Steelogreens, "What is the herx like? Pain? More of the head pressure?"
for me, I guess I am lucky my herxs are low level with some exception. My low level herx is: plaque on teeth in the morning and a hangover feeling when waking up (I have had the similar "hangovers" on other treatments that cause die off, so it is not a side effect Disulfiram. Ivermectin treatment die off gave me "hang overs" ). During the day if I move my chin all the way up and
open my jaw, which stretches the skin directly under my jaw line, I can feel a slight swollen feeling on the left and right side of my neck about
2-3" below my ears -- so swollen lymp nodes.
I occasionally get tinnitus, sometimes for a day and a half during more intense herx. I usually have a headache and have a hard time sleeping if this happens -- sometimes, like two weeks ago, ended up stay up until 5am.
Then recently I have had bad back pains. I think this is due to die off of the infection in my spinal column. Years ago when my "doctors" refused to test or treat me for lyme this was my #1 problem, in 2015 and 2016. I could not bend over for a half a year. Recently I have been working out because I have feeling so good but I have stopped last week. I think I might have overdone it doing dead lifts and has something to do with my recent back pain, plus the die off. Usually 2 tablespoons of good quality Turmeric for 3 days usually makes it go away.
But overall I feel absolutely wonderful because I know I am making progress. The herx is a positive feedback loop that I am killing it so no matter how crappy I feel I tell myself I am one day going to feel absolutely. Now please take in consideration I had already done a heavy duty treatment for almost two years of antibiotics, antifungals, anti parasitic drugs, dozens of herbs daily, a lifestyle of fasting and exercise, and have been feeling about
"95%" since April. But I was encouraged here to try disulfiram to get from "95%" to fully remission -- as a "finishing drug".
Given the amount of herxes I think it is incredible how much lyme was still in my system while I thought I was at 95%. My body was still under attack. And thinking back, ... I think it might have been ridiculous to think I could have a "normal life" at "95%". Just today I had a herx on the low-level scale (hangover, lots of plaque, etc). Once 250mg a day no longer causes me to herx, I'll try 2x250mg every other day. Then finally 500mg a day. This is my current plan. Sunday will be end of week 4.
Post Edited (oregonhay) : 9/22/2019 1:17:56 PM (GMT-6)