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Posted 1/16/2020 1:18 PM (GMT 0)
Hi All,

I have an first appointment coming up with Dr SP's Nurse Practitioner is Wilton CT next week. I'm really scared to start antibiotics because I usually react to all things pharmaceutical, and many things supplement/herb, too.

I'm second guessing my choice (the wait to see Dr SP himself is until June 2020) - and came across a post on here mentioning Lyme Mexico and Dr O.M. Has anyone been there or know folks who have gone? What have been the results? I've tried to find independent reviews online and can't come up with much.

Thank you!!
Posted 1/16/2020 3:43 PM (GMT 0)
Finding independent reviews about any of the treatment centers is extremely difficult, as far as I can tell. I think people just go as a leap of faith.

I react to many things as well. Some of us react strongly because of issues that tend to occur alongside Lyme, like MCAS, mycotoxin illness, gut dysbiosis, and multiple chemical sensitivities. Any chance you are dealing with any of those, or anything similar? If so, then a good Lyme treatment provider should know that stabilizing you in those ways first will enable you to handle antimicrobial treatment better. Definitely mention your concerns.

I rarely see a doctor who takes me seriously when I say that I react strongly and don't tolerate most ingested treatment. They nod and murmur that all Lyme patients are "sensitive" and then proceed to recommend whatever it is they like to recommend, all at the same time, all at full doses. It was a huge deal (and a huge help) for me to read Neil Nathan's book Toxic, which breaks down where to start for people like me. I read other people's protocols and marvel - I think I literally would die if I used the protocols many people seem to handle with just a little transient herx here and there! I'm in a jaded place today, but I'm just saying that I hear you about sensitivity, and that it's okay to insist that your concerns be addressed. Not sure about pharma, but with herbal treatment there is no downside to starting with one thing at a time at a minimal dose, and working your way up slowly. It's your body, and you know when it has more than it can handle.
Posted 1/16/2020 3:44 PM (GMT 0)
I have hermsii, too! I never see anyone mention that, but it was my first positive test.
Posted 1/16/2020 8:41 PM (GMT 0)
Hi Saraeli,

Thank you for your reply. I definitely have all of the above to complicate treatment: MCAS, mycotoxin illness, gut dysbiosis, and multiple chemical sensitivities. I will mention it to the new lyme Doc. I've had Drs in the past who recognize these things (my previous LLND), but they didn't have much success "stabilizing" them so to speak. I took what they recommended and it did not seem to help. My diet is very restricted and that has done the most towards stabilization. Some respected Docs (Cleveland Clinic Functional Medicine) said I couldn't expect those things to improve until I'd treated Lyme more aggressively. I will definitely look into reading that book.

I am specifically looking for anyone's experience at LymeMexico?

Thank you!
Posted 1/16/2020 11:23 PM (GMT 0)
Not sure if you've done a search on this forum for testimonials.


Here's one thread:

https://www.healingwell.com/community/default.aspx?f=30&m=3919109
Posted 1/17/2020 12:50 AM (GMT 0)
Thank you Girlie, yes I looked on the forum and read that thread. No one on there had been to Lyme Mexico, only maybe met Dr O.M., at the time of that thread. Thank you!
Posted 1/22/2020 1:54 AM (GMT 0)
I've been There are really good things about it and some problematical things. It is very important to have a companion with you to help with everything, being in Mexico while being ill is not easy. ?The treatment itself is very good, but it does last all day. So you don't have much time to do other things, which is why I recomend having someone with you. Also try to find a place close to the center, that will also make things easier.You can email me if you have more specific questions. And, as nice as it might sound to be near the ocean, it is really too far from the clinic
Posted 1/22/2020 2:09 AM (GMT 0)
Hi Sheilapro60,

Thank you so much for replying! Yes I would love to email you more questions about your experience - FYI your email address is unavailable on your profile.
Posted 1/22/2020 2:49 AM (GMT 0)
Hi ...
I'm thinking of contacting This dr. Sp for apt.
Wondering how it went? Have you heard good things?

I
Posted 1/27/2020 5:34 PM (GMT 0)
Hi Sheilapro60,

I have a call coming up with Dr Morales on Thursday this week. I would really love to hear more about your experience. Can you please make your email available on your profile, or drop me an email? My email is in my profile, thanks!
Posted 1/27/2020 5:38 PM (GMT 0)
Hi Lightlife,

My appointment was a couple days after your post, so I couldn't reply right away smile

I saw Dr SP's Nurse Practitioner (one, he works with two) her initials are CD. The wait to see him was about 6 months out. The wait to see her was about 7 weeks. I have heard good things about his practice on this board, yes, that's why I went. I liked her manner, and her listening skills. The proof will be in the pudding.. as they say. She said (correctly) that I haven't tried much antibiotic treatment, mostly natural up to this point, and that it was worth a try to see if it could help me. She thinks I may have Bart so we're testing for that. She said it will take a while to see noticeable results as antibiotic response is a trial and error thing with each patient.

I recommend searching the forum for Dr SP and/or Wilton (his location) and you'll find more info from other folks. I'm a newbie with him.

Good luck!!
Posted 1/27/2020 6:22 PM (GMT 0)
Thanks so much for the update. I hope the treatment works wonders for you. Please keep us updated.

Your response was just in time.
I give myself the goal of moving forward each day in five ways. And investigating SP is on my list for today.

What test do they do for Bart?

Did she place much thought on mold?

Did they mention testing mthfr?
Posted 1/27/2020 7:54 PM (GMT 0)
Galaxy for Bart.

We did not discuss mold that I remember. I asked the office about that prior to making the appointment and I was told they don't treat that specifically. I think Lyme is the bigger issue for me. I have treated mold with prior Drs without result over the last 1 year +.

We didn't discuss mthfr. I'm discussing issues like that with my new General Practice Dr.

Thank you for your good wishes!
Posted 1/27/2020 8:39 PM (GMT 0)
You should be in very good hands with any of SP's staff. I'm sure that if your treatment plan become more complex than the NP can handle SP will be advising them and step in as needed.
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