Recovering or Wishful Thinking?

I've posted a couple of times about my experience- in a nutshell, I started having widespread, seemingly unrelated symptoms (lump in throat/hiccups-possibly acid reflux related, leg heaviness, muscle and nerve pain that moved around, ear pain, etc). I tested negative for Lyme but was given the antibiotic anyway- 21 days, then one extra week because I saw improvements. I finished the antibiotic on October 3rd. I still had some lingering muscle/nerve pain for a few weeks.

Last Monday (the 22nd), I had a very good day. This was followed by 5 more really good days. I feel almost completely back to normal. The only symptoms I've had this week are the hiccups (but way less bothersome than usual) and a bit of neck stiffness. I have not had this many good days in a row since before all this started in early August.

Does anyone think it's possible that symptoms could linger for a bit, then disappear for good? Or does it usually come back? I really want to hope for the first, but also want to be prepared if it's typical to have a good stretch like this that's only temporary. Things have definitely gotten progressively better and at the very least I am grateful for that!

Also, my PCP referred me to a neurologist for the nerve issues and that appointment is this week. I feel silly going and saying I feel fine, but also know that if I cancel the issues could start up again. Am I wasting their time if I go??

Post Edited (Calduger) : 10/27/2018 6:40:49 PM (GMT-6)

That sounds promising! But I think you need to see a Lyme literate doctor and see if you need to be on antibiotics longer. That is a short course of abx for a Lyme infection and you want to make sure you get all of it. Otherwise it can get worse and be harder to get rid of. I stopped treating too soon and then got very sick.

I don't think a neurologist will be very helpful unless it is a Lyme literate one.

Glad you're feeling better, and I'm also glad you're looking into it further.

You had a tick bite and Lyme symptoms and you improved with antibiotics. Sounds like Lyme.

Most neurologists (and PCPs) follow outdated CDC guidelines that downplay the existence of Lyme. You are lucky that your PCP was wise enough to treat you based on the bite and symptoms.

Treatment of late-stage chronic Lyme is much, much more expensive than whatever you would pay now. (Especially taking into account the fact that many of us have lost work on top of the high expenses.) I don't want to be a Debby downer, but there are a lot of people here who wish we could have treated this properly early on.

Hi sorry you are having Lyme symptoms, I would appeal the insurance, have you MD office explain to them about the tick bite and lingering symptoms. You can print out the ilads.org treatment guidelines to show them.

Waiting and continued symptoms most likely just gives the bacteria/disease more time to turn into chronic Lyme. It will be more costly for treatment.

I wish you the best of healing and please feel free to ask any questions or reach out for moral support here.