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Posted 6/24/2018 11:32 AM (GMT 0)
My Lyme symptoms hit hard in January, but I didn't have any real pain to speak of. I was a runner and hiker. Over the past year, I developed a little pinch in my hip, but I could function normally, as far as walking was concerned. As time progressed, and after I started my Lyme treatment (mid March), my hip started causing some trouble. Some times, my stride was limited, I walk with a limp to relieve some pain or I could barely walk from room to room. Other days/hours, I have little to no pain. The past few weeks, it's been acting up more often. Through this time, I've been taking Amoxicillin, Rifampin, Lumbrokinase, Banderol and Samento.

My PCP (went for my annual physical) said it was arthritis. I'm pretty sure it's Lyme arthritis since it came on stronger as I was seeking a lyme diagnosis and after I started treatment.

My question...Could some of you share your successes and/or failures regarding Lyme arthritis? I'm very hopeful this pain will reduce and I will be able to return to my regular activities. yeah

Thank you!
Posted 6/24/2018 4:48 PM (GMT 0)
I don’t have a diagnosis of Lyme arthritis - but I did get joint pain as lyme symptoms progressed.

Treatment has resolved it... except it does still reappear now and then but it’s very mild when it does.

I had it in my elbows, fingers, wrists, knees, shoulders

When I went on bart treatment - my finger joints flared badly.
I would wake up during the night and they would be clenched tight and so stiff and sore - I’d have to pry them open.

Are you still on Rifampin for Bart? Hopefully that resolves your arthritis too.
Posted 6/24/2018 6:16 PM (GMT 0)
Rocephin and bvt stopped my extreme arthritis ...treat bartonella and mycoplasma. ..
Posted 6/24/2018 8:28 PM (GMT 0)
Cold laser therapy really helped my knee- that was the only place I had joint pain.
Posted 6/24/2018 11:09 PM (GMT 0)

Girlie said...
I don’t have a diagnosis of Lyme arthritis - but I did get joint pain as lyme symptoms progressed.

Treatment has resolved it... except it does still reappear now and then but it’s very mild when it does.

I had it in my elbows, fingers, wrists, knees, shoulders

When I went on bart treatment - my finger joints flared badly.
I would wake up during the night and they would be clenched tight and so stiff and sore - I’d have to pry them open.

Are you still on Rifampin for Bart? Hopefully that resolves your arthritis too.

Hi Girlie,

Yes, I'm still taking the Rifampin. My hip pain has increased while I've been on it. I also had one finger that was stiff and sore for two days. It's fine now. I wondered if this pain could be some form of Herxing.
I don't know. I have an appointment with my LLMD tomorrow.
Posted 6/24/2018 11:14 PM (GMT 0)

Notime4lyme said...
Cold laser therapy really helped my knee- that was the only place I had joint pain.

My PCP wants to do a few reiki sessions on the "arthritis" in my hip, but it will be a heat treatment, I guess. She didn't sound like she believed it was from the Lyme or bartonella. It wasn't there, and then it showed up with my symptoms. Sounds like it's related to Lyme to me.
Posted 6/24/2018 11:15 PM (GMT 0)

bluelyme said...
Rocephin and bvt stopped my extreme arthritis ...treat bartonella and mycoplasma. ..

Hi Bluelyme,

Can you tell me what bvt is?
Posted 6/25/2018 12:56 AM (GMT 0)
BVT is bee venom therapy

You sting yourself with bees - there are people getting good results including bluelyme.


I believe it all started with a lady who had Lyme disease and was not doing well - she went home (to die?) and walked into a beehive and was sting many times.

She went into remission.

Her name: Ellie Lobel

Hopefully bluelyme will correct and add to my explanation.
Posted 6/25/2018 2:24 AM (GMT 0)
Plaquenil brought my joint swelling and pain under control.
Posted 6/25/2018 3:39 AM (GMT 0)

acarined said...
Plaquenil brought my joint swelling and pain under control.

Are you off the Plaquenil now.. and if so for how long?
Posted 6/25/2018 4:02 PM (GMT 0)

acarined said...
Plaquenil brought my joint swelling and pain under control.

I second that.. it made a big difference to me
Posted 6/25/2018 6:52 PM (GMT 0)
Thank you for sharing your info. ATy doc changed my meds up.

I was taking: 3000mg Amox, 300mg Rifampin, 13 drops Samento 2X/day, 13 drops Banderol 2X/day and 2 Lumbrokinase at bedtime

As of today, I dropped the Amox, and continue with everything else, and I'm adding...500mg Biaxin 2Xday, 200mg Palaquenil 2X/day and 5ml Tumeric XL (Curumin) 2X/day - (continuing to increase Samento and Banderol by 1 drop, each week, until I hit 20 drops 2X/day)

Thank heavens I got a super duper pill caddy to keep me organized.

Thanks again!
Posted 6/25/2018 7:18 PM (GMT 0)

Spanish said...

acarined said...
Plaquenil brought my joint swelling and pain under control.

I second that.. it made a big difference to me

But is it just symptom relief (ie anti-inflammatory) - and will it last when you discontinue?
Posted 6/25/2018 11:24 PM (GMT 0)

Girlie said...
BVT is bee venom therapy

You sting yourself with bees - there are people getting good results including bluelyme.


I believe it all started with a lady who had Lyme disease and was not doing well - she went home (to die?) and walked into a beehive and was sting many times.

She went into remission.

Her name: Ellie Lobel

Hopefully bluelyme will correct and add to my explanation.

thanks for fielding it girlie ...bvt was founded thousands of years ago , i study an ancient Japanese acupuncture using stingers called hoshindo .
Alexander the great cure his artritis with bee venom. it was rumured Cleopatra made the first sex toy with a gourd filled with bees ...dr brad weeks and charles mraz formed the American apitherapy society to show how much relief and life it brought to ms patients in the 80s i believe . pat wagner and other including lobel and myself have done much to promote the power of the bees(they die we die(pollination) ) ... eva sapi recently proved we are sane and it is effective !

4x more anti-inflammatory than cortisone shots , regulate th1 th2 autoimmune , it has dopamine for mood and kills borrelia biofilm 3x better than 3 abx put together ....

Post Edited (bluelyme) : 6/25/2018 5:27:42 PM (GMT-6)

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