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Frozen shoulder and crackling crunchy neck that's weak.

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Posted 7/10/2020 1:14 PM (GMT 0)
I have a very weak neck that gets tired of hold up the head unless I'm standing with perfect posture. The neck crackles like grabbing a bag of potatoes chips when I turn my head.
I also have a perpetually flexed tightened trapezoid on one side that will even fetna red non-scabing rash on a occasion that red resembling a friction or Sun burn.

I feel like it's causing me to subconsciously favor it all the time to the point where scoliosis might be occuring from holding the shoulder inabdiffrenr position.

Which infection could be causing rash in the shoulder and sand crunching in the neck vertabrae thanks
Posted 7/10/2020 1:25 PM (GMT 0)
Lyme is renowned for neck pain and shoulder problems - eg "Lyme shrug " and also Radiculitis which is an acute inflammation of the nerves as they exit their way out of the spine to feed into your arms and often results in intense pain in arms and or neck or face.

my neck also feels weak compared to how it was and I would get lots of muscle spasms resulting in what felt like strains that were extremely painful and lasted sometimes weeks.that was in the first year or so and even before i became severely ill. not so much now - just the general soreness, aches and stiffness all over - but more manageable.

the spasms/strains mostly affected the trapezoid group of muscles. - you could often feel a distinct lump where the muscles were spasmed.

Massages - as in deep tissue massage helped quite a bit - or failing that - rolling on the floor on two tennis balls in a sock as suggested by a back guy I went to see. does not feel nice at the time - but helps stop teh muscles from spasming.
topical ibuprofen gel helped a little - magnesium supplements too I think
Posted 7/10/2020 2:40 PM (GMT 0)
Thank you garzie, sounds like the identical injury.
Posted 7/10/2020 2:55 PM (GMT 0)
I had this for years, yes it can get better, took me a long time. I took a wide range of ABX.

Treated areas with different versions of myofacial and trigger point release, like Garzie, but prob more extreme, then exercised the area. If you dont exercise the area, you end up releasing it forever.

I also used topical Penetrex with DMSO to drive it in.

Reg Drs said surgery required- they dont know anything else, I opted the natural methods above that work but took years......I had this for decades though and part was from athletic and repetitive motion work injuries that would not heal while Lyme was rampant.
Posted 7/10/2020 6:50 PM (GMT 0)
"Radiculitis which is an acute inflammation of the nerves as they exit their way out of the spine to feed into your arms and often results in intense pain in arms and or neck or face. "

That was my very first symptom. i woke up after napping (following a busy work week) in the evening....with excruciation pain from the base of my head...down my neck, and across my left shoulder blade area, down my left arm and hand. I couldn't move my arm...it was like it was frozen.
But the pain was so bad, my husband took me to the ER. They gave me a shot of something...and then sent me home with T3's.

The pain slowly subsided over the next few months but I ended up with frozen shoulder and then the pain returned - but not quite as excruciating...and then other symptoms came on....and on....and on.

My mental health took a dive as well....I was depressed...scared...and then the search was on - the countless Doctor appointments, specialists....tests...imaging...to find out what the heck was wrong with me.

Prior to that incident, I was happy, healthy, and in good shape physically....
I was going through a stressful period though....a high stress job along with an elderly father who was experiencing medical mishaps. I would work my 8 hour day (X5 per week) ...and then drive an hour each way to visit my father...would do that 3X a week.

that was in 2013.
Posted 7/10/2020 6:53 PM (GMT 0)
What is the reference to " T3's"
Posted 7/10/2020 6:55 PM (GMT 0)

Brandiwine said...
What is the reference to " T3's"

Pain meds - tylenol plus codeine.. They made me very loopy... I think i ended up cutting them in half...
Posted 7/10/2020 6:57 PM (GMT 0)
Tylenol used to give me panic attacks I never really looked into the chemistry beyond the fact that it does reduce down glutathione I also had strange physiological responses to atropine.
Posted 7/10/2020 8:16 PM (GMT 0)

Girlie said...


