Undiagnosed Illness - Last 4 months

If you traveled overseas, the tests dont look for those strains!

It should be clinical diagnosis

Well, my blood has been drawn for the IGX tests, mold, and lots more... covering all grounds. I am also going to get a second opinion from a auto-immune specialist and the Mayst Gravis Blood tests. Mast Cell Activation tests are still in progress.

Shelin said...
Hey All,

I finally got my results back from IGENX and did the full test from them... definitely pricy but I wanted some answers! Anyway, everything came back negative except for Borreliosis and only the TBRF Immunoblot IgM. I really have no idea what to make of this and I was hoping that all of you may have some further input. That was literally the only thing that came back positive on the whole test.

Any insight would be really appreciated.

Thanks All!

You're positive for lyme...(and Rocky Mountain Spotted Fever).

That is enough to get treated. It backs up a clinical diagnosis. Now you need a LLMD that will look into Bartonella and Babesia as well.

It's not surprising that Bart and Babs came back negative...it is often the case..which is why many of us don't bother testing for them.
BUT, I do understand you wanting to test - to try and get more information about what you're dealing with.

I did lyme through Igenex...and then after a couple of years treatment, I ended up testing for confections at a lab that isn't recognized for tick borne disease testing...and voila! I was positive for bartonella via blood pcr.

So, that was helpful ...knowing I was positive after over a year of treating bart.

Shelin said...
Hey Girlie!

Thanks for getting back to me. I don't think I have RMSF as I never even got a fever! Bartonella could be a possibility but what would the initial form of treatment be for it? 2 weeks of doxy? Is the Bartonella IGNEX test sensitive?

The coinfections - particularly Bart and Babesia often do not show up on testing. Even more unreliable than lyme testing.
Galaxy Labs has a Bartonella test - that is supposed to be more accurate/reliable...but I think it's quite expensive.

Treatment for bartonella - I've known people who caught it early and were treated with a tetra combined with a macrolide. But this is catching it within months.

Generally people treat it with Rifampin or Rifabutin plus another antibiotic.

The most effective seems to be the fluoroquinolone class of abx. BUT they do come with risks/side effects that many of us are not willing to chance.
(tendon rupture/ peripheral nerve damage/ CNS damage)