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Posted 7/30/2018 11:02 PM (GMT 0)
Dr called today and i have hypercoagulation going on he said this at my visit that 95 percent of lymies have it. Will send me plan and test results. What does everyone do that have this? Also i asked if this could be why i had that pots crap a few weeks ago and he said yes the blood is too thick for heart to push up to brain as needed. So all the pots peeps look at this for relief maybe. Also he said that this is another reason why lyme is so hard to erradicate, i hides behing the fibrin in capalaries and meds can not reach it. So check your blood this may be a way to get better faster.
Posted 7/30/2018 11:12 PM (GMT 0)
Eating systemic enzymes on a empty is one way , it may break biofilm causing more symptoms. ..
Visually in the microscope ,my blood was rouloux and livedo apparent before bvt ....that was a immediate benefit to the venom .....they are researching snake venom for pharma meds
Posted 7/30/2018 11:52 PM (GMT 0)
I am actually wondering about what others to about this as well as I have trouble with circulation...was thinking of serrapeptase or Natto..not sure which would be better...are they both the same? and I am not sure of a good place to purchase Natto..
Posted 7/31/2018 1:01 AM (GMT 0)
Some of the herbs that Buhner recommends for Lyme are natural blood thinners. Cats Claw and Japanese Knotweed are two that I know of.
Posted 7/31/2018 1:10 AM (GMT 0)
Thanks for all the replies. I am worried he may want to use heparin, I heard bad things about it.
Posted 7/31/2018 1:43 AM (GMT 0)
Will he/she offer alternatives?. He can start you off with Aspirin, which is a great blood thinner. There is also Fibrin from Inspired Nutrition. It is made up of a number of cyst busters, fiber dissolving herbs like serrapeptase.
Posted 7/31/2018 1:57 AM (GMT 0)
Interesting facts to read may help some here:
https://sites.google.com/site/virginialyme/treatment/lyme-babesia--hypercoagulation
Posted 7/31/2018 2:28 AM (GMT 0)
I’ve been worried about getting tiny blood clots in my brain for the past few months. I feel like I’m stroking out sometimes.

Sluggish lymph, biofilms, low blood pressure (not super, super low, but I’m regularly dipping into 90s systolic, 60s diastolic).

God forbid anyone have a full on stroke - I don’t want the karma of comparing them - but I do feel like my brain is cutting out periodically. It’s definitely not normal, and it’s been happening with more frequency too.

I’m legit terrified I’m gonna lose consciousness and never come back, at least not the same. It’s like an innate fear too - it just happens - whether I’m alone, or a crowded room, I get so scared. I have to go inside my head and will myself not to die. I’ve said my goodbyes and everything. It sounds crazy, I know.

I left in the middle of the most recent Avengers movie to drive myself to the ER, and they just told me it was from looking up at the screen and recommended I take some Aleve, not even offering any sort of imaging.

Thankfully, my PCP is a really thorough guy, so he’ll offer like anything within reason. I’m sure the tune would change, if I mentioned Lyme/co, parasites, leaky gut, methylation, etc. For “normal” concerns, he is cool. I actually have an MRI due later this week. Though, knowing my history, an all too common one for Lymies, the results will come back looking great!

Anyway, it wasn’t happening before this past year. 10 years of illness. Something is changing. So strange.

I plan try and start fighting to get my fluids moving better, but it really is a struggle. If I die, I guess... I did my best.
Posted 7/31/2018 2:37 AM (GMT 0)

NotQuiteAntonio said...
I’ve been worried about getting tiny blood clots in my brain for the past few months. I feel like I’m stroking out sometimes.

Sluggish lymph, biofilms, low blood pressure (not super, super low, but I’m regularly dipping into 90s systolic, 60s diastolic).

God forbid anyone have a full on stroke - I don’t want the karma of comparing them - but I do feel like my brain is cutting out periodically. It’s definitely not normal, and it’s been happening with more frequency too.