That was my very first symptom. i woke up after napping (following a busy work week) in the evening....with excruciation pain from the base of my head...down my neck, and across my left shoulder blade area, down my left arm and hand. I couldn't move my arm...it was like it was frozen.
But the pain was so bad, my husband took me to the ER. They gave me a shot of something...and then sent me home with T3's.

that was in 2013.

that is almost exactly what happened to my partner
she had it in first the one arm and then the other a month or so later
together with neurological symptoms - swollen joints etc

turns out acute radiculitis along with CNS symptoms has been recognized as a tick bite related syndrome long before the Lyme spirochete was discovered.
It was known as Bannwarth syndrome over a hundred years ago ...

In Europe: symptoms that affect the nervous system are thought to
develop in 15-20% of people days to months after infection.
• Radiculitis – inflammation of motor and/or sensory nerve roots.
• Cranial neuritis – inflammation of the cranial nerves
• Meningitis – inflammation of the membrane which surrounds the brain
and spinal cord.

Referred to as ‘Bannwarth’s syndrome’ (Lymphocytic meningoradiculitis)
Mygland A et al. EFNS guidelines on the diagnosis and management of European Lyme neuroborreliosis
2010;17(1):8–16.
Lovett JK et al. Epidemiology and infection 2008;136(12).

and still, doctors just told her she was hysterical, imagining it etc.
Posted 7/10/2020 8:55 PM (GMT 0)
Yup - I remember reading about Bannwarth syndrome after I was diagnosed.

That symptom is still giving me grief.

I’m hoping it’s because of theory: first one in.. last one out.
(And not permanent)
Posted 7/10/2020 9:04 PM (GMT 0)
my Partner's arms have recovered pretty much completely - her energy levels have returned to normal or near-normal - she now works 10hr days 5 days a week - so recovery is possible.

This has been mainly just by Buhner herbs ( mainly knotweed, andrographis and the adaptogens), strict ketogenic paleo diet for 2+years, focus on sleep ( she has always been abl;e to sleep 8+hrs ), various supporting supplements - esp anti-oxidants and mitochondrial support eg vit C, CoQ10, vit E, L-Acetyl-Carnitine, selenium,
Posted 7/10/2020 9:11 PM (GMT 0)
Wow, I'm sure I would be much further along and recovery if I could get 8 hours of sleep I don't think I've had 8 hours of sleep once in five years.
Posted 7/11/2020 9:28 AM (GMT 0)
my Partner's arms have recovered pretty much completely - her energy levels have returned to normal or near-normal - she now works 10hr days 5 days a week - so recovery is possible.

This has been mainly just by Buhner herbs ( mainly knotweed, andrographis and the adaptogens), strict ketogenic paleo diet for 2+years, focus on sleep ( she has always been abl;e to sleep 8+hrs ), various supporting supplements - esp anti-oxidants and mitochondrial support eg vit C, CoQ10, vit E, L-Acetyl-Carnitine, selenium,
Posted 7/14/2020 8:08 PM (GMT 0)
I have pretty severe neck pain from some old injuries, so I bought a cervical neck collar on amazon and I wear it occasionally for an hour or so and it really helps take the stress off my neck. I also made a heating pad with a sock and some dry rice (microwave it) and I put that on my neck and the lymph nodes in back of my head -- it really helps with pain.

other things that can help: epsom salt baths, magnesium, magnesium lotion.
Posted 7/15/2020 5:39 AM (GMT 0)
A head weight for strengthening the neck helps. Use it with head looking down, hanging off edge of bed.

Made for Boxers/fighters ect, used by anyone.
Posted 7/18/2020 4:27 AM (GMT 0)
In hindsight, this was one of my first symptoms. My neck started cracking and then got really painful. I went to a neurologist and had an MRI. I had some stenosis and moderate vertebrae issues but not enough for surgery. When I was diagnosed with Lyme and started working backwards to early symptoms it all started to add up.
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