I'm desesperate. Could I have your advices please?

Hey Alxander - I have been out of town for the day and just reading and posting sporadically from my phone.

I don’t have access to my files from my phone - and am home now - will go thru my emails a bit later and will get back to you tonight or tomorrow morning.
I am on west coast time so even if I get back to you tonite - it’s likeky you will be Zzzzz

The Dude Abides said...
Hi, Alxander:

You're welcome, friend. Your intense concern is understandable and you're definitely not crazy.

By the way, I just did a quick Google search for LLMDs and found one about an hour directly south of you in Plattsburgh, New York.

It's a Doctor who had Lyme Disease herself and she's been helping patients with the condition since 2003. She's a member of ILADS and has trained with Dr. Richard I. Horowitz.

Now, I can't list her name, as she's not one of the high-profile LLMDs like Dr. Horowitz, Dr. Jemsek, or Dr. Klinghardt. But, if you use the information I provided, you should be able to find her quite easily.

I did send him contact info for the one in Plattsburgh.
Also info on one in Canada that may be able to help him.


Thank you Dude!

Thanks all for your help.
I woke up today with bad pain from joint (knees and fingers)... and I feel like pressure in my eyes. Moral is low

I've tried contacting the Plattsburgh doctor mentioned above. Hopefully I have the chance to see her before it's too late for me. I've also found a lyme specialist in alberta that could see me in September. But that would cost me around 2000$ total for flight/consultation/german bloodwork test.
I'm tempted to take an appointment.. since I feel I,ve totally lost control on my life.

I will try to contact Dr Davidson tomorrow.

Email the doctor in Plattsburgh. They responded to me within 24 hours with their new patient information.

How long have you been on the antibiotics? I'd think your symptoms should be easing up a bit not getting worse if its lyme since you caught it pretty early, unless you are Herxing (I don't know much about herxes or if this is even possible with acute cases). I also have an acute case and responded fairly quickly my first round of abx. Unfortunately I relapsed after finishing them. I'm back on them again for about a week now. I haven't responded as quickly with this round (although I wasn't as bad off as when I started the first round).

Have you got your results back from the test? In Ontario I got my results back in about 1.5 weeks.

Is your Doctor considering other diagnosis since you are not responding to the ABX? Its possible its not lyme and that's why you aren't responding to the abx?

I see there is a Dr Davidson -in Alberta- a chiropractor who wrote a book - and does treat Lyme patients holistically - but I really don’t know if he has treated many patients. Is that the dr you’re referring to?

I hadn’t heard of him and I don’t know anyone who has seen him.

(Not saying he can’t help you - but do some research first - as I do know people in Alberta are going across the border and/or putting their name on Dr H’s waitlist.

Girlie said...
Dude - why do you suggest ordering through the Hansa centre? Better price?

Hey, Girlie:

My suggestion was based on my experience with two factors:

1. The terrible Jernigan Nutraceuticals website.

I've tried using various browsers on two different computers and the page that lists all their formulas keeps locking-up. I e-mailed Dr. Sara Jernigan and she stated it's a known issue and that her web developers are working on it. But, it's been a problem for a while, by her own admission.

2. Talking to Dr. Sara Jernigan, via telephone.

I paid for a consultation with her, and, while she's a nice lady, I felt zero confidence in her or her abilities. Now, my dilemma is that I'd like to expand on that a bit, because I know my comments will likely invoke curiosity. On the other hand, my experience and opinions are my own, so others may have a different experience. Also, I don't want to engage in character assassination.

Again, she was a nice lady. So, if one wanted to call her and order products via telephone, that would likely be a better option, based on my experience with #1 and #2. As for consulting with her, though, I personally wouldn't do it again nor recommend it.

It may be worth mentioning that Dr. Sara Jernigan is the ex-wife of Dr. David Jernigan. Sara owns/operates the Jernigan Nutraceuticals business/website, while David owns/operates the Hansa Center. I learned this from another forum member who has more insights into the matter.

Dude

good evening friends,
I’m taking a 3 cup epsum salt bath 98F as recommended here as we speak, we’ll see how that feel ;-)

I was indeed refering to the doctor that dude was talking about.
The idea is for me to find someone who have good knowledge of lyme and co infection asap to prevent further deterioration akd damage to my system. Until I can find a way the doctor in Plattsburg or one I found in NY (last name start with a H).

Like Torontolyme mentionned, I have a fear of habing the wrong treatment and/or having a co-infection that is shielding lyme from doxy as we speak.
I’m finishing my 6th day of antibiotic today.
Joint pain were through the roof. Maybe becauseof my mild workout yesterday.. but still. Very concerning...

