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Ketotifen
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Lyme Disease
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jb1994
Veteran Member
Joined : Sep 2018
Posts : 1575
Posted 2/15/2019 6:04 AM (GMT 0)
Has anyone here taken this? My doctor prescribed it to help with food allergies...I thought it was for inflammation. I have very bad inflammation issues going on so I'm a bit confused as to why this was prescribed or what people typically use it for.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/15/2019 6:15 AM (GMT 0)
I read it’s an antihistamine and mast cell stabilizer.
Can be used for allergies.
sebreg
Veteran Member
Joined : Jun 2015
Posts : 1925
Posted 2/15/2019 2:44 PM (GMT 0)
My mom has been taking it for years. Has always helped her with various issues, in hindsight we think it may have been helping with MCAS issues related to lyme/coinfections. I know this med has really helped some patients, hope it can help you with the inflammation issues!
goshawk
Veteran Member
Joined : Sep 2016
Posts : 2653
Posted 2/16/2019 11:59 PM (GMT 0)
I just started it about
a week ago. I got it from compounding pharmacy. It is only 1 mg at bedtime . I am taking it due to histamine from Lyme and co. Before that she had me take zertec(claritin) and that and now the Ketotifen seem to be making a difference.
mpost
Veteran Member
Joined : Feb 2015
Posts : 1716
Posted 2/17/2019 5:49 AM (GMT 0)
ketotifen is MCAS treatment. antihistamine and mast stabilizer.
careful with the fillers, they are almost always based on lactose. if u cannot eat dairy that may be an issue.
you may also try quercetin as natural alternative
Sheekster
Veteran Member
Joined : May 2016
Posts : 512
Posted 2/17/2019 7:01 AM (GMT 0)
I take it. It is fantastic. 1mg at night and I sleep so well. It is the only thing that has worked to get me to sleep well consistently. It is an H1 blocker. A type of histamine releasing mechanism in the body.
Szabo246
Veteran Member
Joined : Sep 2017
Posts : 875
Posted 2/17/2019 7:27 AM (GMT 0)
My doc tas given me this, told me to take 1 at night when I complained of itchiness/ rashes.
I’ve not been taking it every day, I wanted to alter a few other things first to see if they make a difference but when I have a particularly bad with with the rashes/ itchiness I will take one. Not sure if this is the right approach.
Also started quercitin two days ago
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/17/2019 7:43 AM (GMT 0)
I’m taking Quercetin
Szabo246
Veteran Member
Joined : Sep 2017
Posts : 875
Posted 2/17/2019 7:49 AM (GMT 0)
Girlie what dosage do you take and do you take it with ECGC?
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 2/17/2019 8:47 AM (GMT 0)
I take 500 mg per dose - usually twice a day.
No I don’t take the ECGC
dmw52
Regular Member
Joined : Jul 2010
Posts : 369
Posted 2/18/2019 12:28 PM (GMT 0)
I take ketotifen for MCAD triggered by Lyme. I only take 1mg before bed which has helped with insomnia, depression, weight loss, and fatigue. I was only sleeping about
2-3 hours without it. Now I sleep 8-9 hours.
jb1994
Veteran Member
Joined : Sep 2018
Posts : 1575
Posted 2/18/2019 10:22 PM (GMT 0)
Nice. I don't think it helped me with much at all last I took it. He said to take it before every meal but this stuff is a dollar a pill so I don't think that's happening. I'd love to see some weight loss though lol.
dmw52
Regular Member
Joined : Jul 2010
Posts : 369
Posted 2/18/2019 11:19 PM (GMT 0)
It stopped the weight loss but now I keep putting weight on. My allergist told me she hasn't prescribed it in years due to the weight gain.
jb1994
Veteran Member
Joined : Sep 2018
Posts : 1575
Posted 2/19/2019 2:51 AM (GMT 0)
darn well I'm not sure I want to take it now. That sh** cost me ninety bucks! I assume the pharmacy won't let me take it back. Even at 1mg a day?
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