, grief, divorce, mold or other toxin exposure, etc.

I had carpal tunnel like symptoms in 2012. I also started having strange bone pain in my feet. When I would get up to walk, it would feel like the bones in my entire feet were going to break and collapse. If I kept walking it would wear off. It went away after a couple of weeks and came back later but felt different. My ankles felt weak and I avoided heels and unstable shoes. The bottoms of my feet would feel sore, like I'd been walking on rocks. Those foot symptoms came and went for years until they came and stayed.

This is why I question lyme and other coinfections. I definitely had alot going on and was super stressed, not sleeping well, drinking too much wine and not eating well. My vitamin d was deficient (better now) and it seems like my body crashed. I will research the bartonella treatments.