How do you guys spend time while on treatment?

Hi everyone,

I'm in the middle of treatment for bart/yersinia/babs and even though I'm slowly improving, I still am stuck at home for the most part and on disability now for the past 9 months. I find it that on most days being stuck at home is maddening as I have run out of things to do...nothing too fun to watch on tv...only thing that keeps me occupied is playing video games on my phone or computer but I found out recently that it makes me sicker when I play video games...

Has anyone else noticed that when you spend too much time on mentally or physically taxing activities? And do you guys have some suggestions on things that you can SAFELY do that are NOT mentally/physically taxing that can help pass the time?

And I realized it's not just video games but other things as well.

Things I used to do before I got sick that makes me sicker when done for extended periods of time (30+ mins):
-video games
-board games
-movies that are too loud or intense
-having long conversations with people
-driving
-too much exercise (short spurts of exercise actually makes me feel better)
-reading for long periods of time


I just feel like most the time I am just waiting for me to get better and am dying of cabin fever when I'm not symptomatic and paying for it when I over-exert myself. -_- I still am a 28 year old guy that used to ALWAYS be out whether at work, gym, on dates with my gf, hanging out with friends, etc. and never really at home before I got sick so being stuck and home and not being able to do much is so maddening...

It's particularly maddening when it seems like I'm feeling okay and I do stuff and shortly thereafter I feel really sick...

Okay at this point I'm really ranting lol. Anyone else experience this?

Thanks for listening.

sebreg, the library is a great idea!

xpeetzax, when I have enough energy I work as much as I can online, and try to relax with youtube vids, netflix and amazon prime video when I have it...

often, I'm at low stamina effort while trying to take in the video, usually by the time due to a few hours of mentally exhausting work, I fall asleep with my headphones on from exhaustion after putting a feature movie on...

and this is because I'm fitfully self-employed, with not much of an employer or platinum health care to rely on, nor disability because I can theoretically do just enough to survive with some online business, albeit poorly.

like you I used to be super-adventurous and outdoorsy, but I seem to have lost that spirit with vague and foggy glimmers of that feeling anymore.

I write down lists of things, goals I'm still trying to do, and feel overwhelmed often, but I manage to do some harder learning tasks like some advanced car maintenance (guy stuff, working on cars) and sometimes have some learning breakthroughs with that through the fog, that I can't seem to feel rightfully jazzed about like I used to be.

It's time to renew that library card i think!

I thought about re-applying to grad school for another degree, but sometimes I fear I may be too damaged now, I was going to do it just to have access to a healthier space and possibly better healthcare!

be thankful for your blessings, and see what you can still do, focus on your health if you are given the opportunity...