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Silent Foot twitching - Is this Bart?

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Posted 7/12/2018 12:10 PM (GMT 0)
Hey All, I have noticed that the soles of my feet continuosly twitch. Affects both feet but mainly the left.
I dont feel them, not at all, I only see them optically. Now I have tested positive for Bartonella but have no foot pain (ie the classic foot burning is absent). The left foot does feel a bit "thin" when im walking, as if there is less padding then the right. But this is only some days, other days I have no issue (confusing I know :/ )
What Im looking to gauge here is the number of people who have similar silent twitches on the soles of the feet and for how long this has been going on for, or even if it is typical for Bartonella at all?
Posted 7/12/2018 1:10 PM (GMT 0)
I believe twitching is a sign of TBD's. All of the LLMD sypmtom questionairre's seem to contain a line or two about twitching. It is also discussed here regularly. Not sure how much twitching one would have to have before its considered the sign of a real problem.

Maybe if someone was only twitching for a week or two then it stopped probably not a sign of a major issue.

For me twitching was progressively getting worse over the course of 2 years. The twitching would move around my body. My feet were hot spots for twitching commonly along with face, eyelid, thigh, glute, tongue, hand/finger, etc.

I have never heard the term "silent twitch". Does that mean like you say you don't feel it? If so, consider yourself lucky because when you feel them, it can break your focus for whatever you are trying to do.

There was another member saying he couldn't feel them yesterday. I wonder how do you know how much it is twitching if you dont feel it?

Post Edited (Missouri) : 7/12/2018 7:28:19 AM (GMT-6)

Posted 7/12/2018 1:24 PM (GMT 0)
Hey Missouri, I should of maybe elaborated more. My twitching is extreme and all over (toungue is the most disturbing, followed by the muscles), has been for about a year now. I have the usual rythmic type of twitching, these I feel when they happen and they tend to stick around for a few days. Then I have a stronger rumbling kind of twitch, normally affecting larger muscle groups (whole thigh as an example) and is usually a one off, though can sometimes persist for a few hours.
The "silent" twitches are exactly that, I dont feel them, I just see them when at rest and I observe the feet. Everytime I check they are there, doesnt seem to tie up to anything specific (tiredness, state of mind etc), so examples of when I notice them are when I am in the bath or if I sit crosslegged during meditation etc I see them. So to answer your last question, I cant say definitively that they happen constantly as I dont feel them, but, regardless of my condition, everytime I check they are there so i draw that conclusion.
Posted 7/12/2018 1:42 PM (GMT 0)
Your twitching sounds a lot like mine used to be before I had treatment. Yes, the tongue switching is very disconcerting. Makes you feel scared that you are about to have a seizure doesn't it?

Do you have any idea how you might have contracted Bartonella? Did you have a tickbite? You may/probably have more than just Bartonella.

I am the guy to talk to about twitching. LOL. I believe I have read almost everything out there about what some doctors call BFS (Benign Fasiculation Syndrome). Anyways my point- there was formerly a BFS support group. This group seemed to have about half the people truly had a benign condition that involved twitching. They would ignore the twitching as best they could and try to live life. The other half of people (like me) had much more than a benign condition. The twitching came along with cramping fatigue, vision problems, tingling burning sensations, anxiety, etc.

I think there is a strong chance that all of the people having more than just twitching alone have a chronic infection of some kind.

You have confirmed Bartonella.

My "BFS" problems were preceded by a tick bite. I am pretty sure I have Bartonella of some kind and a Borrelia of some kind. Almost all my symptoms as well as twitching went away with antibiotics.

Are you doing any treatment?
Posted 7/12/2018 2:10 PM (GMT 0)
Yea the siezure fear with the toungue twitching is a nightmare! Especially when it really flares up!

So I assume I got it decades ago as a child. We had lots of cats and there resident fleas (the two species I have are B Henselea and B Quintana). Yes on the BFS, my old Neuro mentioned that, but like you, the other symptoms did not tie up. I would say your onto something there with that linkage!

I had a rough run over the last few years. Had myocarditis in 2013 (with no cause found) and last year I had an unexplained stroke on my spinal chord (which I assume to be due to an inflammatory process like transverse myelitis). Bartonella has been linked to both of the above as potential causative factors in various case studies so my GP is convinced it was the root cause. The majority of the symptoms progessively worsened after the stroke, and after hearing the usual "its anxiety" or "to much stress" answers I started digging for myself. Thats when I came across Lyme and started pushing for the testing.