I’m legit terrified I’m gonna lose consciousness and never come back, at least not the same. It’s like an innate fear too - it just happens - whether I’m alone, or a crowded room, I get so scared. I have to go inside my head and will myself not to die. I’ve said my goodbyes and everything. It sounds crazy, I know.

I left in the middle of the most recent Avengers movie to drive myself to the ER, and they just told me it was from looking up at the screen and recommended I take some Aleve, not even offering any sort of imaging.

Thankfully, my PCP is a really thorough guy, so he’ll offer like anything within reason. I’m sure the tune would change, if I mentioned Lyme/co, parasites, leaky gut, methylation, etc. For “normal” concerns, he is cool. I actually have an MRI due later this week. Though, knowing my history, an all too common one for Lymies, the results will come back looking great!

Anyway, it wasn’t happening before this past year. 10 years of illness. Something is changing. So strange.

I plan try and start fighting to get my fluids moving better, but it really is a struggle. If I die, I guess... I did my best.

In the first year of infection I tried every specialist to find out what was wrong with me. They did a CATScan and found some spots in my brain. My Neurologist called them brain freckles and said that CATScan machines are so detailed nowadays that they are showing things that we could not see before.

Those "brain freckles" turned out to be Lyme spots. I have not had another scan done since so I am unsure if they are still there, if they've grown or gone away with Lyme treatment.
Posted 7/31/2018 2:42 AM (GMT 0)
Check PH with PH stripes-very cheap
Drink Green drinks if acidic
Posted 7/31/2018 4:07 AM (GMT 0)

Donjr said...
Dr called today and i have hypercoagulation going on he said this at my visit that 95 percent of lymies have it. Will send me plan and test results. What does everyone do that have this? Also i asked if this could be why i had that pots crap a few weeks ago and he said yes the blood is too thick for heart to push up to brain as needed. So all the pots peeps look at this for relief maybe. Also he said that this is another reason why lyme is so hard to erradicate, i hides behing the fibrin in capalaries and meds can not reach it. So check your blood this may be a way to get better faster.

What blood test shows that?


Is it the PT blood test ? Or INR ?
Posted 7/31/2018 8:38 AM (GMT 0)
This is really worrisome. I hear you notQuiteAntonio, it's very sad.

A cardiologist, who is otherwise good if not great, albeit overworked and short on time with patients like me. He refused my sincere and earnest request for a hypercoagulation test. Just completely dismissed it. Totally missed like a primary thing that affects 90% of us with Bacteriaas n Cos.

SMH. I do still feel wronged about that. Critically delayed... And discouraged from seeking further treatment.

That link (to virginialyme) really explains it in detail and I can feel ever bit of this sludgy state of my blood at times. I took an aspirin 2 days ago, unusual higher dose for me, 325mg because I thought I was having a heart attack, or at least my veins and arteries felt heavy and sluggish, especially in my armpits and my heart felt like it was twisting and fluttering, but I think it was some garlicky spicy beef that I ate. (alpha gal most likely)

Also I worry that part of my brain is going numb or asleep when I go to sleep, I've been waking up during the night and my scalp will feel numb, only deeper and unusually so, and I will have to feel my hair to make sure my head isn't falling asleep (!) I can't believe I'm letting it get this bad. I feel this dysautonomia happening, parts of my body going numb or falling asleep in an unusual deep way, like way down in the vessels.

I've been doing burpee squats when I feel that POTS thing happen, like you Antonio, literally to will myself back to life. I do feel like I'm dying. Oddly I feel I have so much to do yet, almost like I haven't really even lived yet, I keep imagining this great change in my life, some point where I will have started back to health but it never seems to come. I think I have to make this happen very soon.

But my brain feels tingly and numb, and sometimes it feels hot, not like a fever, but just an odd sense of heat in my cranial area, and those "other" symptoms like feeling like I'm not me, or operating someone else's body. Anyway I took a few of my SNRI/SSRI modulators today and again I'm reminded that not only do they not help, they sort of make it worse.

/end digression.

