Should I continue Buhner’s

Hi there, treatment is often a marathon for established cases/infections. The encouraging thing is that you are improving some symptoms with this treatment, and the fact you are flaring others would hint that the antimicrobials are effective and targeting the infection.

Large scale improvement often takes time, and strategic rotation of therapeutics when plateaus are reached (when antimicrobial/s does not engender flare/ and or improvement). Slow and steady, and if flaring remains too strong I'd experiment with lower doses.

Sandy feet: how do u take the chit ISSN & the clay & charcoal. I did zeolite for a while, but those where hard times for me and Shoemaker insist CSM and welchol are the good ones for mold. How have u done with the bindersu take?

And for walking by faith and sandy feet: It looks like I was exposed at the end of 2014 in a rental community and my apt was remodeled, I could not see any mold, but I had an issue with water draining form bathtub under the carpet, I only stayed there 8mnths. I tested where I live, which is like 4 years old and with the 2 methods recommended, both came up good.
Thank you both for your comments.

My son who also has Lyme not related at all with mine, just bad luck, tells me that I should treat more the mold before the Lyme with Disulfiram, which he is going to use; but my question is, when do u know u have treated it? My symptoms have been the same with or without the binders. With the on and off, I have done like 6 months of CSM, not high quantities, but done it.

I had improvements in 2018. Labs in April 2018 showed a two fold increase in CD57 from baseline and declining titers for mycoplasma and chlamydia pneumonias. Had my first and only Neuroquant which scored 2 for mold and 1 for Lyme and stated it was not CIRS. (I believe CIRS is 4 and higher.). In September 2018, I had 2 weeks of feeling good and thought I was turning a corner. Then I started trying to treat parasites/babesia by experimenting with herbs and got worse again.

By December of last year, I felt a change and noticed both my mother and I were exhibiting more mold symptoms. I knew there had been some water incidences in the house, but they were resolved pretty quickly, although the water damaged materials were not replaced. We were living with relatives and had no control over the house anyway.

Finally, in May of this year, I had new labs done. My CD 57 had dropped to an all-time low, and my pneumonia titers had gone up again. I decided to cough up the money for a HERTSMI-2 re-test on the house. When we first moved there, the HERTSMI-2 was 4. This time, it was a jaw-dropping 18. I was shocked.

about a week after I got the results back, my relative discovered a leak under the kitchen sink. She had a plumber come fix the leak and replace a part, and she cleaned up the “mildew” in the cabinet. When I came home, I found out all this had occurred and went in to check on things. The kitchen cabinet doors were open and all the contents were out on the floor. I had immediate reactions and quickly realized I was having reactions everywhere in the house, not just the kitchen.

At that point the house became completely intolerable to me, and I had to leave. I also developed MCAS symptoms because of it.

How long ago did you test? Is it another apartment or a house?

Also, I have to say that I do not agree with Shoemaker regarding the HERTSMI-2 scores. He says 10 or less is statistically safe for re-entry. The moldy house I first got CIRS from had a HERTSMI-2 of 10 and office was 8. The relative’s house I moved to was 4, but I always had symptoms there.

The doctor who diagnosed me with CIRS said some very sensitive people need to be in an environment with an ERMI < 2. I believe it. I am super sensitive, even to tiny amounts of mold. If I walk in the kitchen and there’s bread or produce on the counter that is moldy or bruised, I feel physical pain and sometimes get extremely irritable or go into a rage. Once it gets to that point, my brain kicks in, and I realize what’s happening and start looking for the mold.