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Posted 11/18/2019 3:52 AM (GMT 0)
When I did my urine test for mycotoxins, I was already on chlorella and garlicin for over a month. I've been reading that having mycotoxins in urine is actually a good thing because it means we're able to detox. My test was quite high for ochratoxin A, gliotoxin, zearalolone, and mycophenolic acid. So now I'm wondering if my test was high because I had already been detoxing for a while. A phD in fungi who I spoke with said she believes they come from food.and she questions the urine test.

And today I found this from another PhD.

http://www.mold-toxins.com/assets/Urine%20Testing%20for%20Mycotoxins%20-%20Junk%20Science%20or%20Not%202-22-15.pdf

I'm confused about whether my symptoms which I've blamed on bart are due to bart or mold.since chlorella and garlicin are good at knocking out bacteria too. I'm not saying I'm denying I have mold in me though.

Bryan Rossner is taking this quite seriously

.https://preview.mailerlite.com/d9a1i0/1291585652076320442/l7n9/
Posted 11/18/2019 2:01 PM (GMT 0)
Interestingly, I was treating lyme but was still getting worse and worse attributing it to bart. Then one day after spending an afternoon outdoors it hit me. It was in fact mold. This realization was a huge step (the biggest probably) in moving forward in my treatment.

I can't comment on presence of mycotoxins in urine in healthy vs sick people, I know with very sick patients some doctors start glutathione/sauna/binders prior testing in order for mycotoxins to show up in urine at all. So I think one month of chlorella could help bring the toxins out.
I am not sure what happens with healthy individuals, do they excrete mycotoxins through colon? Because that's what we're unable to do, we constantly recycle them and cholestyramine and other binders help us do just that.

I think there is a consensus that high levels of mycotoxins in the body are primarily caused by exposure to mold in water damaged buildings, although mold in food certainly aggravates the situation and should be avoided once you are already sick.
Thank you for the links, I will check them out as I believe more and more it's impossible to be fully healthy in a climate that favours mold "flourishment".
Here is a good article clarifying some things about mold and lyme https://www.treatlyme.net/guide/mold-toxin-illness-lyme-toxin and dr Neil Nathan's book Toxic is also a great resource.
Posted 11/18/2019 2:51 PM (GMT 0)
I had been taking charcoal for a couple months or so before I did my urine test. I also took a dose of glutathione the night before I did the test. My symptoms greatly improved with Lyme treatment. That's one reason why I'm not yet sure if any of my symptoms come from mold.
Posted 11/18/2019 5:24 PM (GMT 0)
Not sure that I would attribute your positive mold test to garlic and cholrella

What symptoms were you guys having that were up for grabs being mold , lyme, Bart? My level was:
Ochacratin A was 15. 6 ( Great Plains)

My current symptoms:
Anxiety depression especially in am
Breathlessness
fatigue
Nausea/ belching
Slight motion sick feeling ( stand on outsides of feet all day- weird)
Inner vibrations
Numb cheek( thinking that's Lyme)

I only know I have Lyme and mold. Since treating lyme with herbs I still have these symptoms.

Started charcoal two days ago? I don't know how much to take or how often.
Do you motice anything on charcoal? How often are you taking it?

Do you still feel like you are being exposed? I do. In same old cabin style house. I don't see it but the whole house is covered in moss. Feel trapped hoping charcoal helps but it feels so igsignificant to all my agony with this disease. Like I'm hoping charcoal once a day is going to save me.
.
Posted 11/18/2019 7:22 PM (GMT 0)
Here are some of my current symptoms. They can rotate or come and go. Are yours constant? Lyme and co symptoms seem to rotate, come and go, or flare. I've heard that mold symptoms tend to stay constant.

