Could I still have bartonella?

Bart is very difficult to get under control. Some say it is more difficult to get into remission than Lyme, and that Lyme is actually a co-infection of Bart. I spent the first 5 years of abx treatment focusing on Lyme and Babs, then I made a more aggressive second pass at Bart and made significant progress from 50% to 75%. I also took Buhner herbs starting in my second year through summer of 2019 while continuing every abx combo including Leviquin and Cipro (not at same time).

Keep at it... have you tried Hout, or Cryptolepsis?

I believe my residual symptoms are bartonella.

i think I most likely had bart since early childhood. Grew up with cats...many scratches and bites.
Although I was seemingly healthy, active, athletic...I had a few anomalies. One being a sudden onset neck issue when I woke up one morning ( I think I was 10 or 11?) and couldn't move my neck.

Also had GI issues from about 5 years old until about 45 years old. Diarrhea after I ate most times.
It just stopped.
In high school, my the whites of my eyes had a yellow tinge to them.
I did have high bilirubin when I was tested.

My bilirubin is now in range.

I think Bart is a tough one.

If I could get rid of my nerve pain...left upper back, arm and hand plus my head pressure coupled with memory issues....I'd be ecstatic.
The few other symptoms I have...I can live with...they're mild/minor. Slightly sore feet in the morning (it was better...time to go back on abx again), little anxiety upon waking (much better than it was).

Dr M still use Biaxin and Rifampin - then Rifabutin?

I feel for you... so hard. Feels like sometimes you can throw endless amounts of money and energy at this thing and in the end it would be worth it if there’s relief. I don’t know how any dr can promise that bartonella is eradicated but still it would seem you should have had some type of improvement with all you’ve done. Did you herx on the rifabutin protocol? I know Dr M goes pretty high in dosage and keeps people on it for a long time now. He also is big on the triple blood smear being negative several times prior to stopping.

Aerose91 said...
@Upatnite. I treated with Dr M for just over a year after having done Buhner herbs for 2 yrs or so. We did Clarithromyvin with Rifampin, eventually replacing that with Rifabutin. He also had me on a parallel mast cell protocol. He told me by the end of it that bart was definitely erradicated and I always took his word for it but sometimes I do wonder. He then found babesia but many months of babesia treatment with Dr J brought no results. I had tested positive through MDL prior to seeing him

@Girlie. I have all of what you describe. I, too, believe I've been sick since I was a kid but it didn't turn into anything severe until my twenties. If bart is still around I feel my immune system is the problem but 95% of immune modulators fail to work 95% of the time. I wouldn't even know where to try and I think doctors are out of the question at this point. Im over $200,000 in debt

@sandyfeet. I did have CD4 tested a while back and it was normal. Sometimes my neutrophils are low but otherwise white cells are normal.
I havent continued sida since I did it for like 3 years and saw no improvement on it. I have on several occasions tried cat's claw but that makes the derealization worse. I think it may be a mast cell reaction.

@Zbreezy. Thank you for the kind words. Everythung you describe is what I experience every day and have for 9 years- severe derealization, psychosis, delusions, hallucinations, anxiety and irritability leading to rage. Its awful

Is welchol the only binder you’ve used? It’s not effective for all mycotoxins. Specifically aflotoxin and gliotoxin I know it doesn’t work for, as well as some others.

I need a doc who can try and treat bart I'm in CT any recommendations pls...I've heard u can't take l-arginine if you have hsv 1&2 or ebv. How about l- ornithine heard it does the same job as arginine

I would second Dr K but he only takes patients with insurance and is ungodly expensive.

I've been led to believe bart is the number one cause of disability among veterinarians, Something to keep in mind. Out of about a couple hundred strains, If I recall correctly, we test for only a handful.

Post Edited (duncan) : 10/17/2020 7:37:11 AM (GMT-6)

I've been wondering the same thing myself. I still have significant striae on my back and ankles, but I can't tell if it's just scars. I feel good most of the time, but I do still have a few weird things, like pain in my feet now and then. I tried Chinese skullcap, and it didn't seem to do anything. The only thing that helps is boneset, but I seem to only feel different while I'm taking it.