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Posted 7/11/2020 5:38 PM (GMT 0)
Hey everyone,

Its been a while since i have been here. I have been in a deep state of depression. Hair has been falling out for 17 months straight.. bald spots everywhere.. almost completely bald at 37 years old. This has me so depressed i cant even explain.
Then my entire face has been all broken out since november..(Never had a pimple in my life).

I started seeing a new doctor. He did a food sensitivity test on me and that lit up like a christmas tree. So now i can barely eat anything.
he did a stool test and showed alot going on in my gut.
hormones are tanked so i am on a progesterone cream for now.

So i have alot going on. Im so lost. I dont wanna be bald.. i loved my thick hair, i cant take this anymore... i dont know how much more i can handle.

oh and the icing on the cake... i pulled an embedded tick off my 4 year old daughter 2 weeks ago. Shes been on antibiotics ever since.

I hate life right now.

hope you all are doing way better than me!
Posted 7/11/2020 7:04 PM (GMT 0)
I'm glad that you posted! Sounds like you are having a truly awful stretch. I'm so sorry.

What are you doing for the gut stuff? For some people that makes a huge difference. I know the food eliminations are frustrating, but I guess it's good to know that the sensitivities were there, so you can reduce the overall inflammation load a little. I'm glad the new doc is doing something....

My body hasn't been making anything close to appropriate amounts of hormones for years now. I know that stress is a major driver of HPA axis dysfunction, so I have been trying to focus hard on that one. Since the pandemic started, I have felt my stress level grow, and now I'm having even more hormonal weirdness, so I know I have to be proactive about stress management. I'm doing yoga, meditation, DNRS, tapping, and other things every day, which feels like such a drag when I am feeling bad! Maybe it's peri-menopause - I'm 37, too, and having light periods, irregular periods, and heart arrhythmias. The continual project of trying to figure out what is going on in my body....

And the tick bite on your child - so upsetting! But you caught it right away, and she should be fine.

No real advice for you, just empathy. Hope things get a little easier for you soon!
Posted 7/11/2020 9:01 PM (GMT 0)
I'm so sorry physedgirl, I'm losing my hair too and know how it affects mental health.

Someone on this forum recommended collagen peptide powder to me and its definitely helping.

Hope it helps you too.

Also, just wanted to let you know that someone responded to you here, but something went wrong with the thread:

https://www.healingwell.com/community/default.aspx?f=30&m=4207975
Posted 7/12/2020 1:16 AM (GMT 0)
Margaritalyme posted this in another thread - I think she meant to post it here

“ Hi PhysEdGirl, Your post breaks my heart but take solace in the fact you are not alone. It amazes me how many commonalities we lyme patients have. I lost about 70% of my hair. I know how alarming it is. On top of Lyme, Babesia, mold, hormone and neurotransmitter imbalances, I am legally blind. I have retinal dystrophy (genetic) but also have optic nerve atrophy which I’m sure is from the Lyme.
I also have GI issues, but when I’ve tried even a 10 day trial of antibiotics to heal the bacteria I herx wildly. So I’m trying to tackle the mold with binders.

What treatment are you trying? My thoughts are with your daughter. I pulled a tick off my head a month ago. I reside in MI.

I hope we can keep each other’s spirits up. Hang in there.”
Posted 7/12/2020 7:45 PM (GMT 0)
Hey everyone

Thanx for the responses. I'm just so upset you have no idea.

I've been taking collagen peptides for almost a year and it's done nothing...but thank you for the suggestion. I just wish i knew what the exact cause was. But no one can give me that answer. Like just a little hope of it growing back would help but i doubt it... This is the worst part of this entire journey for me. It blows.
But it's good to be back here. I have a lot of catching up to do
Posted 7/13/2020 5:44 AM (GMT 0)
I am so sorry to read this. It’s all so much to even process at times, all these horrible symptoms and all the suffering from this illness. And the responsibilities of being a parent as well.

I wish answers were easier and healing was faster! I can only support you with my prayers which I will do.
Posted 7/13/2020 9:41 AM (GMT 0)
Hang in there.

keep going and life can get better

Diet change has helped my Fiance and me dramatically.
before that our energy levels were on the floor - unable to function.
haywire gut symptoms and no life.

now we can both function much better and my fiance has returned to work full time.

We changed our diet radically as nothing else was working

We removed all cabs and eat a ketogenic paleo diet - all wholefoods - nothing processed - no sugar or sugar substitutes.
the first week or so were hard - but after that, the benefits made it easy to stick to.

this was the main intervention my partner did - no long term antibiotics or other Lyme therapy = just the diet and some buhner herbs and some basic supplements - like vitamin C and vitamin E, some minerals like zinc and selenium. along with exercise every day - even if it's just a short walk, focus on sleep( she always slept well - even while ill and I think this is a big factor) and stress management.

I seem to be harder to treat but I am slowly recovering my former abilities - so it shows how much positive effect diet and lifestyle can have - and it doesn't have to cost the earth.
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