Just started babesia treatment and i have some questions

So I've been treating Lyme and Bartonella for over a year, this really improved a lot of my physical and neuro pain type of symptoms I had. But I'm still stuck with symptoms such as brain fog, depersonalization, depression and vission issues. I also started getting hot flashes and feeling warm at night during treatment.

So I asked my LLMD to try Babesia treatment despite my test for it being negative, to see if that can help with these remaining symptoms. I just started Malarone 4 days ago (Sunday), and I've been getting a flare up of old symptoms coming back, the physical and neuro pains. I always assumed those were because of lyme or bartonella, is it possible to get these kind of flares from babesia too? I guess I should also mention that during the last weekend when I started the Babesia treatment I also cheated on my strict really low sugar diet which I've been on for quite a while and ate lots of sugars. I've read high amounts of sugar can cause flares, so I'm wondering if it could be just that I'm dealing with right now?

I'd like to know your opinions, thanks.

I don't know if babesia can cause those symptoms, but sugar causes me a lot more pain, probably partly because it's inflammatory.

It sounds like you really needed to start the babesia treatment. I also never tested positive for babesia, but I treated it because it's part of my LLMD's protocol, and it made a huge difference for me. Hope it helps you a lot too.

TheJay said...
So I've been treating Lyme and Bartonella for over a year, this really improved a lot of my physical and neuro pain type of symptoms I had. But I'm still stuck with symptoms such as brain fog, depersonalization, depression and vission issues. I also started getting hot flashes and feeling warm at night during treatment.

So I asked my LLMD to try Babesia treatment despite my test for it being negative, to see if that can help with these remaining symptoms. I just started Malarone 4 days ago (Sunday), and I've been getting a flare up of old symptoms coming back, the physical and neuro pains. I always assumed those were because of lyme or bartonella, is it possible to get these kind of flares from babesia too? I guess I should also mention that during the last weekend when I started the Babesia treatment I also cheated on my strict really low sugar diet which I've been on for quite a while and ate lots of sugars. I've read high amounts of sugar can cause flares, so I'm wondering if it could be just that I'm dealing with right now?

I'd like to know your opinions, thanks.

It could be that the leftover bits of bart/lyme could be flaring now that you’re hitting Babs.
My LLMD says Babs needs to be treated before the rest will fall.

Plus there is a lot of overlap with these infections.

I would highly recommend getting your yeast levels tests as well as tested for food allergies. Most of my neuro issues ended up being from those two things. Sugar feed yeast so this may be why you had such a bad flare up as well. I would also research how food allergies effect the brain. I never thought I had any because I was not itchy/swelling/etc. but it was crazy how quickly things took a turn for the better once I stopped eating the foods I tested positive for. It is like playing outside and you don't realize how you are covered in dust until you take a shower.

My LLMD has an entire soap box speech about this--basically if you take abx for even a week you need probiotics for a year, but most doctors don't even bother saying this because they know people won't do it. So the abx builds up yeast in your body and eventually the body gives up fighting it and so the yeast builds up until it starts to pokes holes in the intestines --which of course, your favorite foods go thru and viola food allergies. After I got the yeast under control and went cold turkey from the foods I tested as allergic to my LLMD had me wait 3 years before I slowly started to reintroduce those foods back into my diet. It took probably 5ish years all together, but I'm back to eating normal.

Hopefully this helps or at least points in you the direction that will help.

"My LLMD has an entire soap box speech about this--basically if you take abx for even a week you need probiotics for a year, but most doctors don't even bother saying this because they know people won't do it. "

This is not true. There is actually no evidence probiotics help after a course of antibiotics and they could potentially do harm.