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Posted 4/28/2018 2:58 AM (GMT 0)
Hi friends,

So I've been off the site for years due to an amazing recovery and loving life raising our now almost 3 year ago (was sick and completely recovered by end of 2014). A month ago, I relapsed. Within the last month, most of my symptoms have disappeared (with abx and herbal treatment) yet I'm experiencing major emotional trauma and am looking for anyones's experience of healing and being well after a relapse and timeframe etc.. I'm curious if symptoms disappearing so quickly is a good sign? I'm also trying to get an idea of other's experiences of relapsing.

I'm kind of hinting for super positive remarks. hahahah Needing some love and hope here. Lyme just sucks.

Thank you so much for reading this...
Yogi
Posted 4/28/2018 8:59 AM (GMT 0)
hi and welcome back.

speaking from experience i do not think you are over yet with this relapse. this disease can be very treacherous. It goes away then it returns in a few months. Without any medication. What you experience now may very well be a normal disease waxing and waning. For countless times i thought to myself "i am better, this is over" only to restart having symptoms a month later...

so no i don't think you nailed it just yet. keep on treating please... just to stay on the safe side of things...
Posted 4/28/2018 9:41 AM (GMT 0)
Hi Yogi, sorry you had a relapse but it sure is good that it seems to be cleared up.

I understand the emotional trauma, it can hit hard when you least expect it.

I find that many people dont get how devastating having and battling these infections can be.

Try to think of the good things that have come from all of this..the big ones being truth and knowledge about Lyme and co infections.

Remember to detox and keep your stress levels down.

Fight back by building your immune system and consider taking maintenance herbals to keep these infections in check so to say.

Take care and I wish you continued success and healing
Posted 4/28/2018 11:49 AM (GMT 0)
Emotional trauma could be a sign of babesia or bartonella. Be vigilant and watch for other signs.
Posted 4/28/2018 1:47 PM (GMT 0)
I relapsed over a year ago. I also found that re-treating was a lot faster than the first go around. I think that’s a good sign, that’s what I was told. . .
Posted 4/29/2018 10:32 PM (GMT 0)
Hi Yogi!

So sorry you relapsed but the good news is that you got better before and you will get better again! Whatever worked for you in the past will work for you again. And look at all the knowledge you gained when you were sick the first time. You know what they say about knowledge smile

Don't let this get you down okay? Stay positive and please keep us updated.

Warmest,
Denise
Posted 4/29/2018 11:38 PM (GMT 0)
Denise, i love you! Thank you so much for saying this. I really appreciate you saying this..... I can only deal with uber positivity right now! How are you doing??
Posted 4/30/2018 12:05 AM (GMT 0)
Awww shucks Yogi, you are too sweet! I meant every word from the bottom of my heart. Keep staying positive! smile

I'm doing good considering I moved my elderly Mom from Long Island to Vermont 2 years ago (after selling her house) to take care of her, yes, I am her full time caregiver. She used to live with my older brother who was abusing her emotionally so I got her away from him.

Mom has Alzheimer's / dementia but it hasn't progressed to the late stages yet. I feel lucky that she is not aggressive but very sweet. We sing songs together (she can sing, my voice makes the mirrors crack!).. Thus I am mindful of any stress as stress could cause me to relapse. I did find a senior center where I drop my Mom off to give me breaks.

That's my life right now..
Hugs to you,
Denise
Posted 4/30/2018 12:20 AM (GMT 0)
Hi Yogi,
Gosh I'm sorry to hear you've relapsed but it's great you noticed and restarted treatment immediately and have had good results already. I bet that will cut down on recovery time plus you're probably not dealing with nearly the infection load as when you were first diagnosed - all great things. I agree to keep an eye on symptoms for babs/bart just in case so you can hit them hard too. Our LLNP says you have to treat several months after all symptoms are gone to really get rid of it. So even if you're feeling mostly normal again, you might want to hit it a bit longer and do some daily herbal maintenance for awhile. You will get through this!

Best wishes!
Posted 4/30/2018 3:42 AM (GMT 0)
Sorry to hear you relapsed... but you beat it down once - you’ll do it again!

Just remember to continue treatment for several weeks after you’re symptoms subside.

You got this!
Posted 4/30/2018 4:15 AM (GMT 0)
Hi Yogi. After my daughter finished treatment, (8 mos oral ab and herbs, 4 mos ab infusion) I asked our LLMD about relapse and what to do if symptoms start to creep back. He said to call hm immediately, resume meds, and that in his experience it is beaten back quickly. Nothing like the first time around. So, what you describe sounds a lot like what he's seen in his LONG experience.
Posted 4/30/2018 3:48 PM (GMT 0)
Hi Yogi - I am so sorry to hear about your relapse, but also glad to hear that things are turning around. I have not logged in for ages (been doing quite well for several years, thank God) - but I am now also experiencing what seems to be a relapse. It started last week. All kinds of weird symptoms I had forgotten about are back. I have been kinda freaked out and worried that I will totally crash (was REALLY sick in 2012), but reading all your posts has encouraged me to stay calm, positive - and just deal with this! I emailed my doc. this morning . . .

Kind of blaming myself for current situation: I think I got careless with lifestyle (too much stress, coffee, sugar, wine), thinking my body could handle it all, after all these years . . .

Now I am humbled again, and reminded I need to dial it all down and make some changes in my life.

thanks, again
Posted 5/22/2018 3:13 AM (GMT 0)
Thank you all for the positive responses. Denise, hugs and it warms my heart you're taking care of your mama. Yes, keep the stress away, I'm sure that's what go me. This is so difficult to have to face Lyme again, it just brings me to my knees in sadness.

Hoping we all get better really soon.
xoxoxox
Posted 5/22/2018 6:38 AM (GMT 0)
Best bet with life or any other chronic illness is ride the wave of the ups and downs that come along with it. You will beat this again because you where strong enough to beat it before! Stay strong and keep positive people around you!! <3
Posted 5/22/2018 3:18 PM (GMT 0)
livingforhope- thank you🙏🏻
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