Ex-Remission Day

Well today used to be the day I celebrated the day my LLMD declared me to be in remission. Some of yall know, I relapsed back at the end of summer. Today is just a little hard to deal with emotionally. Thankfully its not a bad symptom day (fingers crossed I didn't just jinx it). Anyone have a funny story or Bible verse to cheer up this horrible no good very bad day?

Here’s another one. The Lord gave me this Bible verse as if it were a personal promise about a week before my chronic Lyme symptoms started in 2009 and changed my life forever. I have never reached remission and did not even know my symptoms were from Lyme until January 2017. Yet, His promises stand. He’s been with me through all of this, and will continue to be until the end.

Isaiah 43:2

“When thou passest through the waters, I will be with thee; and through the rivers, they shall not overflow thee: when thou walkest through the fire, thou shalt not be burned; neither shall the flame kindle upon thee.”

sebreg said...
Viktor Frankl's Man's Search For Meaning

I've read that book and while pretty bleak, one of the take-aways I got from it was to always groom oneself and keep up proper hygiene as it lifts the spirit from absolute hopelessness to being ready for each day with a clean face, freshly shaved, etc. It is these little triumphs (hygiene, cleanliness) that lift one's spirit to survive even in some of the harshest situations you could imagine yourself in. Nothing biblical though, that's all I got...

I just showered and shaved to go to the store, and then to get some work done online.

Yeah, I know most people don't need to be reminded to shower, bathe and clean their bedsheets, and room, apt, house, etc... but when this maintenance and upkeep is done it means someone hasn't lost hope.

Thanks everyone! Your posts really uplifted me on a hard day. I've been trying to stay positive but its been really difficult lately. My husband and I have spent the last year cleaning out an old house and remodeling it, and now we are just about ready to start moving. Stress and tension has been high and of course lyme has not made this any easier when I tend to "run out of spoons" rather quickly. The first time I had lyme a book that really spoke to me was Tuesdays with Morrie by Mitch Albom. I read it during a time when my lyme was still being misdiagnosed and I was basically on my death bed and it showed me the importance of showing people how much you care for them now and how to be thankful for the small things. It's a lesson I'm trying to remind myself of now...its just hard to do some days. On a brighter note-our master bathroom is basically done (just needs some paint) and soon I can enjoy my giant jet tub! Thank you all for letting me vent and for being so uplifting.

I know what you mean. When I was a kid there were a lot of adults that really helped me a lot even though they probably didn't realize it.

This is one of my favorite Bible verses: "In repentance and rest is your salvation, in quietness and trust is your strength..." (Isaiah 30:15).

A lot of times I forget about being quiet and trusting God.

Sometimes it comes down to the basics of still being "above ground".

As we age, and see others starting to drop, this fact becomes more obvious. I just learned of another high school classmate who died 12 days ago.

Early 80's were a good time. Just seen some high schoolers wearing the checkered "Vans" slip on skate boarding shoes. I had them in 1982 LOl.

WalkingbyFaith- I know what you mean about losing hope. I have a hard time myself, trusting God when I'm having a bad day or two. It's easy to trust God, until something in your life gets unstable, and then I wonder if I was really trusting God, or if I was trusting myself to be able to fix all my problems.

I like to listen to music a lot and that really helps me. These are two of my favorite songs to listen to when I'm feeling down. "Remember" by Lauren Daigle //www.youtube.com/watch?v=nThnLyjQgbA and "Bring the Rain" by MercyMe //www.youtube.com/watch?v=e8HgAVenbUU.

The strange thing with Lyme (or maybe it's just me) is that the silliest things can set you off feeling bad again. I decided to get some new curtains, and it's driving me nuts because they don't block all of the light. I can't put the old ones back, and I've got a horrible headache, and I can't tell if it's the new smell on the shades or because of the extra light coming in.

I had to leave the church I was going to because of the mold also, but recently I found a church that I like that's not moldy, so I'm thankful for that. I didn't want to go there at first, but it worked out after all.

It's really tough to find joy in Christmas when everyone is all happy, and you are feeling sick and you can't enjoy it like other people are.