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advice on long term anti biotics

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Posted 2/21/2020 10:17 AM (GMT 0)
Hello,

I'm on my first round of doxy 400mg - though since found out from this forum and another book minocycline is the next gen doxy and better to take.

I've got herbs ordered buhners p and diet underway but I need to make a plan for the anti-b's as docs in the uk are useless. is there a comparable book for anti b's?

I got the tick bite end of July so thinking it could be 6 months of anti b at least now. till symptoms are gone.

but I am looking for the info on what to take when.

from one book Julia Greenspan - rising above Lyme disease it suggests
spiral form - most susceptible to tetracycline meds
l form - treatable with cephalosporins and penicillins
cycst form - flatly, tindamaz or alinia

but no further info on a programme and any advice/ comments/ book suggests would be appreciated. if I could find a recommended 6 month programme - do I also need to keep getting tested along the way?

pretty new to this so steep learning curve appreciate any feedback

thank you
Posted 2/21/2020 11:38 AM (GMT 0)
could this help? it's such a mindfield....

1 month of minocyclin 100mg 1x daily.

1 month of minocyclin 100mg 2x daily and azithromycin 250mg 1x daily.

1 month of minocyclin 100mg 2x daily and azithromycin 250mg 1x daily and 300mg rifampin 2x daily.

1 month of minocyclin 100mg 2x daily and azithromycin 250mg 1x daily and 600mg rifampin 2x daily.

6 months of minocyclin 100mg 2x daily and azithromycin 250mg 1x daily and 750mg rifampin 2x daily.
Posted 2/21/2020 2:05 PM (GMT 0)
thanks so much. that's really helpful. could be a breakthrough!

do u take breaks in between the courses of antibiotics?

yes totally agree and the NHS don't even see it as a problem just refer to the nice guidelines which are totally ineffective. I've figured out the herbs and diet so now just need to figure out the antibiotics and become my own doctor! it's mad but hey better than one course of antibiotics only . thanks I'm 6 months in so feel I can do it I am lucky in that respect. and that I found this forum - it's been the best advice so far
Posted 2/21/2020 3:19 PM (GMT 0)
thank u already underway with the probiotics and my herbal meds pack just arrived.
Posted 2/21/2020 4:05 PM (GMT 0)

Cignet said...
The only thing that will make me stop using antibiotics is an elevation in liver enzymes.

So you're no longer worried about sleep disruption and seizures?

Whenever I got diarrhea and suspected c.diff, depakote always got rid of it for me. Some people claim that disulfiram kills it too, which is kinda amazing since very little else will.
Posted 2/22/2020 10:04 AM (GMT 0)

intheuk said...
Hello,

I'm on my first round of doxy 400mg - though since found out from this forum and another book minocycline is the next gen doxy and better to take.

I've got herbs ordered buhners p and diet underway but I need to make a plan for the anti-b's as docs in the uk are useless. is there a comparable book for anti b's?

I got the tick bite end of July so thinking it could be 6 months of anti b at least now. till symptoms are gone.

but I am looking for the info on what to take when.

from one book Julia Greenspan - rising above Lyme disease it suggests
spiral form - most susceptible to tetracycline meds
l form - treatable with cephalosporins and penicillins
cycst form - flatly, tindamaz or alinia

but no further info on a programme and any advice/ comments/ book suggests would be appreciated. if I could find a recommended 6 month programme - do I also need to keep getting tested along the way?

pretty new to this so steep learning curve appreciate any feedback



thank you

Hi I am also from the uk but live in Spain now. I have found getting doctors to believe/understand you to be equally bad in both countries.

I have had decent results with 18 months of mino and plaquenil but this only got me maybe 75% better. I have found burners protocol to help massively in clearing up the remaining symptoms and feel I am slowly getting there.

Additional testing is costly and not very useful unless it picks up something other tests have missed. I am not an expert with this just letting you know what has worked over the past couple of years for me.

Good luck!
Posted 2/24/2020 9:25 AM (GMT 0)

Spanish said...

intheuk said...
Hello,

I'm on my first round of doxy 400mg - though since found out from this forum and another book minocycline is the next gen doxy and better to take.

I've got herbs ordered buhners p and diet underway but I need to make a plan for the anti-b's as docs in the uk are useless. is there a comparable book for anti b's?

I got the tick bite end of July so thinking it could be 6 months of anti b at least now. till symptoms are gone.

but I am looking for the info on what to take when.

from one book Julia Greenspan - rising above Lyme disease it suggests
spiral form - most susceptible to tetracycline meds
l form - treatable with cephalosporins and penicillins
cycst form - flatly, tindamaz or alinia

but no further info on a programme and any advice/ comments/ book suggests would be appreciated. if I could find a recommended 6 month programme - do I also need to keep getting tested along the way?

pretty new to this so steep learning curve appreciate any feedback



thank you

Hi I am also from the uk but live in Spain now. I have found getting doctors to believe/understand you to be equally bad in both countries.

I have had decent results with 18 months of mino and plaquenil but this only got me maybe 75% better. I have found burners protocol to help massively in clearing up the remaining symptoms and feel I am slowly getting there.

Additional testing is costly and not very useful unless it picks up something other tests have missed. I am not an expert with this just letting you know what has worked over the past couple of years for me.

Good luck!

thank you. I am going to do the buhners protocol. book just arrived. debating on the antibiotics.... and what to take. whether to wing it.... It all just feels a bit trial and error anyway that's all we can do - figure out what works and doesn't. ... Germany reportedly has much better understanding.
Posted 3/24/2020 4:01 PM (GMT 0)

Cignet said...
Hey there.

I'm following protocols from this website here https://www.treatlyme.net/guide/lyme-disease-antibiotic-guide

I'd go for at least a few months with the 4th combo. That sounds like reasonable doses of each one. Not to mention cost as a factor as well, they're all reasonably cheap, it would cost you around £110 per month.

The whole idea is to get every form of it possible killed of by using multiple abx. The mino alone once a day would probably not do too much to get rid of it.

I'm ordering my abx through ReliableRX pharmacy, there's another called AllDayChemist. The first takes car payments, the latter you can pay through bitcoin or wire transfers or by check.

While doing that though you'd need to get monthly liver function tests as well, which is an additional £50, using a service like medichecks or something similar.

There's Napiers and Bristol Botanicals for herbs here in the UK. The former do a discount for anyone with lyme disease of about 25%.

The way we're treated by the NHS is disgusting. I wish you the best of luck.

Hi, my antibiotics will run out in the next week and my doctors refuse to prescribe anymore (NHS, UK) . Cignet u mentioned ReliablePharmacy but seems u need a prescription? any ideas?
Posted 3/24/2020 4:21 PM (GMT 0)
hey, thanks for letting me know. it's crazy . glad to be self isolating though in many ways. less tiring than trying to go out so glad lockdown has finally been introduced. the world will never be the same again that's for sure. something positive has got to come out of it. got herbal medicine at least...
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