What is your experience with immune modulators

I saw your post on flagyl. Sorry to hear it ramped up symptoms so much. Did you end up taking the gabapentin?

In regards to flagyl, I remember reading this doctor's article a while back. They talk about some patients that have a strong sensitivity to treatment, and their strategy was basically to give them super tiny pulse doses and build up from there. They specifically talk about flagyl as well: http://francisholisticmedicalcenter.com/images/managing_through_the_herxheimer_reaction.pdf

I hope your symptoms can get back to baseline soon. According to the above article the doctor says with things like flagyl it can take a while for patients to restabilize in regards to herx with these meds.

Have you ever tried quercetin? I think that one helps some people.

You are taking quite a few antihistamines correct?

Bad. Because as you said right in your previous topic we deal with a rageful autoimmunity. I am curious, how long you are ill? Were you rienfected having lyme symptoms since childhood ? What infection made you hitting rock bottom?

The herbs I tried didn’t help me at all.

LDN - I did prior to knowing I had Lyme disease. I stumbled upon it when I was googling to find out what the heck was wrong with me.
LDN made my pain happen through the night when previously I got relief when I went to bed.
So I crossed that off my list.

I tried Pharma antihistamines briefly - no help.

Now I’m finally getting some relief with the Quercetin.

I have an appt with Dr J next week and I know he’s going to ask me about the Lyrica.

I don’t know what to say - agree to take it and then not take it - or tell him I won’t take it and possibly affect our relationship adversely.
Or say I tried it and it didn’t work - don’t wanna lie though.

Perhaps mushrooms could help, I was fascinated listening to Paul Stamets. I ordered Host Defense but haven't been taking it consistently, so I can't really tell. I'll have to listen to that interview again just for the pure pleasure of it.
I have been taking ashwagandha for a long time but also don't know...
When I first got ill my LLND put me on Biobran, I think that has helped me, I did get better while I was on it, but I was on many other supplements at the same time, but I know cancer patients take it.