Anyone Tried Lyme-N via Nebulizer or have any feedback? - Part 2

Link to Part 1: www.healingwell.com/community/default.aspx?f=30&m=3746101


Please post in this thread - Part 1 has reached 4 pages.

Kraavdran said...
oh, sorry. I realize that I had a typo in my previous post. That should read "I should know by Fall". Not "I should know by wall." In other words, I understand that it can take months before signs of recovery are apparent. Pardon.

You can go back and edit your post if you want.


We just don't want anymore new posts...we try to keep our threads from going on too long.

Thanks for the update.

Question regarding the spirochetes in the saliva.

So you're talking about lyme spirochetes? (not dental spirochetes in the saliva)

Other than fatigue - what are/were your other symptoms? Did they resolve with this treatment?

It does sound to me that you've still got symptoms that need addressing.

I used Lyme-N for around 75 days.

I believe I've had Lyme for around 3 years. My symptoms have been primarily joint pain, muscle pain, insomnia and fatigue. I kept getting worse and worse and around February I was no longer able to work. I could barely get around by limping and it hurt do anything. I finally figured out that I had Lyme (after being told repeatedly that this just happens sometimes as you get older) at the end of March.

I took Doxy for 30 days. I started to improve, but everything still hurt (neck, back, shoulders, knees, muscles everywhere) and I still couldn't work or do much at all.

Based on Dr. recommendations, I cut out many foods from my diet and ate mostly meat and veggies and still am careful with my diet today, but hope to introduce foods as time goes on.

Around May 1st, I started Lyme-N. My throat felt raw the first couple of days and the Lyme N in my lungs caused me to cough a little. Other than that and some herxing, the Lyme-N was pretty easy to handle. Much better than the Doxy.

I gradually improved on the Lyme-N, with ups and downs. Towards the end of the treatment period (60 days, I think), I suddenly started to feel a bit worse, so my Dr. suggested I stay on it for another couple of weeks. There was enough left over to do that.

Right around the time I finished Lyme-N, I had improved enough that I was able to start working full time again. I had started part time around a month previously and worked my way back to full time.

Throughout this time I took Epsom Salt baths daily and took Methyl Folate. These helped me tremendously with herxing.

After a couple of days of being off Lyme-N, my eye became infected. I believe this was the Lyme as well. I also started feeling a little worse in other ways.

I started taking the Vital Plan herb protocol after a few days off of Lyme-N. I believe this has helped me quite a lot. Although my eye infection has stayed with me for the past month and half or so, it has gotten a lot better and some days it seems gone. I feel like I've continued to improve in all areas.

Today, I still have pain in my shoulder and in my knee. I still have a long way to go, but overall, I'm dramatically better than when I started Lyme-N and I'm continuing to improve. I feel like I can lead an almost normal life now.

Did the Lyme-N do what it's supposed to? I don't know. I know that I improved quite a lot while on Lyme-N. My Dr. told me that the Lyme-N did it's job and now I may continue cycle through symptoms for a while. I wasn't feeling like I was doing as well as my Dr. described so I started the Vital Plan Restore Kit. I think that Vital Plan might take me the rest of the way to full health.

I submitted my follow up saliva sample but I haven't gotten the results back yet. I'm not placing very much weight on this test. I think it's probably great for letting you know if you have spirochetes, but it can only tell you if they are in your saliva. They hide throughout your body so to me, a negative result is not conclusive. That would be better than a positive test, but that about it.

My insomnia is gone. My fatigue is gone. Many of my pains are gone. I feel that I'm healing. My mood is dramatically better and I can live my life again!

My own discovery of Lyme allowed me to realize that my mother has had Lyme for possibly over 20 years and that my son has had Lyme for 5 years. My mother is going right to Vital Plan because Lyme-N is too expensive. She is just starting now so I have no results to share. My son is on antibiotics because his Dr. think this is best for him.

I've read several books and searched the web quite a lot during this time. I found "Unlocking Lyme" by Dr. Rawls at Vital Plan to be probably the best information that I've read. I'm in no way affiliated with Vital Plan. I'm only sharing this information because it was helpful to me and I hope that my experiences might help others.

Hey all,

It's been a while since my last update. It is now the 5-6 month mark after having completed the Lyme-N treatment. And I have some great news. Most of my symptoms have improved.

