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Australian looking for a USA-based LLMD.

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Lyme Disease
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Posted 11/7/2019 7:46 AM (GMT 0)
Hey guys,

I'm from Queensland, Australia. Some of you may know, but for those who don't Lyme is not regarded as real here and thus we have almost no domestic physicians willing to treat us because they risk losing their licenses.

My primary symptoms are those of babesiosis (shortness of breath, sweats, etc) with some myopericarditis and joint pain from borrelia thrown in. I am looking for a physician who treats babesia aggressively. I know American LLMDs are better than those we have here but preferably I'd like to see a physician of good repute who has successfully treated a good number of people. I am honestly not that ill anymore, I am not fatigued, do not get muscle aches or generalised symptoms of systemic inflammation and am generally a pretty mild case provided I live within my means. But I need someone who will throw a lot of different anti-babesial's at me to kick this for good. I like the look of Dr H's protocols from NY but apparently he's not accepting new patients. So if anyone knows of doctors treating as he does, or similarly, or just as aggressively, please don't hesitate to let me know. I hear there is a Dr J****k who is good as well?

Thank you, and to anyone really struggling, I was there once too. Now I'm a fraction as bad as I used to be, just a matter of getting over the line now.
Posted 11/7/2019 2:23 PM (GMT 0)
Dr. J has a very good reputation and has some good NP/PAs. I'm working with PA AW in Asheville, NC. She still works for Dr. J part time. She seems very knowledgeable and uses Dr. J's protocols.
Posted 11/7/2019 2:26 PM (GMT 0)
Where are you? There's an extremely prominent one in San Diego whose written a book and happens to be Australian right here in San Diego.

Feel free to email me if you want her info.
Posted 11/7/2019 3:58 PM (GMT 0)
@christian, I have heard great things about Dr J. I’ve seen a number of people report to have been cured by him and I’m a huge fan of his treatment philosophy which seems to be high dose antimicrobials. I saw somewhere he had a 95% success rate which amazes me. I know we really don’t hear from the vast majority of people who do get well and I really want to believe that figure. How long have you been ill and how would you rate yourself as a percentage currently? And how does he go price wise? I want to get it right first go because I don’t really have $10000+ to get it wrong going overseas and seeing a dud or getting the same treatments that have failed me here.

I can’t reiterate how close I am to well. I just don’t have access to a lot of drugs nor physicians who’ll treat aggressively here. I’m just very, very frustrated. Its been a long 3 years and I’ve put my life on hold to get well and this is kinda my last hoorah before I try and move on and just cope with my persistent symptoms whilst I wait for new drugs to be discovered.

@Eliz, just emailed you.

Thanks so much guys.
Posted 11/7/2019 4:17 PM (GMT 0)

benfast said...
@christian, I have heard great things about Dr J. I’ve seen a number of people report to have been cured by him and I’m a huge fan of his treatment philosophy which seems to be high dose antimicrobials. I saw somewhere he had a 95% success rate which amazes me. I know we really don’t hear from the vast majority of people who do get well and I really want to believe that figure. How long have you been ill and how would you rate yourself as a percentage currently? And how does he go price wise? I want to get it right first go because I don’t really have $10000+ to get it wrong going overseas and seeing a dud or getting the same treatments that have failed me here.

I can’t reiterate how close I am to well. I just don’t have access to a lot of drugs nor physicians who’ll treat aggressively here. I’m just very, very frustrated. Its been a long 3 years and I’ve put my life on hold to get well and this is kinda my last hoorah before I try and move on and just cope with my persistent symptoms whilst I wait for new drugs to be discovered.

@Eliz, just emailed you.

Thanks so much guys.

It can be frustrating. I am on my fourth doctor; well this one is a PA and certainly seems to be most knowledgeable about Lyme.

I can't speak too much for myself because I am just starting Dr. J's protocol (first week). Someone else may come along who has treated longer. I was sick with Lyme as a child but "recovered" and symptoms started again in 2010 when I was about 26. Have used ABX with another doctor and went from hardly functioning to improving maybe 40% in about 4 months which was very big progress for me because of how sick I had been. I relapsed when I believe ABX were ended prematurely but am not as sick as I was. So, can't comment too much on Dr. J protocol because just starting but do think it is a good protocol and have heard great feedback about it.

As for price, not sure about Dr. J but I see one of his PAs in Asheville and a comprehensive first appointment was $450. Had to pay for some bloodwork also. Can do phone appointments from a distance. A followup phone appointment for 1/2 hour is $105. If things go well, once you get started, you may only have to have an appointment every 4-5 months. I guess it can depend on your situation. I think things are similar in DC, but have heard that prices are a bit higher.

Glad you're not extremely sick and hope you can get some help.
Posted 11/7/2019 4:56 PM (GMT 0)
Hi benfast

I travel from west coast Canada to the Jemsek clinic
I’ve been going there since Feb 2018 after treating locally for over 3 years. Here on west coast Canada we don’t have MD’s to treat it - so I was treated with a LLND who prescribed abx - I plateaued and he wasn’t able to help me anymore pharmaceutically because ND’s aren’t licensed to prescribe the anti malarials to treat Babesia.
(He did prescribe abx for Lyme and bart though)
I have improved some since going to the clinic but still have a few stubborn symptoms. I have a stubborn Bartonella infection - most likely from childhood.


I think Dr J having 95% success is lofty - I think I read it’s more like 80%. BUT people don’t always stick with the program and stop before they’re well. So he says his success rate would be higher if people didn’t quit.

As far as travel - my first year (2018) I travelled in Feb, and August.
I had phone appts in April and December.

This year I travelled there once in March and had a phone appt in September.
I travel again next year in March - my appts are 6 months apart now and every other one is a phone appt. so I now travel once a year.

One thing that you need to look into is getting your prescriptions filled.

Send me an email for the clinic info and I’ll fill you in on the appt costs and other info.

I feel if anyone can get me well - it’s Dr J -

Forgot to mention - Dr J starts off with aggressive Babesia treatment as he says Babesia is the one that needs to be dealt with first. (lyme is treated concurrently)
Posted 11/7/2019 5:07 PM (GMT 0)
Here’s a video of an interview with DrJ in his approach - it’s long - gives you an idea of his approach

https://m.youtube.com/watch?v=wde0l-5ykvi
Posted 11/7/2019 5:35 PM (GMT 0)
Girlie! Thank you so much. Emailing you now.
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