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Neuropathy or Bartonella/Lyme?

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Posted 11/27/2019 10:59 AM (GMT 0)
Hi all,

I've had lyme, bartonella and babesia close to 15 years now. Started the Buhner last week. Did one week of JK (Green Dragon), 500mg - 4 caps a day. Did not notice any difference really. This week I started Cat's Claw, Made capsules (Size 00) from powder - 2 caps a day. I have suffered with burning pains in my legs for about a year or so.

After starting the protocol I think it all increased. More intense burning/warm/pressure/aching/tingling feelings in my feet, toes, legs, ankles, knees and thighs. Also on my upper hands, wrists, fingers, forearms and upper arms. Face too actually. The only time i seem to have some relief from legpains is when i stand up and walk or train. Some stabbing sensations and electrical shock pains have also increased since starting.

Last year I did a 4 abx protocol and my kneepains immediatly increased. Had to stop though after 3 weeks due to yeast overgrowth. Did not continue abx after this. I have a feeling that my legpains can be due to bartonella, but I'm also wondering if it could be neuropathy (but honestly not sure what the symptoms are for this).

I have no trouble bending my knees, wrists or fingers what so ever. about six months ago I did an Electromyography (EMG) that records electrical activity in muscles to detect nerve damage. There were no signs of nerve damage or muscle weakness. I don't feel weak at all, so this I believe. But not sure how good this test is to detect nerve damage.

Should I be worried about neuropathy? Or is my legpains related to bartonella, or herx reactions maybe?
Continue the protocol and keep adding in a new herb every week or so?

Also any meds or herbs that can give some relief while treating?

Any thoughts?

Thanks!

Tommy
Posted 11/27/2019 11:42 AM (GMT 0)
I'm not at all sensitive to touch either..
Posted 11/27/2019 1:06 PM (GMT 0)

UnsightlyCignet☄️ said...
Here's a list of all the symptoms each coinfection can cause:

https://drive.google.com/file/d/1d0c0smte9jifrki4kxbmxovld7m5ljnu/view?usp=sharing

It sounds like neuropathy, but could be borrelia, bart or a herx. I don't know where to start lol.#

However, there are herbs that work against this kind of stuff, Chinese Cat's Claw aka Gou Teng aka Uncaria Rhynchophylla works as a neuroprotectant.

Another herb is Lion's Mane mushroom. Both of them repair neurological structures.

Cat's claw (uncaria tormentosa) is an immune stimulant. So it might be an autoimmune issue as well. Have you tried seeing which herbs aggravate it and making a note on that?

Thanks for this!

Yeah, it's really hard to tell what it can be. But neuropathy would be nervedamage, right? Thought maybe that would show on my EMG test..

Chinese Cat's claw is going to be my next herb. Adding from next week. Will definately try out Lion's mane.

I'm only on 2 different herbs so far (JK and Cat's Claw), so it's hard to tell which one aggravates it. I really didn't feel any difference after one week of JK alone, so I'm guessing it's the Cat's claw as it started after this herb.

Any suggestions on how to continue? Keep going with JK and Cat's Claw and see what happens when I add in Lion's mane and Gou Teng perhaps?

I've had the pains for a long time, only that I can tell one of the 2 herbs is making it worse...
Posted 11/27/2019 1:53 PM (GMT 0)

UnsightlyCignet☄️ said...
If the're both working, keep going with it. The Chinese Cat's claw should protect the nerves from any damage.

If the tests didn't say anything regarding nerve conduction I'm not sure that can be relied on if you're still having symptoms as well. I'm no doctor though and have very little experience. Healthcare in the UK is pretty terrible in all honesty, especially for those of us with lyme.

Apparently polyphenols can worsen neuropathy, do you take anything like quercetin as well?

I think they're working and seems that they're doing it's job, but the reactions is quite severe, so may be wise to back down on my dose perhaps..

Haven't been using quercetin for a long time, I might start using it again. Should be great for lowering inflammation, right?
Posted 11/28/2019 2:23 PM (GMT 0)
RJD76, I've been struggling with Bartonella for a long time too. Yes it cause pain my legs and groin.

It can also cause weakness. I've been dealing with that, just gotten over a two mos bout of this.

Yes, there is Gou Teng and Salvia Militorrhiza. This has been a wonderful (well rough herxes) herb for Bartonella.

Thanks to another member on here!
Posted 11/30/2019 4:57 AM (GMT 0)
I’m newer to this forum, but I just had an EMG done a few days ago myself. I was diagnosed with small fiber neuropathy. My neuro had discussed with me that the test was normal because EMGs test the larger/major nerves—not the small nerves controlling the temperature regulation and electric pains.
Posted 11/30/2019 3:24 PM (GMT 0)
I think a lot of people with Lyme and co-infections have some degree of neuropathy. It's a troubling symptom, but it's part of the whole awful Lyme soup. Your pain sounds like neuropathy caused by tick-borne infections. A lot of people go through a lot of testing to find out that they have it, but personally I would spend my time and money treating Lyme, immune dysfunction, and overall neurological health. Lion's mane is supposed to be very helpful, along with alpha-lipoic acid and cinnamon. CBD also helps a lot. I have had some luck with arnica, curcumin, and essential oils as well.

Has anyone with neuropathy caused by tick-borne infections had any allopathic treatment specifically for neuropathy that has been helpful?
Posted 11/30/2019 11:05 PM (GMT 0)

RJD76 said...
Hi all,

I've had lyme, bartonella and babesia close to 15 years now. Started the Buhner last week. Did one week of JK (Green Dragon), 500mg - 4 caps a day. Did not notice any difference really. This week I started Cat's Claw, Made capsules (Size 00) from powder - 2 caps a day. I have suffered with burning pains in my legs for about a year or so.

After starting the protocol I think it all increased. More intense burning/warm/pressure/aching/tingling feelings in my feet, toes, legs, ankles, knees and thighs. Also on my upper hands, wrists, fingers, forearms and upper arms. Face too actually. The only time i seem to have some relief from legpains is when i stand up and walk or train. Some stabbing sensations and electrical shock pains have also increased since starting.

Last year I did a 4 abx protocol and my kneepains immediatly increased. Had to stop though after 3 weeks due to yeast overgrowth. Did not continue abx after this. I have a feeling that my legpains can be due to bartonella, but I'm also wondering if it could be neuropathy (but honestly not sure what the symptoms are for this).

I have no trouble bending my knees, wrists or fingers what so ever. about six months ago I did an Electromyography (EMG) that records electrical activity in muscles to detect nerve damage. There were no signs of nerve damage or muscle weakness. I don't feel weak at all, so this I believe. But not sure how good this test is to detect nerve damage.

Should I be worried about neuropathy? Or is my legpains related to bartonella, or herx reactions maybe?
Continue the protocol and keep adding in a new herb every week or so?

Also any meds or herbs that can give some relief while treating?

Any thoughts?

Thanks!

Tommy

Have you tried cistus incanus tea?
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