Most noticeably, my physical fatigue and general malaise has improved to the point where I was able to pick up a few side jobs (light stuff like petsitting and helping organize/sort). I would not have been able to do that stuff before Lyme-N. It's not all great, I've pushed myself a bit too hard and crashed a bit... but recovered after a few days. I imagine it will take time to build up my stamina (as well as continue to improve from adrenal fatigue etc.). On good days, I feel up to doing a part time job... but crashing from doing too much gives me pause for now.

Mental fatigue and brain fog seem to be improving slower, but noticeably. I read my first book in 5 years this past month. Life is a bit easier to enjoy and less overwhelming as well.

So, that has been my experience so far. I am beginning to think that Lyme-N might be helping out after all... although a bit more time will tell for sure. My doctor said that it would probably take around 1 year to recover but I'd probably start feeling noticeably better by fall (halfway). So that estimate seems to be on track.

Hey,

Long story: It has certainly been a while since my last update. Not much is new right now. I tend to look at my progress in terms of my fatigue levels. The past month or two, I've felt like I've been on the decline. This could be due to several factors (season change, pollen/allergies, and being overly zealous in ramping up my exercise for a week or so). But I acknowledge that it could very well be that Lyme-N did not "cure" me. I understand that recovery from the later stages of adrenal fatigue (caused by Lyme) takes a while, but being near the 1 year mark without being able to work (or even do the stuff I want to do) is quite discouraging. At the same time, I am not sure what to make of the time I was feeling noticeably better. [edit: I should note that I am still able to do more prior to Lyme-N... just not as much as I was or as much as I want]

Short story: I am not feeling better enough to recommend Lyme-N. Especially because of the expense and lack of dramatic improvement after 10ish months. However, I am still (trying to remain) hopeful and will surely update with any news.

Post Edited (Kraavdran) : 4/12/2018 4:39:03 PM (GMT-6)

Hi Cosmo245 - welcome to our community.

Well, I do hope that the Lyme-N is what's helping your son.

I don't think there have been many successes using it....it's not one of the more popular non-pharma treatments.


Let us know how he progresses...an update would be helpful.

Hey all,

I wanted to give one last update in case it might help. So, last I wrote, I had finished Lyme-N and only noticed marginal improvements. Although, the tests (Lyme-N's test, and also muscle testing) said that I was clear from Lyme (for what it's worth).

It was... maybe a year and half after Lyme-N that I started looking for other solutions. I happened across a program called the DNRS (https://retrainingthebrain.com/). It seems to be controversial among certain groups, but perhaps less so than Lyme-N. To quickly summarize my understanding... the program treats people who have had issues (infection, environmental, chemical, mental, or other stressors) that has caused damage to the Limbic system and formed a maladaptive physical response much in the same way your body reacts to accidentally putting your arm on a hot burner. Malaise/fatigue would be my response to the infection, Lyme. I'm probably oversimplifying a complicated neurological topic, but I have not had much formal training in neurology/biology. This program also addressed other symptoms that I had such as having a depressed mood, chemical and environmental sensitivities, food sensitivities, etc. because they are all connected to the imbalance in the limbic system. I'll try not to say too much since this is a forum about treating Lyme disease, but if anyone wants more information, I can post it or private message it.

So, I completed that program just last week (it is a 6 month commitment, ~1 hr/day). And I feel better than I have felt since my health first went down back in 2001. 6 months ago, I struggled to go grocery shopping each week... and now I am going for 1 hour walks, taking a course on personality theory, and going to the store in the same day. I've even started applying for jobs.. something I could hardly dream of before.

So, to get back to the original topic at hand... Here is my best understanding of my journey. I think that Lyme-N did work (because muscle testing from various AK doctors said I was free from Lyme and I noticed slight improvements as a result of the nebulizing). I do wish, however, that clear research could be done on Lyme-N... so I could say it with more confidence. And, of course, transparency from the original company instead of... vaguely suspicious behavior on their behalf (like not telling you what is in it). To be honest, from all this little data, I would not be convinced that it would help... so I hope more people can come forward with their experience to confirm/dispute my understanding.

From there, I think, the post-Lyme effects lingered. To which the DNRS helped get my body out of the lifestyle and perceptions that it acquired from 16 years of sickness.

Just my 2 cents. Thanks for reading.