Post Edited (borrelioburgdorferii) : 7/31/2018 2:41:54 AM (GMT-6)

Posted 7/31/2018 4:00 PM (GMT 0)
Girlie, the test are fibrinogen activity, prothrombin fragment 1+2, thrombin/antithrombin t/at complexes, factor 2 activity, quantitive d-dimer, ptt so these are the test that my llmd ran. Nervous about heparin but i probably had this the whole time he says that 90 percent does. Link above please read it. That is a different dr but same theory.
Posted 8/1/2018 7:43 AM (GMT 0)

Donjr said...
Girlie, the test are fibrinogen activity, prothrombin fragment 1+2, thrombin/antithrombin t/at complexes, factor 2 activity, quantitive d-dimer, ptt so these are the test that my llmd ran. Nervous about heparin but i probably had this the whole time he says that 90 percent does. Link above please read it. That is a different dr but same theory.

Okay , thanks Donjr.
Posted 8/1/2018 7:02 PM (GMT 0)
You reminded me of another symptom, borrelio: feeling as if part of my brain is going numb. It’s like a muscle cramp, albeit without the excruciating pain.

I might try for testing when I’m able to see my LLMD again. I’ve an appointment for later this month, but I worry I won’t be able to afford it. I’m living on my own now, and I can’t stomach working every day. I could swing a couple extra.

I only know of PTT/INR tests, because I’m an LPN, and they’re relative to anticoagulant therapy. The other tests Donjr mentioned sound familiar from school, but they must be more targeted tests for whatever reason. Poor memory coupled with disuse syndrome. Yeah, the state is letting me be a nurse. Wow. Haha, I kid, but my patients are safe. I’m always with more experienced nurses.

Anyway, rambling on. I had an MRI today, so we’ll see how it looks.

Always reminded of how strange these infections can be in terms of pathophysiology, symptoms, all that. I’ve had so many strange aches, pains, growths, and whatnot, all of which were deemed “normal” or just some made up diagnosis with disappointing treatment suggestions.

Will update with my likely unremarkable results.
Posted 8/1/2018 7:55 PM (GMT 0)
Boluke but it's expensive. Thick blood is actually a symptom of Bart so treating that "should" help remedy it.
Posted 8/2/2018 11:02 PM (GMT 0)
May I chime in>please? I only aim to inform, not to scare...

Ive been caring for(although he lives in nursing care) for my ailing 78yr old father, for 1year now. He had been having a series of TIA's the summer of 2017. A major stroke labor day weekdn. He ended up having a an aortic heart valve transplant, then a stent in the carotid artery. So, Ive been very proactive in his care due to the facilities failures. Ive learned ALOT...

Dad was on clopidogrel AND warfarin between Aug 17- December 17. There were orders to stop those, however the nursing home facilty continued the meds thru January. On Dec 2nd 2017, AND Jan. 8th 2018 he had to have blood transfusions due to internal bleeding.

In February, the nursing home facility sent dad to a geriatric psyche ward due to his dementia being so severe, he was threatening to harm others. That hopsital did an MRI, and discovered a pool of blood just under his scalp. His vein was leaking. The blood was TOO thin. The bad thing was, was 'they' claimed the hematoma was due to a fall.

In the month(s) of December-February, he had been sent, by the nursing care facility, FOUR times, to 3 different hospitals> each time because of his demetia causing him to act out. 1 hospital wouldnt admit him, as it was the 2nd time the nursing home had called E.R.!!! He had been on those meds since AUGUST 2017, and not 1 of the hospital trips in Dec. Or January considered internal bleeding?????

SO, i was forced to dig deep. I started to monitor the meds they were giving him. I took him his Dr. Appts.(cardiologist, vascular, G.I.).

He not ONLY had the brain bleed, but was bleeding in his G.I.!!!! There is an ongoing investigation now, ofwhich Im involved, because of these dangerous drugs!!!

PLEASE be aware that Warfarin aka coumadin was FIRST used for getting rid of the rat/mice infestation of the large cities. It caused them to bleed to death> it worked!
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