My GP has not ruled out lyme based on the testing, his strategy is to try knock out the Bart and post-treatment we can start digging deeper if there is no full remission. Currently im Ciprofloxacin (yep, I know its dangerous) Doc said that if it is the Bart behind the Myocarditis and the stroke, then we need to get it under control fast (Hence the Cipro)


My doc is not ilads trained, but is extremely open minded (which seems to be a rare trait in the medical world!!) when it comes to infections.
Now interestingly, all of the cognitive symptoms (vertigo, light/sound sensitivity, migraines, memory holes and, the most scary, complete disorientation) have all but dissappeared smile The twitching also subsided initially in a big way! But, after a few days it came back with force, and now its more widespread then it was before.
Posted 7/12/2018 5:38 PM (GMT 0)

EdTheRed said...
Hey All, I have noticed that the soles of my feet continuosly twitch. Affects both feet but mainly the left.
I dont feel them, not at all, I only see them optically. Now I have tested positive for Bartonella but have no foot pain (ie the classic foot burning is absent). The left foot does feel a bit "thin" when im walking, as if there is less padding then the right. But this is only some days, other days I have no issue (confusing I know :/ )
What Im looking to gauge here is the number of people who have similar silent twitches on the soles of the feet and for how long this has been going on for, or even if it is typical for Bartonella at all?

That's odd that they are twitching but you can't feel it...

I have foot pain from bartonella, but it's not burning...they are just sore when I get up in the morning and start walking.

I don't/didn't have any twitching on my feet...had it in many places though.
Posted 7/12/2018 6:52 PM (GMT 0)
You are extremely lucky to find a doctor who will even consider long standing infections as a root cause. I see a lot of doctors claim that chronic infections are not possible. I also read a lot of crap (mostly IDSA) that claims Bartonella is harmless. I do not believe that is always the case.

Your symptoms sound so much like mine.

For what it's worth - I can tell you which meds knocked out my symptoms and which ones didn't. Ceftin, Minocycline, clindamycin, flagyl all effetively reduced or eliminated my twitching as well as other symptoms. Zithromax and doxycycline did not do anything and twitching started to come back while on those.
Posted 7/12/2018 7:02 PM (GMT 0)

Missouri said...
You are extremely lucky to find a doctor who will even consider long standing infections as a root cause. I see a lot of doctors claim that chronic infections are not possible. I also read a lot of crap (mostly IDSA) that claims Bartonella is harmless. I do not believe that is always the case.

Your symptoms sound so much like mine.

For what it's worth - I can tell you which meds knocked out my symptoms and which ones didn't. Ceftin, Minocycline, clindamycin, flagyl all effetively reduced or eliminated my twitching as well as other symptoms. Zithromax and doxycycline did not do anything and twitching started to come back while on those.

Bartonella is taken care of by our immune system unless it’s compromised - I believe that’s the case for myself - healthy throughout younger years except for a few anomalies that I now think could have been bart all along - then a few years ago, my lowered immune system couldn’t handle it anymore.

I’m also fortunate that my Dr has accepted my diagnosis even tho our government health care test was negative.
Here I am 4 years later - and she still hasnt questioned it - and gives me lab reqs for blood work while on abx.

Rifampin and mino combo as well as Biaxin/Rifampin have eliminated many of my symptoms.
Posted 7/12/2018 7:03 PM (GMT 0)
Missouri - was Clindamycin hard to take? Side effects?
And what did you take it with?
Posted 7/12/2018 8:47 PM (GMT 0)
Not hard at all. Took it alongside Quinine. Took each dose down with about 6oz water. Not much food around the dose (I don't eat breakfast). I have not had trouble with any antimicrobials except Rifampin because of the CP 450 enzymes. I am lucky, I guess my body detoxes well enough on its own. On top of that my GI actually improves when on antibiotics.

I know Clindamycin is supposed to be a tough one on the GI right?
Posted 7/12/2018 9:11 PM (GMT 0)

Missouri said...
Not hard at all. Took it alongside Quinine. Took each dose down with about 6oz water. Not much food around the dose (I don't eat breakfast). I have not had trouble with any antimicrobials except Rifampin because of the CP 450 enzymes. I am lucky, I guess my body detoxes well enough on its own. On top of that my GI actually improves when on antibiotics.

I know Clindamycin is supposed to be a tough one on the GI right?

Ive just read that it's a difficult one to take...not sure why though.

Also the Quinine I've heard that is also a hard one to take...

I think I read it on LLMD MR TreatLyme online treatment book.
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