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Who had real success with Buhner?

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Posted 7/12/2018 6:23 PM (GMT 0)
I'm a bit dejected at the moment and wanted to ask if someone had made real progress with Buhner alone (no other therapy) for any chronic infection (I mean cured or substantial improvement).

What herbs did you take and how long did it take for first markable improvements?

I have chronic Chlamydia pneumoniae infection, maybe Bartonella and most probably Lyme disease.
Posted 7/12/2018 6:44 PM (GMT 0)
Not cured, but substantial improvement. Knotweed and CSA (cryptolepis, sida, alchornea) can keep me at 90% health. And by that, I mean either alone. As soon as I stop I relapse though. Getting that last 10% is a pain. But I went from not being able to wear socks or go to class because my neuropathy was so bad to climbing and snorkeling in the galapagos and feeling energized enough to apply to med school.

Improvements were instantaneous. But I did herx a LOT which set the healing time back while I tried to find the right dose to make it manageable
Posted 7/12/2018 7:00 PM (GMT 0)
Ok, thanks. Could you tell me which dosages you take and where you buy it from (guess there are quality differences)?

Which diagnoses do you have (guess Babesia)?

Are you working to get a MD degree or what does med school mean?
Posted 7/12/2018 7:36 PM (GMT 0)
MD degree. And no clear diagnosis. I had a positive Lyme ELISA but negative western blot. All my symptoms are pretty consistent with Lyme but who can say for sure. When i first started i was herxing on 1/8tsp of knotweed and a single drop of CSA. But now i tolerate 4tsp and 30 drops respectively. I use them interchangeably though, not together. I use CSA when im on the fly or haven't eaten because knotweed makes me nauseous without food. But most of the time knotweed is sufficient. The only symptoms i have remaining are PVC's which are annoying as crap and very very very minor leg achiness. I used to have horrendous peripheral neuropathy, myalgia, and chest pains.
Posted 7/12/2018 8:49 PM (GMT 0)
I also herxed very bad on the knotweed. It's taken about 3-4 months to work up to 1 tsp 3x daily. But, I'm not house bound anymore and the tremors are gone. I thought I had Parkinsons last year and saw a neurologist who suggested I get tested for lyme.
I'm planning on staying on the Buhler protocol for a year...I'm allergic to Doxy.
Posted 7/12/2018 9:47 PM (GMT 0)
Psiliciraptor- how long have you been on his protocol? Do you take any supps that break biofilm?
Posted 7/12/2018 11:17 PM (GMT 0)
I've been on Buhners for a little over a year but on/off experimenting with it for two years. I've actually got some serrapeptase in the mail. That will be my first biofilm specific treatment. Not really sure what else would work though. The last 10% of this disease has been really frustrating. Oddly I've stopped herxing with new treatments but I still relapse when I stop. So I suspect I'm mostly dealing with persisters/biofilm now.
Posted 7/12/2018 11:44 PM (GMT 0)
I’ve been doing the Buhner protocol for about a year now and I feel I’m about 75% better. But I’m like psiliciraptor, I don’t have a clear diagnosis. My Elisa was equivocal and my western blot was negative but I have/had most of the symptoms of Lyme plus history of a tick bite before getting sick. I have tested positive for Bartonella.

My symptoms have not completely disappeared but all have reduced a lot. I used to have many heart palpitations a day and I rarely have any now. I used to be very weak and dizzy but I’m now able to exercise daily and have much more energy. I had tremors constantly but now only once in awhile. Numbness, tingling, buzzing, tinnitus, joint pain, brain fog....all have reduced significantly.

And no, I’ve had no other therapy of any kind. I hope you can find some healing soon. It’s hard to be patient, I know. I still feel frustrated sometimes but then think about how far I’ve come.