Dizzy, Feelings of off balance, foggy brain, very difficult to think,
Nerve numbness, tingling, and other sensations in limbs, face, sides, and pelvic area
Spasms in pelvic area and light hip pain or ache
Severely smell and activity intolerant (symptoms seem to increase in smells)
Have had air hunger and still have what I would call minor breathing issues
Harder/higher heartrate
Hot/cold spells
Fatigue
Stiff (sometimes sore) neck, tense
Warm, shooting sensations in various parts of body
Antsy, not able to relax well
Nausea (minor)
Minor itchiness here and there
Sore areas or light pain in trunk area
Sensitive to touch on part of back

These symptoms all improved or even disappeared when I treated with ABX awhile back, but I relapsed about a month after being taken off the ABX. Thinking because of how my symptoms "act" and how I responded to ABX that most of my symptoms are Lyme and co. I don't know of any significant mold exposure at this time.
Posted 11/18/2019 7:24 PM (GMT 0)

Lightlife said...
Not sure that I would attribute your positive mold test to garlic and cholrella

What symptoms were you guys having that were up for grabs being mold , lyme, Bart? My level was:
Ochacratin A was 15. 6 ( Great Plains)

My current symptoms:
Anxiety depression especially in am
Breathlessness
fatigue
Nausea/ belching
Slight motion sick feeling ( stand on outsides of feet all day- weird)
Inner vibrations
Numb cheek( thinking that's Lyme)

I only know I have Lyme and mold. Since treating lyme with herbs I still have these symptoms.

Started charcoal two days ago? I don't know how much to take or how often.
Do you motice anything on charcoal? How often are you taking it?

Do you still feel like you are being exposed? I do. In same old cabin style house. I don't see it but the whole house is covered in moss. Feel trapped hoping charcoal helps but it feels so igsignificant to all my agony with this disease. Like I'm hoping charcoal once a day is going to save me.
.

Have you treated for Bartonella or Babesia?

I've had an inner trembly feeling but think again because of response to Lyme treatment that it is caused by infections. There are quite a few symptoms that could be either infections or mold like Numbness, tingling, foggy brain, fatigue, electrical zaps.

I take about 1 tsp. charcoal usually once a day (during the night). I think it helps take the Lyme toxins out when I'm on ABX but don't feel any improvement with charcoal when not treating the Lyme that I can tell. You might want to try some treatments for co-infections also.

Post Edited (ChristianWithLyme) : 11/18/2019 12:34:39 PM (GMT-7)

Posted 11/18/2019 7:31 PM (GMT 0)

ChristianWithLyme said...
Here are some of my current symptoms. They can rotate or come and go. Are yours constant? Lyme and co symptoms seem to rotate, come and go, or flare. I've heard that mold symptoms tend to stay constant.

Dizzy, Feelings of off balance, foggy brain, very difficult to think,
Nerve numbness, tingling, and other sensations in limbs, face, sides, and pelvic area
Spasms in pelvic area and light hip pain or ache
Severely smell and activity intolerant (symptoms seem to increase in smells)
Have had air hunger and still have what I would call minor breathing issues
Harder/higher heartrate
Hot/cold spells
Fatigue
Stiff (sometimes sore) neck, tense
Warm, shooting sensations in various parts of body
Antsy, not able to relax well
Nausea (minor)
Minor itchiness here and there
Sore areas or light pain in trunk area
Sensitive to touch on part of back

These symptoms all improved or even disappeared when I treated with ABX awhile back, but I relapsed about a month after being taken off the ABX. Thinking because of how my symptoms "act" and how I responded to ABX that most of my symptoms are Lyme and co. I don't know of any significant mold exposure at this time.

These sound so much like my symptoms. :/ I hope that I am not living in mold again. I know I have to test though. I am afraid of cross-contamination from an apartment that my stuff stayed at for 7 days. It had terrible mold. Black mold actually. So I feel like I am doomed. lol
Posted 11/18/2019 9:30 PM (GMT 0)
Thanks for that.
Several of our symptoms match up.

That yours went away with antibiotics is sort of telling, maybe.

