Late Stage (I think that’s what I am) Lyme Treatment

Often it has to be a clinical diagnosis for lyme, and this often goes for the coinfections as well. Particular symptom make-up and how one responds to meds are generally guides to where to take treatment and what pathogens are involved. A lot of lyme literate doctors, when they know you have lyme will try to go for broad-based treatment to nail other potential coinfections. Lyme rarely rides alone, especially if the patient is quite sick it makes sense to suspect multiple pathogens are at play. It can be hard to say with pinpoint accuracy exactly which infections are involved, even some of the top llmds admit they sometimes struggle with this, therefore the broad-coverage strategy.

Babesia and bartonella are pretty common coinfections. I don't put much weight in a negative test, there are a lot of different species and strains of these pathogens, plus if the tests are antibody based that is also iffy because the infections are immuno-evasive/suppressive in nature, and some people don't mount much of an antibody response.

Do you get nightsweats or air hunger? those are pretty hallmark symptoms for babesia. Pressure headaches can be as well.

Bartonella often has psychiatric manifestation, anxiety, mood swings, manic feelings, etc. Of course each of these infections can have cross-over in causing various symptoms.

What are your main symptoms currently? I can't remember if you mentioned this, but are you going to be able to see an llmd? they would hopefully be able to point you in the right direction with treatments.

Post Edited (sebreg) : 7/28/2018 7:17:19 AM (GMT-6)

No air hunger but headaches and nightsweats. I meet with my dr next Monday. I’ll have to discuss if she can handle this.

Other illnesses: Graves’ disease, Addison’s disease, panic, anxiety attacks, depression, PTSD, extreme fatigue, right knee diagnosed with runners knee 2 years ago (out of the blue it started acting up), tachycardia, plantar fasciitis that gets worse with exercise (the dr sucked so it may not be plantar fasciitis), fibro, heart murmur when diagnosed with Graves came out of nowhere, chronic pain, post exercise fatigue, just got anemia normal, working on raising low D was 26 while taking 10,000IU D3 a day, insomnia, lower back pain, sciatic pain, Stiff muscles, knots in my muscles I’m just really noticing them increasing in the last 2 years, osteopenia, seasonal allergies, bronchitis about 2 times a year, sinus infection about 2 times a year, my body clicks, nausea, dizziness, jaw pain, vision varies, oh yeah light sensitivity, heat sensitivity, my stomach of steel is no longer steel it’s doing better on probiotics and keto, loss of balance, lack of hunger

I know I have more symptoms so I’ll go through all the symptoms before I see her. I’ve got the lyme questions so we’ll have to see. An LLDM is quite a ways away from me. Anything I find looks at 100-400 miles.

I want to be sure I know what I should be expecting from treatment. I know this is messing with my body but I really don’t want to poke a stick at lyme for 4 weeks with an incompetent dr just to end up in a worse condition. I’ll figure something out! Thanks for all the information! (I wrote a response Friday and tablet shut down eating the response)Really appreciate all the information.