First, 6 days is a very short time. You will get better with the right treatments. What is the right treatment? Well, that's a loaded question. For your issue, antibiotics are good to start, but botanicals over the long haul usually are much more effective in my opinion. The reason why I say antibiotic for you first is because I am concerned about a possible RMSF issue. I would always treat that infection with antibiotics. The rest of them can be treated can be treated with botanicals, supplements, etc. If it's a new infection, I would treat with antibiotics, as well as botanicals and supplementation.

The important thing is to treat, don't worry about what you exactly have. That's why I find the botanicals and supplementation so important because they are effective against so many different infections, including Lyme diseaes, Co-infections, Candida, Viruses, Parasites, etc. And, the pathogens don't adapt to them like they can with antibiotics. Antibiotics are limited and can cause many other issues. Don't get me wrong, use the antibiotics are first for your issue, but then me personally, I would switch to an all natural approach.

As stated earlier, find yourself a good Naturopathic Physician, who is well experienced in these kinds of infections. They will fill you in on the other very important, if not the most important treatment, such as diet, detox, natural anti-inflammatory supplements, etc.

Lastly, relax. Treating these infections takes time. It may seem like forever before you start feeling better, but usually it really isn't. And, you will get better with the proper treatment. Read some of my Reply posts that I wrote tonight for more information. Additionally, these symptoms can be crazy, so if it makes you feel better, find yourself good doctors that can check you periodically (monthly) so that it eases your mind (endocrinologist for hormone issues, cardiologist for heart issues, neurologist of neurological issues, etc.). Most don't understand Lyme disease Co-infections, so just use them for ruling out any possible other issues and to ease your mind.

Personal note, and I'm just telling you to ease your mind, not to make you more nervous. If what I'm about to say makes you more nervous, then STOP READING IT, AND STOP READING about ALL THESE INFECTIONS ONLINE AS WELL. It will all drive you crazy if you don't take a break. Most people in the beginning of treatment develop what almost all medical school students develop during their first year, hypochondriac syndrome (where you think you have every disease).
Now, as for what happened to me. This is very abbreviated, and happened over the course of a year. I developed Lyme disease and Bartonella, which are said to have the worst symptoms, about a year ago. I went through all the crazy symptoms, including air hunger (the worst), continuing heart palpitations and other weird feelings, acid reflux from the Bart. (another terrible symptom), visual disturbances, shooting head pain at the top of my head, anxiety (never had this before, but is a huge symptom with Bart.), weird electicity like feeling in my feet, foot pain when I woke up in the morning, and so many other things. The anxiety made everything about 20 times worse. In fact, these infections find all your weaknesses, especially ones that you don't even know that you have, and make them like 20 times worse). And it took me a while before I realized that I was actually Herxing, and not having an allergic reaction. If you feel you are having an allergic reaction, find a good allergist. Have him/her test you if that makes you feel better. I did it. I even tested all the botanicals for allergies before I started on them. Did it with antibiotics too but had a really bad time with antibiotics and decided that I needed to treat alternatively. That's when I started to get better.

Consider looking at Steven Buhner's Protocols for Lyme and Co-infections, as well as Cowden's Protocol, and/or Dr. Zhang's Protocol. They are all good, but I personally find Buhner's and Zhang's suppements to be more specific and powerful. Though, Dr. Cowden does have some good individual supplements, such as Burbur Pinella for liver, lymphatics, and Central Nervous System detox.

By the way, I don't usually look at my email, just in case you try to contact me.

Best wishes, and God bless!

Justin, reading your post after a rough day like I had turned down my anxiety level by a lot.
I think your plan is something I’d be interested in.
Right now I’ll do all I can to complete my 2x200mg doxy for the wholr 4 weeks (and I’ll try to get it extended by another 4 weeks) to at least say i gave the ILAD protocole a fair chance.
After that, I might go thr herbal way because quite frankly, I think that doxy is giving me a fair share of secondary effect.
That being said, my current challenge is to find professional help to help.
A naturopath will most likely be easier to get than a MD, so i’ll probably try to see one assp.
I’ll keep working hard in my quest for a good and knowledgable LLMD. I’m trying to get an appointmrnt with a reputable lady in plattsburgh and a reputable man in new-york (dr H.).

In short, I’m just desesperate to try to stop symptoms ton’ get worse, and end up with chronic lyme disease. Hopefully I’ll win the race agaisnt the clock.

Sir, thank you again so much, for replying to me.
You, girlie and dude are real guardian angels on here.

Oh no, I didn’t know she was a ND!
Especially after her secretary told le about all those expensive bloodwork and whatnot.. I was expecting her to be a LLMD.
Thanks for the heads-up!