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Really only 1 major symptom?

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Lyme Disease
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Posted 7/3/2019 5:57 PM (GMT 0)
Been slowly getting blood work results over a period of time. At first when I had positive blood work for lyme, I was on board with the concept that each person has unique symptoms and just having one major symptom *could* be possible which is sleep insomnia. But with positive results now for babesia and bartonella, I really am puzzled that I only have 1 major symptom. Is this really possible? At the very least, extremely unlikely?

Post Edited (cppoly) : 7/3/2019 12:12:02 PM (GMT-6)

Posted 7/3/2019 6:07 PM (GMT 0)
What are your minor symptoms?

Is the sleep apnea obstructive or central or a mix of both?


Some people test positive and don’t have symptoms.. you can test positive and your immune system is keeping it at bay.

So that’s why clinical diagnosis is used.

May I ask - what promoted you to test if all you had going on was sleep apnea?
Did you have a known tick bite?

My husband tested positive after I did - he hasn’t been treated - highly functional, athletic, works in a very stressful work environment and is handling it all - including cheerleading to support his sick wife....so at this time he’s undecided if he will treat.
Concerns about waking the sleeping giant.
Posted 7/3/2019 6:11 PM (GMT 0)
I’m of the opinion that we can “have” these infections in our bodies and live in relative harmony with them if our immune system and other major systems are functioning normally. This would result in little to no symptoms.

It’s also possible you may have other symptoms you don’t recognize as such. Many of us have ignored symptoms for years or chalked them up to getting older until it got to the point we couldn’t ignore it any longer.

It’s also possible your sleep apnea is caused by something else.

You say positive results “now” for babesia and bartonella. Were you tested for those before and they were negative before? What lab?

Just trying to piece together the circumstances.
Posted 7/3/2019 6:19 PM (GMT 0)
Ahhh, I see you edited your initial post and it should have been sleep insomnia instead of sleep apnea.
Posted 7/3/2019 6:20 PM (GMT 0)
Oops sorry, edited my original post from *sleep apnea* to *sleep insomnia* as my major symptom, I just also happen to have a mild case of sleep apnea but this doesn’t correlate to the amount of awakenings I am having.

My minor symptoms may or may not even been lyme and co-infection related: I have chronic low back pain which initially started 13 years ago from a weight lifting accident so I have a herniated disc. I still have pain to this day but only from sitting for prolonged periods of time. I have excessive gas (almost 15 years). I have a cartilage defect in my right knee (5 years ago) which came out of nowhere. I have a hip labral tear (1 year ago) which came out of nowhere. Neck stiffness (10 years ago).
Posted 7/3/2019 7:23 PM (GMT 0)

Girlie said...
What are your minor symptoms?

Is the sleep apnea obstructive or central or a mix of both?


Some people test positive and don’t have symptoms.. you can test positive and your immune system is keeping it at bay.

So that’s why clinical diagnosis is used.

May I ask - what promoted you to test if all you had going on was sleep apnea?
Did you have a known tick bite?

My husband tested positive after I did - he hasn’t been treated - highly functional, athletic, works in a very stressful work environment and is handling it all - including cheerleading to support his sick wife....so at this time he’s undecided if he will treat.
Concerns about waking the sleeping giant.

I always had suspicion that it does not affect everyone bad. May be if the lyme test is mandatory check in Physical exam , millions would turn up positives. Then CDC will say dont worry about it affects only small population.
Posted 7/3/2019 7:26 PM (GMT 0)
Edit - I didn’t get to answer all of the questions:

I’ve been tested for bartonella many times through quest and labcorp but they always came back negative. I came back positive for babesia before through one of these labs but wasn’t convinced it was accurate. So most recently, I came back positive for babesia through Igenex and positive for bartonella henselae and quintana through galaxy labs.

Sleep apnea is obstructive, but only diagnosed as mild (there are three levels mild, moderate, or severe). I never had evidence of a tick bite.

I pushed my LLMD to get tested for babesia and bartonella because with my prior LLMD, their bioresonance machine picked these up as active infections.
Posted 7/3/2019 8:01 PM (GMT 0)

cppoly said...
Oops sorry, edited my original post from *sleep apnea* to *sleep insomnia* as my major symptom, I just also happen to have a mild case of sleep apnea but this doesn’t correlate to the amount of awakenings I am having.

My minor symptoms may or may not even been lyme and co-infection related: I have chronic low back pain which initially started 13 years ago from a weight lifting accident so I have a herniated disc. I still have pain to this day but only from sitting for prolonged periods of time. I have excessive gas (almost 15 years). I have a cartilage defect in my right knee (5 years ago) which came out of nowhere. I have a hip labral tear (1 year ago) which came out of nowhere. Neck stiffness (10 years ago).



The herniated disc causing pain - hard to blame lyme on it...since it happened from weight lifting.

The cartridge defect in knees, hip tear, neck stiffness - possibly.
Posted 7/3/2019 8:06 PM (GMT 0)

cppoly said...
Edit - I didn’t get to answer all of the questions:

I’ve been tested for bartonella many times through quest and labcorp but they always came back negative. I came back positive for babesia before through one of these labs but wasn’t convinced it was accurate. So most recently, I came back positive for babesia through Igenex and positive for bartonella henselae and quintana through galaxy labs.

Sleep apnea is obstructive, but only diagnosed as mild (there are three levels mild, moderate, or severe). I never had evidence of a tick bite.

I pushed my LLMD to get tested for babesia and bartonella because with my prior LLMD, their bioresonance machine picked these up as active infections.

Testing positive for babesia via igenex and bartonella through galaxy - I'd say you do have it.
LabCorp isn't a good lab to test for tick-borne diseases.

My sleep apnea is moderate...I should do another test since treatment and see how I fare.
Posted 7/4/2019 6:01 AM (GMT 0)

cppoly said...
Oops sorry, edited my original post from *sleep apnea* to *sleep insomnia* as my major symptom, I just also happen to have a mild case of sleep apnea but this doesn’t correlate to the amount of awakenings I am having.

My minor symptoms may or may not even been lyme and co-infection related: I have chronic low back pain which initially started 13 years ago from a weight lifting accident so I have a herniated disc. I still have pain to this day but only from sitting for prolonged periods of time. I have excessive gas (almost 15 years). I have a cartilage defect in my right knee (5 years ago) which came out of nowhere. I have a hip labral tear (1 year ago) which came out of nowhere. Neck stiffness (10 years ago).


You have classic symptoms of dysbiosis which is what Lyme and co-infections can cause. There is some metabolic dysfunction occurring in several biological pathways. For your sleep issues, that is most likely the result of nutritional deficiencies. It could be a deficit of lithium protecting the mitochondria, a deficit of glycine or taurine on the NDMA receptors, a reduction of tyrosine (see this in pain situations too) from the terminal end of Dynorphin A, or a number of other substrates in other reactions. If I had the answers, I'd tell you. I unfortunately can only tell you what is going wrong.
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