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Bartonella and hair loss

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Posted 5/11/2020 11:45 AM (GMT 0)
Does anyone else have hair loss as a symptom of bartonella? I’ve gotten all my hormones in check and still have some hair loss. Is it just bartonella?
Posted 5/11/2020 12:10 PM (GMT 0)
I have hair loss as well. Not just on my head but on my body as well. Is yours just from your scalp or on body as well?
Posted 5/11/2020 12:24 PM (GMT 0)
Toxic mold exposure can also cause hair loss. Not sure which infections - Lyme, bartonella, babesia - cause it. I don’t know if it’s tied to a specific infection or not. I had some mild head hair loss at one point that resolved on its own. I also have patches of hair loss in different body areas. Those have never changed.
Posted 5/11/2020 1:12 PM (GMT 0)
I have it a little in my eyebrows but nowhere else. It’s worst on the scalp because I’m obviously combing my hair and it gets touched more. I am on a mold protocol right now- the mold I tested for is not that bad and I haven’t really noticed any difference from the protocol so I’m not sure if that’s it.
Posted 5/11/2020 2:39 PM (GMT 0)
I think I've got a bad case of Bartonella. When I am worse, I have more hair loss. When I improve with treatment, I have less hair loss. Seems to me that my hair loss is directly or indirectly caused by the Bart.
Posted 5/11/2020 2:48 PM (GMT 0)
ChristianWithLyme- does it ever stop? Or does it just get less worse for you?
Posted 5/11/2020 3:17 PM (GMT 0)
WalkingbyFaith - Do you have a thread or post on here that tells your story (I feel like I'm bugging you!). I ask because from the few posts I've read of yours, it sounds like we have a lot of similar symptoms. Would be interested to hear your story and see what treatments you have tried, what has worked, etc... I'm stuck in a rut, could use some help. Thanks for reading. Be well smile
Posted 5/11/2020 5:18 PM (GMT 0)
Patient166, I think I improved to where I didn't even notice any "loss" even though I never treated the Bartonella to where I was symptom free. I never had extreme hair loss, but it was definitely more than normal and improved (perhaps even back to normal) when making good strides with Bart treatment.
Posted 5/11/2020 5:37 PM (GMT 0)
Have you been tested for heavy metals? Those can cause hair loss as well.

And I know everyone hates to hear this, but serious stress also can cause hair loss.
Posted 5/11/2020 5:39 PM (GMT 0)

BeKindPls said...
WalkingbyFaith - Do you have a thread or post on here that tells your story (I feel like I'm bugging you!). I ask because from the few posts I've read of yours, it sounds like we have a lot of similar symptoms. Would be interested to hear your story and see what treatments you have tried, what has worked, etc... I'm stuck in a rut, could use some help. Thanks for reading. Be well smile

Hey! I saw your post last night on another thread. You’re not bugging me. I will respond later when I have some free time.
Posted 5/11/2020 7:23 PM (GMT 0)
Testing negative for heavy metals and got out my filling just in case.
Posted 5/11/2020 8:10 PM (GMT 0)
Iron deficiency can also cause hair loss, even if you’re not anemic. Not sure if it’s Bart or Babesia that has made me anemic my whole life, but I still can’t get my iron levels up despite years of supplementing.
Posted 5/11/2020 8:49 PM (GMT 0)
Orbitingaround - Are you referring to ferritin levels?
Posted 5/11/2020 11:15 PM (GMT 0)

orbitingaround said...
Iron deficiency can also cause hair loss, even if you’re not anemic. Not sure if it’s Bart or Babesia that has made me anemic my whole life, but I still can’t get my iron levels up despite years of supplementing.

Yes, that reminded me. When my son was undiagnosed with Celiac disease...one of his symptoms was loss of hair.
When tested, his ferritin levels were very low.
Posted 5/12/2020 5:01 AM (GMT 0)
I get a few bald spots towards the sideburn area that come and go or move around. I’m told it should go away after treatment.
Posted 5/12/2020 2:03 PM (GMT 0)

BeKindPls said...
Orbitingaround - Are you referring to ferritin levels?

Yes. I can never get my Ferritin up. My dr. said it should be around 90, but I have never been able to get it over 52. When it gets down around 20 I have all the symptoms of anemia (chewing ice, sore tongue, hair falling out, exhausted, cold all the time), and this is despite supplementing.

I've also read that just 3 heavy periods can make you iron deficient.

I also thought quitting dairy and gluten for a year would have helped my iron by now, but it's still low.
Posted 4/27/2021 6:36 PM (GMT 0)
I’ve had every level checked - and the “right” labs done.....no hormones off (thankfully) and no other “levels” issues. I have Bartonella and hair loss has been terrible for a year now.... mostly noticeable on one side (see through hair and receding of hairline and weird pattern to hairline and temple now, but thankfully no scarring of the Follicle) We remediated mold out of our house, there wasn’t much. We have top-quality shower filters I eat a clean diet - taking collagen, silica, sea moss, aminos......DOING ALL THE THINGS, red light therapy and it never grows also my hair breaks badly now too 😢 has anyone gotten better with time and treatment of the Bartonella?
Posted 4/29/2021 12:18 AM (GMT 0)
wadenshell,

Welcome to the forum! I know there have been numerous posts in the past related to hair loss. It’s been a tough issue for some. You might try using the search option to see some of those posts if you don’t get any responses.

Feel free to start a new post to introduce yourself and tell your story.
Posted 4/29/2021 1:46 AM (GMT 0)
Welcome, wadenshell!

As WalkingbyFaith mentioned in her post - you can start a new thread and introduce yourself to us..
Posted 4/29/2021 11:18 PM (GMT 0)
I did get some hair loss from bartonella due to low protein levels. I also got edema (ie kwashiorkor) at the same time. Killing the bartonella with antibiotics resolved it.
Posted 5/4/2021 1:54 PM (GMT 0)
I had hair loss when using sida acuta for bartonella.
Posted 5/4/2021 4:24 PM (GMT 0)

Quin said...
I did get some hair loss from bartonella due to low protein levels. I also got edema (ie kwashiorkor) at the same time. Killing the bartonella with antibiotics resolved it.

Do you remember which proteins tested were low? Albumin protein? Were globulins OK?

"......Albumin : is a protein made by your liver. Albumin helps keep fluid in your bloodstream so it doesn't leak into other tissues. It is also carries various substances throughout your body, including hormones, vitamins, and enzymes. Low albumin levels can indicate a problem with your liver or kidneys...."
Posted 5/5/2021 2:56 AM (GMT 0)
It was mostly globulin and total protein that would show up low on the blood tests, but this was mostly asymptomatic as long as the albumin was normal. If the albumin gets low that causes edema.
Posted 5/5/2021 12:00 PM (GMT 0)
Bart is well known to cause hair loss on the lower legs - for years i just assumed my socks were rubbing it off !

typically between the ankle and the calf - but if it can disturb hair follicles there i see no reason why it cannot do it elsewhere

i suspect the mechanism may be via a blood flow issue caused by small fibre neuropathy that is also associated with Bart
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