Dysautonomia, anyone?

I suspect I have it. POTS, poor digestion, and an impaired startle reflex all started at the same time after a flareup of neuropathy, even my ability to feel emotions is impaired somehow.

WalkingbyFaith said...
I did have considerable autonomic dysfunction, especially when everything started 9 years ago.

Heartrate was in the 110's-120's at rest and would speed up at the smallest movement. I could feel how hard it beat and my head would vibrate it beat so strong. I had trouble swallowing, like the muscle contraction was delayed. That freaked me out. Breathing did not feel normal. I had to think about breathing and rhythm felt off kilter. Had air hunger. Did not have POTS.

Post edit- I forgot it mentioned sweating. My body temperature changed from being cold natured to hot. Up to that point, I'd always had cold hands and feet and wore sweaters in air conditioned buildings. Haven't sweated normally in several years. Has to be really hot for me to be able to actually sweat.

That's most certainly dysautonomia. Have you recovered from it?

I also have it. Trouble breathing, swallowing, heart rate, temperature regulation, blood pressure. I'm still trying to get out of this hole.

acarined said...
even my ability to feel emotions is impaired somehow.

I have exactly the same. When yours started ?

Do any of you guys with dysautonomia have electrolyte or dehydration issues? My body seems unable to balance my salt/potassium on its own and if i detox too much it's like i can't replenish electrolytes, no matter how many i take in

I understand exactly what you describe, im so sorry you experience this. Mine started in August, 2013 when i moved back to my parents' house and was exposed to mold

Aerose91 said...
Do any of you guys with dysautonomia have electrolyte or dehydration issues? My body seems unable to balance my salt/potassium on its own and if i detox too much it's like i can't replenish electrolytes, no matter how many i take in

Not sure, as I don't know how to tell.

I do have low ADH in comparison to osmololity, which means my body doesn't retain water at the rate it should. Causes excess thirst and dehydration and static shocks according to Ritchie Shoemaker. It's extremely common in CIRS.

When my symptoms first started in 2009, I had extreme thirst, a salty taste on my tongue, and drank massive amounts of water. Told doctors. They never tested anything related to that. I don't know if conventional doctors even know any of this stuff. The ones around here seem to know next to nothing.

That went on for years. In the past 3 years that I've been the worst, I haven't drank as much water and can't remember the last time I had that salty taste. The static shocks went away, but I have had them come back some in the last 6 months.

There have been times when I've woken up in the night feeling dehydrated and sick with a headache and feeling like my whole body was dried out.

Does a particular infection cause all this, or is this part of any kind of biotoxin or chronic inflammatory illness?

Does dysautonomia affect bowel movements or cause constipation?

I had many of the symptoms described by walking by faith and bb. Never had a POTS diagnosis, nor disautonomia, but in addition to the other symptoms, I did have the confirmed drop in blood pressure upon standing. If I hadn't gotten the lyme diagnosis, I eventually would have got the testing done. But once I found out I had lyme, I figured it was part of it. After a year, most of the symptoms have gone away.

WalkingbyFaith said...
Does dysautonomia affect bowel movements or cause constipation?

Yes it can


The autonomic nervous system (ANS) controls several basic functions, including:

heart rate, body temp, breathing rate, digestion, sweating, sensations, urination, bowel movements.. etc
You don’t have to think about them - they function on their own.
The ANS also includes the sympathetic and parasympathetic nervous systems.

I’ve always attributed my POTS to ANS dysfunction but maybe my sweating is also part of the package.

Aerose91 said...

What binders do you take? Does it help?

I take Pectasol-C (modified citrus pectin), activated charcoal, and just started Pecta-Clear (Pectasol-C plus alginate).

I feel like the Pecta-Clear may be helping some.

I've never tried Jernigan's Neuro-Antitox, zeolite, or any clays. I probably should try some of those.

I have CIRS from mold and Lyme/co. Aside from cholestyramine (which I couldn't tolerate as it mobilized too much), the binders I'm taking are the only ones my doctors have suggested.

Lapis said chlorophyll was a good mold binder, but I had not heard that before.

I just had my amalgams removed. I'm aware Andy Cutler strongly warns against chlorella and cilantro, so I stay away from those. I haven't seen where he warns against alginate or chlorophyll, though they seem to be similar to chlorella to me.

Aerose91 said...
Everything for me points to CIRS too, though I've never been officially diagnosed with it. The only thing that ever helped me slightly were detoxing though the effects only last a day or so. I've wanted to try cholestyramine for a while but haven't been able to get my hands on any. I'm curious how I'd respond

You don't have insurance that covers prescription drugs? The regular stuff is much cheaper than the pure and insurance pays it. Not sure how all the fillers and additives would affect you with the mast cell issues and all. If I had some pure CSM, I'd take it right now in much smaller doses.