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Lyme Disease
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Posted 5/20/2020 6:07 AM (GMT 0)
Hoping someone can help answer. Years ago I had lyme disease and since then I have flare ups which I think are associated. Ive been tested 2 type and the results never detected anything now last week Igg band p66 came up positive.

Can someone interpret this for me? How should I react to this.
Posted 5/20/2020 2:37 PM (GMT 0)
Lugo,

There’s some information in this old post.
https://www.healingwell.com/community/default.aspx?f=30&m=3819361

My first WB, band 66 was positive. It was not positive on any of my later tests. I have Lyme/co that went undiagnosed for many years. Makes sense that it is related to late Lyme.

If you type band 66 in the search box, you will find lots of old posts.
Posted 5/20/2020 6:24 PM (GMT 0)
Yeah i looked last night but didnt see anything specific to what i have going on right now
Posted 5/20/2020 6:48 PM (GMT 0)
fugo - You tested positive for lyme at one point.

If you’re having flares it’s likely that your treatment hasn’t been sufficient .

Do you still have a LL dr you can see?
Posted 5/20/2020 9:44 PM (GMT 0)
No, he retired last year. I have had chronic issues since I stopped treatment after I had no improvement over a year. Still have fatigue, vertigo, get Costochondritis easily.

Over the last two years I started getting light headed extremely easy when getting up from bed or kneeling. Having a strees tesr done tomorrow.
Posted 5/20/2020 10:11 PM (GMT 0)
Have you thought about seeing another llmd for guidance?
Posted 5/20/2020 11:49 PM (GMT 0)
They are going to call me to schedule an appointment with an infectious disease doctor but no idea if they will be a llmd or not
Posted 5/21/2020 1:39 AM (GMT 0)
If you do need help with finding a LLMD - you can post in another thread -
Posted 5/21/2020 4:25 AM (GMT 0)
Yeah I will likely need to. I looked online and the ones I found in Minnesota dont take insurance and are stupid expensive.
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