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Post Edited (1000Daisies) : 5/14/2021 7:30:05 PM (GMT-6)

I was taking 3,500mg but was working up to get to 5,000mg.

DOES IT WORK as they say it does? This is something from coconut......i would like to see some studies on it....could not find any....I will research longer...

Artermix I found this one scientific article that shows some efficacy, if I processed it correctly.
https://www.ncbi.nlm.nih.gov/pubmed/?term=monolauren+lyme
Eulethero is for energy, and other things. It doesn't kill the bacteria. As soon as you begin to integrate herbs that kill the bacteria, there is a tendency to feel wonky because of the die-off/herxing. Some go slow, and pace it so they don't herx much, some, like myself, are appreciative of herxing because it is a clear indication that the herb is doing what it is supposed to do. From this place, I taper back.

Quite frankly (for me), at the end of the day, I don't care about how many scientific write-ups say something works or not. Meaning, as long as it isn't dangerous and it works, then it works. We are all different with varying infections at different levels. We also metabolize things differently. Our immune functions are at different levels, etc, etc.

Remember just because it works for some doesn't mean it will work for all.

In that you are dealing with MORE than yourself...gosh, in my view, you should probably be throwing pity parties weekly. It has got to be tough!

1000Daisies said...

riverlee said...

Hi Daisies, would you mind telling what all he was put on for viruses (that is helping)? I am trying to fight off internal shingles, have tried lobelia (seems to help, had quite a herx) and lysine, also valtrex (not sure it did anything) . now my new naturopath wants me to take acyclovir plus monolaurin. I think I will take the monolaurin plus the lobelia, just not sure I want to take more Valtrex or Acyclovir. What kind of monolaurin are you using?
Thank you!

So sorry that I almost missed this! My apologies! I haven't been on as much lately.

Here is another one of my prior threads that had more details on what we used.
https://www.healingwell.com/community/default.aspx?f=30&m=3655651

In summary, we did this from the naturopath:
* ViraCon - 1-2 capsules 2x/day
* Monolaurin - 1 capsule 2x/day <-- BRAND : Ecological Formulas Monolaurin
* Lysine - 1000 mg 1x/day *
(*Using Lysine Extra which is 800mg for 2 capsules -- was planning on doing 1 pill 2/day.)

We did that for awhile. We went on/off monolaurin. He hasn't reacted to monolaurin when I tried again the last few times. So, I guess it's like peeling the layers of an onion. My NP/LLMD wanted him on a pharmaceutical anti-viral, so we did some rounds of acyclovir. I can't say that it did much for him. Perhaps we didn't do it as high or as long as they wanted. Then our new clinic threw some herbals at the viruses.

It's been awhile since I have been reading about viruses, but have you looked into oregano oil for shingles (I think that's what I read awhile ago)? If you use that one, I'd be very cautious about using it. I have it in my cupboard but haven't worked up the courage to use it personally yet though. Just wondering if you looked into that too?

Let me know if you have any questions! And I sincerely apologize for the delay in my response!

Also, if you read any of Pirouette's posts on viruses, she was an excellent resource for viruses too.

And good for you and your doctors for looking into viruses! They are often overlooked unfortunately. And obviously hard to treat/manage too.

Daisies, No need to be sorry, thank you so much for the reply. I have not tried oregano oil. I was diagnosed with the shingles in Sept, by a functional MD actually- who just needed to listen to my symptoms to tell- and she was correct, my varicella IgG count was 2700, was too late to see IgM antibodies. She is the one who recommended lobelia, and I also took lomatium. They are both good antivirals (worth trying if you have not) , and both caused worsening of symptoms right away but the lobelia really hit me hard. She also had me taking 8000mg of lysine daily. In Jan I started the lyme antibiotics ( was dignosed by J clinic last June but they surprisingly wouldn't treat me until I was seen by a rheumatologist for low positive ANA) but, in addition to symptoms flaring, i quickly began to get very high fevers and so I have that on hold because I needed to function to move and take care of my one dog who has cancer. So my new Dr has me easing back into things, trying to not make me very sick. I have decided to keep taking the lobelia, added in Japanese Knotweed (have you tried that?) and added the lauricidin that the new Dr gave me, plus I am taking 6000mg lysine. My count had gone down to around 1800 when the new Dr had it checked a couple months ago, so I am going to have her check it again in a couple weeks to see what has happened. I'm not sure if lyme is keeping me from kicking the virus or what exactly.

Interestingly also, J clinic assigned a new PA to me in Nov, and she was not concerned with the fact that I had such a high varicella load and also experienced herxheimer reactions to the antivirals. I even asked her to ask Dr J himself about it all. She said his opinion was no different than hers. She was shocked that the original PA would not start me on treatment until I saw the rheumatologist.
This whole thing has been so frustrating, and I have yet to take an Igenix test to see if I can get something positive (other than band 41, which is all that I've had on 2 generic western blots). Part of me is afraid of it coming back negative because at this point, lyme and co explains everything, with the added bonus of the varicella of course

Sorry for the long drawn out response. I really have wanted to post on here to get some opinions on things, but it's overwhelming to even think about putting everything down so that people can understand and follow! I have been reading here religiously since last June though and am so grateful for all of the information.

Thank you again for the information

WalkingbyFaith said...
riverlee,

I happened to see your post about shingles. I, too, have issues with shingles. I was getting bad flares of the post herpetic nerve pain/numbness a lot, especially when herxing from other stuff. I take lysine daily. I saw you mentioned lomatium. I took a turn with lomatium, isitis, and licorice together. It didn’t seem to get better while taking it but did after I finished a round of it.

One thing I was going to mention is arginine. I’m sure you are probably aware, but just in case, make sure you are not taking l-arginine in any supplements and watch out for high arginine foods in the diet. Wish you well.

Hi WBF, thank you for the reply. I am not aware of the issue with arginine- I will look into that- but I do not take any at least.
The lomatium definitely did not affect me anywhere near as much as the lobelia. the lobelia was what the Dr told me to take but the lomatium I read about and decided to try first. Part of what frustrates me is that the shingles I apparently have is affecting my brain, and the symptoms are the same exact symptoms as neuro lyme, which is also what I supposedly have going on. You mention the pain(have you had regular or internal shingles?), and so have others, but I don't have pain, which seems odd. I have head pressure, numbness, dizziness, plugged ears, ringing ears, eye pain, blurry vision, and sometimes neck pain. All that and plenty more happened when I suddenly got very sick a year ago. So it is confusing to separate the 2 possibilities, but the herx I suffered with the lobelia seemed to indicate that the shingles virus is definitely causing some of the head symptoms. And the viral load has gone down. J clinic PA says there;s no telling what else the lobelia is hitting- the tick borne illnesses perhaps- but she is not at all familiar with lobelia and frankly, not many Drs seem familiar with internal shingles at all. I don't know if you (or anyone else) have any further thoughts on all that.
Thank you so much