Were they Lyme specific antibiotics or coinfection?
"Toxic" notes the bartonella / mold similarities.,..
Posted 11/18/2019 10:08 PM (GMT 0)
I did the Weigman protocol for two months (Minocycline, Tinidazole, and Ivermectin pulsed), then Rifampin and Nutricology Tribiotics for two months, so I guess you would say I hit a bit of all three - Lyme, bartonella, and babesia, more bartonella and Lyme I guess. Doctor had me off of ABX after that four months (even though still improving), I think she thought my remaining symptoms were just mold, but I relapsed after about a month off of the ABX. I've just started Dr. J's ABX protocol with a PA and think I'm beginning to see some improvement again.

I think Neuro Lyme may give some similar symptoms to mold also.
Posted 11/19/2019 10:03 AM (GMT 0)

Lightlife said...


Do you still feel like you are being exposed? I do. In same old cabin style house. I don't see it but the whole house is covered in moss. Feel trapped hoping charcoal helps but it feels so igsignificant to all my agony with this disease. Like I'm hoping charcoal once a day is going to save me.
.


With mold eliminating exposure is the key. If you feel you are being exposed is there a way for you to move from that house, or remediate? This would be crucial.
I had all of your symptoms with mold (and many more) apart from the numb cheek, but I'd get numb limbs.
I don't herx when I take charcoal, but hopefully it is doing something. It depletes minerals too, magnesium should be supplemented I think.
Posted 11/20/2019 1:19 AM (GMT 0)
I forgot to mention that besides the chlorella and garlicin, I was also on activated charcoal. off and also on oreganol drops during tthat month..

I would love to know what healthy people's urine tests are like. It might mention that in one of those articles but don't remember.

My symptoms are anxiety (but I'm also high histamine and glutamate by genetic testing), headache in back of head, sometimes stiff neck, and pain wherever I've had it for reasons other than lyme--like osteoarthritis in hip, toes I shamsed and had healed long ago, teeth from a bad bite.etc. When the pain hits all places at once I'd say it's a 9 on the scale.sometimes.

I don't have any stomach issues. I have sinus drainage but no pain there. Have been using sovereign silver by nasal spray starting. recently.

When I started the liposomal glutathion about two weeks ago, I felt a lot of drainage down back of throat and got a temp of 101.4 and horrific body aches.. Went to Urgent Care cuz thought it was flu, but when I told my LLND and I stopped it I was fine in a day. So I think the glutathione plus the other things were kicking something out of me.
Posted 11/20/2019 2:22 AM (GMT 0)
I can't move that fast and am not remediating. Too vast and complex.

I would move more aggressively if I knew that was going to help but I'm not confident that mold is my main prob. I suspect it may be based on the test/ symptoms but there's also uncertainty.

Like karissa I wonder about healthy peoples levels. ( My natro did say she's seen the test scores drop after treatment so there is evidence treatment works as far as test results and I guess symptom reduction. )

Still looking for some sort of evidence that mold is def driving my symptoms. I'm suspecting everything.

Maybe my lyme treatment needs changed...
Maybe I have Bart or another coinfection on top of Lyme that is causing these issues.
Maybe the mercury fillings...
Was hoping to react in some way ( improve) to charcoal that it was clear it was mold.
I'm sure treating all of the above is my only hope. Just wish it was less guess work.
Posted 11/20/2019 3:51 AM (GMT 0)
Do you feel better out of your house Lightlife? I'm trying to pay attention to this.

DNA Connexions test would tell you if you have bart. That test confirmed it for me. It is an expensive out of pocket test though.

The VCS test is a way to follow your progress.It's $10 per time and you can take it online on Shoemaker's Surviiving Mold site. My score did improve after a month on supplements, although it might be due to the fact that I took it the first time on laptop and second on cell. Since lyme affects vision too it's not for sure poor visual acuity is due to lyme or mold.
Posted 11/20/2019 11:50 AM (GMT 0)

Korissa said...

I would love to know what healthy people's urine tests are like.

