Yup. I kinda seperate the cases into 3 categories:
1.) You have an active infection of lyme. You got myocarditis, or bells palsy, or lyme arthritis/knee swelling. Sure, you clearly have an active infection and antibiotics are the solution. Maybe a differentiating clue is these situations tend to affect only one or two organ systems?
2.) You had an active infection, you responded to antibiotics, but your body is shot from being sick and youre left with a situation that more resembles autoimmunity/MCAS/autoinflammation because your immune/digestive/endocrine/nervous systems are all trashed. I saw someone mention that he wishes he treated with herbs, fasting, diet changes, exercise, and that makes sense to me.
3.) You developed autoimmunity another way and it resembles lyme.
I was reading a paper by Annie Oaklander the big autoimmune neuropathy researcher. She was saying in Sjogrens pretty much everyone has muscle pain. They all have fatigue. Digestion issues are common. But the kicker for me was 100% of the patients she treated had neuropsyche issues, which we normally attribute to lyme. 100%. She went and did an MRI and most of them showed frontal lobe or hippocampal volume loss (as we normally think is the footprint for neurolyme on an MRI). This is the exact footprint of lyme. Yet there it is in Sjogrens, showing these things are basically the same thing with just a different name.
I had a rheumatologist diagnose me as having an "undifferentiated connective tissue disease". I also had a neurologist tell me i have autoimmune lyme. He mentioned lyme can "mimic connective tissue diseases". Is it mimic'ing them, or is this just a semantics game? Maybe its that autoimmunity can take so many forms, and there are so many causes, only one of which is lyme.
I dunno I'm just spitballin here, maybe i test positive for bartonella or the biaxin works and i change my mind. Dont think anyone really knows.
Post Edited (dcd2103) : 1/9/2020 10:20:25 AM (GMT-7)