Post Edited (Manzanita2) : 7/12/2018 7:27:44 PM (GMT-6)

Posted 7/13/2018 12:59 AM (GMT 0)
Psiliciraptor- im praying for you. Please, once you get to 100 without relapses, inform everyonesmile
Posted 7/13/2018 1:02 AM (GMT 0)
I was thinking that maybe biofilms are reason many treatments fail. I mean, we go through all this hexing, so obviously we are killing off these bacterias! So we do people still relapse? A lot of online research has suggested biofilms even for bartonella.
Posted 7/13/2018 1:26 AM (GMT 0)
This is an extremely inspiring blog of a woman who overcame 20 years of sickness with Buhner's protocols, eating healthy, and treating parasites naturally.

realfoodrebel.com/success-with-buhners-protocol-for-lyme/
Posted 7/13/2018 1:41 AM (GMT 0)

Psilociraptor said...
MD degree. And no clear diagnosis. I had a positive Lyme ELISA but negative western blot. All my symptoms are pretty consistent with Lyme but who can say for sure. When i first started i was herxing on 1/8tsp of knotweed and a single drop of CSA. But now i tolerate 4tsp and 30 drops respectively. I use them interchangeably though, not together. I use CSA when im on the fly or haven't eaten because knotweed makes me nauseous without food. But most of the time knotweed is sufficient. The only symptoms i have remaining are PVC's which are annoying as crap and very very very minor leg achiness. I used to have horrendous peripheral neuropathy, myalgia, and chest pains.

Psilo,

This is very encouraging to me. A few more questions.

How fast did you increase doses?
What was herxing like - an increase in normal symptoms, new symtoms?
Did you keep increasing doses while herxing?
Did you have long periods of extended herxing?

Psilo & Manzanita,

Did you follow a special diet along with Buhner's protocols?
Posted 7/13/2018 2:29 AM (GMT 0)
Initially I had to increase doses very slowly. Most of my herx symptoms were just major exaccerbations of my normal symptoms. But there was one that was a pain in my liver area. It was so sever I thought I was having liver failure. I never felt it before so I kind of freaked out that I was hurting myself and didn't think it was a herx. But bloodwork never showed a problem so I just kept lowering the dose until I could tolerate it. Once I got past that symptom I was able to escalate the dose much more quickly. I figure some organs are probably infected but below the threshold that would cause symptoms. Until you start herxing. But who can say. I never increased the dose while herxing. I made sure that I got over it or at least close before I increased. The whole reason for starting over at very small doses was because taking too much felt dangerously painful. So I just took enough to give me a little pain, then waited it out. Then increased. This worked great with knotweed. With CSA though I think it made them dormant because I herxed bad on 3 drops, a little on 6 drops, then nothing on 30 drops. But when I started on 30 drops I herxed really hard. So titrating didn't work as well for that one. It's weird but I suspect it's bacteriostatic like doxy. Whereas if I increase my knotweed I will keep herxing.

No diet with buhners. Though before buhners I tried AIP and felt it helped a good bit.
Posted 7/13/2018 8:17 AM (GMT 0)
Ok, that sounds good. I'm on many herbs, but didn't notice a big difference. Alone with Japanese knotweed my fatigue worsened. Maybe it's a kind of herx. I couldn't believe that 20 drops of tincture could make someone herx. But it seems to be the case.

As I'm from Germany, I would be interested where you get your herbs from. Because in Germany we don't have a source for high quality herbs, and I have to order them from outside Germany. Sadly Woodland doesn't send to Germany. Sage does.
Posted 7/13/2018 12:13 PM (GMT 0)
I get my knotweed from nuherbs. CSA from woodland, but the individual ingredients from Montana Farmacy are good too
Posted 7/13/2018 4:26 PM (GMT 0)
Walkingbyfaith, I don’t follow a specific diet, just what I feel works for me. I had a food sensitivity test and avoid the foods I’m sensitive to most of the time. (Dairy, corn and yeast). I cut way back on carbs and sugar. And I try to eat really nutritious foods, lots of veggies. But sometimes I mess up or get lazy or just crave a bowl of ice cream and indulge. Maybe I’d get past 75% if I had the will power to stick to it religiously.
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