I am guessing if a healthy person took a urine mycotoxin test the values would be bellow the "common range of positive results" or zero. They excrete them from the body so there's no time for them to build up and cause trouble.
Posted 11/20/2019 3:05 PM (GMT 0)

Lightlife said...
I can't move that fast and am not remediating. Too vast and complex.

I would move more aggressively if I knew that was going to help but I'm not confident that mold is my main prob. I suspect it may be based on the test/ symptoms but there's also uncertainty.

Like karissa I wonder about healthy peoples levels. ( My natro did say she's seen the test scores drop after treatment so there is evidence treatment works as far as test results and I guess symptom reduction. )

Still looking for some sort of evidence that mold is def driving my symptoms. I'm suspecting everything.

Maybe my lyme treatment needs changed...
Maybe I have Bart or another coinfection on top of Lyme that is causing these issues.
Maybe the mercury fillings...
Was hoping to react in some way ( improve) to charcoal that it was clear it was mold.
I'm sure treating all of the above is my only hope. Just wish it was less guess work.

Would like to know what my parent's levels are! They live in the same house.

I believe it's said that you don't usually have just Lyme alone. Most people pick up one or more co-infections with it. You could try treating Bart first maybe? Like use some Bart herbs?
Posted 11/20/2019 3:37 PM (GMT 0)
Going to challange with A Bart and maybe try different lyme treatment herbs.

And will continue with charcoal.
Going out of house for several wks so will see. home I'm visiting not sure completely mold free

( with this stuff there's always a but or a maybe this or possibly that)

Korrissa- So do high histamine level cause anxiety? That's one of my main issues at moment.

Got so bummed reading up on the Bryan rossner story. I saw u mentioned it and the name sounded familiar...
Wow. Makes you feel totally trapped in your environment and like your only option may be to move you and family to desert.
Seriously depressing when that guy seemed to write books with answers then the answer he finally comes to is uproot. I mean good for him it's helping but crap not good for the rest of us who can't move to another state. It's hard enough moving to another house.

Post Edited (Lightlife) : 11/20/2019 9:28:36 AM (GMT-7)

Posted 11/21/2019 3:47 AM (GMT 0)
I was curious about the moss and found it's a plant and not a mold.so maybe you can rest a little easier Lightlife? unless it harbors mold?

And high histamine can cause anxiety.
Posted 11/22/2019 6:02 PM (GMT 0)
Hi.
So I had a phone consult with my natropath. She was feeling like I need to move due to mold.

My prob with this is...
That's assuming I have no Lyme symptoms and my 12 herbal pills are taking care of those. And I went almost a year with no Lyme treatment until four weeks ago.
And that my symptoms are not due to coinfections.

I do understand that Moving and eliminating possible mold exposure may be helpful ( possibly very helpful) and if not move progress is hindered.

I just don't want to uproot my family in a stressed out hurry if and have the same symptoms in new place. Teasing out the cause is hard.

Also what if the mold is regional airborne. ***

Someone mentioned a good Bart test. Good but not definite?!

For now, I plan on challenging Bart with A- Bart
Then trying different Byron white lyme formula to see if I'm just not hitting lyme.

It's just that if my green dragon caps takes care of Lyme we would all be that much better so easily.

Nobody really knows what we are feeling or going through. I mean the doctors.

Feeling out of breath and tired. Packing for a week out of town. In laws house here I come. I've seen mold there last summer ... so not a good trail.

Take care fellow warriors.

Ps. Someone said. Lyme symptoms come and go but mold lingers.

My symptoms do both. Come and go. Am anxiety/ dep. afternoon fatigue. Could be anything right?! Then days like this of all day malaise.

Sigh.
Oh and the moss just tells me wood under is holding moisture. I'm assuming water damage wood on outside may seep through.
Pss
Prof who test ticks at umass says ticks aren't showing with Bart. I think it's more like a dormant infection in many that rears up.

I apologize for the length whomever reads.

Post Edited (Lightlife) : 11/22/2019 11:09:48 AM (GMT-7)

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