Food Reactions - Scared and Confused

This is horrible. I feel as horrified by MCAS as I did about Lyme and coinfections when I found out. 50-75%. Sounds like a death sentence.

Now that I am feeling all these things and reading about it, I think this is what I had when symptoms first started 10 years ago. I had strange tingling and tightening sensations in my skin and tissues, little hive bumps that would appear and disappear, and felt like I was having allergic reactions to unidentifiable things. Had food phobia for about 2 years after that, because I never knew what I was reacting to.

I was sent to an allergist at the time. He knew something was wrong but didn’t know what. He had me on all kinds of antihistamines, Singulair, and an abx. I took it for 2 weeks and quit most of it. I took Xyzal. I can’t remember if I stayed on that until I took them all or not. I think I may have. I had good and bad times on the Rx”s and off. I gradually got better as months went by but random symptoms occurred ever since and new ones appeared as the years went by.

I feel like I am back at square one again. The last few days I have wondered if I even have Lyme or coinfections or if I just have mold and MCAS. I feel confused about everything I previously thought. Even stuff that I used to remember well, like some of the Buhner info, I can barely remember anymore.

I don’t want to live like this. If gut pathogens and/or mold are causing the MCAS symptoms (which I am 99% sure is what is happening) I don’t think I will ever get rid of them. I haven’t been able to find a safe house to live in for 3 years. I have only gotten worse and never fixed my gut over the past 3 years. I just kept taking my little herb doses and tried not to think about the fact that nothing was really changing for the better all this time. Now I’m not only not better, I’m worse than I was 3 years ago. I fail at everything cause I’m afraid of everything.

This is very interesting. I just reread the chapter in the toxic book about mcas.
They get activated by by mold and bartonella that I both have.

My practitioner wanted me take a dao supplement because of my high mucus production and hay fever problemen. "This contains the enzyme to break down
histamines. It is helpful for IBS, hayfever and headaches induced by
histamine release."

I havent tried it yet but after reading about this dao and quercetin seems like good things to try.

My understanding is that you fix mcas by fixing the triggers, so bartonella and mold for me. But you need to work to quiet it down and stabilize it to be able to tolerate more treatments. Using mast cell stabilizer and experiment with low histamin diet.

Yes toxins seems to be a big reason.
From the toxic book
"Some of these granules contain preformed materials to initiate these signals quickly—the main ones being histamine, serotonin, and tryptase. While all of these mediators can be important, histamine is the most obvious in terms of what it can do to the body if inappropriately stimulated. So, when a mast cell is appropriately stimulated by a toxin or an infectious agent, it can immediately release some of these granules, which move quickly through the bloodstream to coordinate a proper immune response. However, when a person’s immune system is overloaded with toxins or infection and his or her personal biochemistry and genetics align to create a “perfect storm,” the mast cells become activated."

it could if you are exerting yourself too much. i find if i do enough exercise that makes my muscles or joints hurt sometimes i get inflamed and have the same symptoms as if i have had something wrong to eat. histamines and inflammation are linked.

perhaps some physical therapy is in order then, i had to do that for a while but i didn't make any progress however it is worth a shot. i don't know how to treat it honestly, i just have to wait for it to subside and remember not to exert myself , as soon as i get any hint of pain, i have to stop.