Has anyone recovered from tachycardia / POTS

Yes. POTS is a form of dysautonomia. The limbic system and autonomic nervous system become "damaged" in a way that it becomes ultra sensitive to what it senses as "threats" and stimuli, likely after being under attack and stress for so long. It's a "learned response" if you would. It can resolve on its own but i would not necessarily expect that to heal in 1 month, even if the inflammation is lowered. Some people use DNRS or autonomic retraining. Meditation. Positive re-inforcement. But I would giv eit more time. You should read about "fight or fligth", etc. Here is a good primer on it. Theyre talking about with respect to chronic fatigue, etc and due to toxins and stressors, but it also applies for lyme and pots.

https://www.holistichelp.net/limbic-system-retraining.html

Dysautonomia is a neurological issue that takes a while to heal, but definitely can and does. Don't worry that it will last forever. Occasionally people see POTS resolve with just antimicrobial treatment for tick-borne diseases, but it can require a more direct approach. Have you tried any treatment specifically for POTS? Salt and hydration balancing, one of the meds prescribed for it, recumbent exercises, limbic system retraining, vagus nerve toning, supplements that address neurological inflammation, meditation, etc.?

Most cardiologists know about as much about dysautonomia as the Wikipedia page does. Dysautonomia specialists are very few and far between, and usually are neurologists. Even if you find a true specialist, they might want to do uncomfortable tests before diagnosing you.

For me, what helped were the following:
- Lots of salt (1.5 teaspoons per day) and proper (not excessive!!!) hydration
- Treating mast cell activation disorder (low-histamine diet, quercetin, curcumin)
- DNRS limbic system retraining program
- Breathing exercises and restorative yoga

I still get flares of POTS if I am very dehydrated, have lost a lot of blood (through heavy menstruation), or occasionally during especially fast and severe barometric pressure drops. So I have POTS about three days per year now ... versus being bedridden by it for months at a time, for years. For years, my heart rate was 85 lying down, 100 sitting up, and 130+ when I stood up. Palpitations, wooziness, often used wheelchairs in public settings because I didn't feel safe standing. It was freaky and exhausting. But it's not even something I worry about now, thank goodness.

I'm 28 and used to be athletic as well. Treatment helped my POTS a little bit, but overall, I still struggle with it. I treated Lyme with antibiotic therapy for about a year and half 4 years ago. I would say that each year I do improve a little, but not a lot.

Antibiotics helped me go from feeling super dizzy all the time and my heart racing and skipping beats to just racing when I try to do any physical activity beyond walking.

justinejustine said...
Female, 27 y/o. Used to be athletic, but the last 7 years I've been close to bedridden because of my tachycardia (my heart rate is around 100-140 whatever I do) which makes me very fatigued. My heart is beating so hard againsts my chest it drives my crazy at times, it never was like this before. Also experiencing a lot of shortness of breath. I tested positive for Babesia and Bartonella on antibodies and some other test which I don't remember.

I'm being treated by a LLMD for about 1 month now and all the surrounding symptoms like joint pain, nasal congestion, dry eyes/mouth has resolved during treatment, even my energy levels have improved hugely. BUT my tachycardia has not improved in any way which concerns both me and my doctor. All my other tests comes back perfectly fine and I've been to a rheumatologist, pulmonary specialist, cardiologist, endocrinology. I've even done a heart catheterization(!).

Must admit that I am a little bit scared that I've got permanent damage to either my heart or lungs because of how long I went untreated with this infection.

Has anyone been able to recover from their tachycardia/POTS after treatment? If so how long did it take?

I tested for babesia once and it was negative despite me having all babs symptoms. Clindamycin took away all my head pressure and stuffiness sensations. My head dripped feeling heavy and migraines went away and so did the pots. It increase during treatment bt eventually goes away ,good luck

Welcome to the forum justine, hope you stick around.

Justinejustine, any improvement since having the Vax?

Did your your pots get worse after the Vax or did just old symptoms come back?

I have similar heart/lung issues and with the delta coming out and school starting thinking I may end up getting the Vax real soon.

I was diagnosed with POTS earlier in March of this year. What helped the most was swimming. I went to the ymca 4-5 days out of the week and just swam laps. i saw immediate improvement. My pots is essentially gone, i still have other major neurological symptoms but the pots is gone because of the swimming.

Hope it helps!

When I had POTS I read that exercise can help it.

I did use my Eliptical machine at least every other day (prior to lifting light weights to try and get back my fitness/muscle tone.

I think the exercise coupled with treatment is what resolved the POTS

I haven’t measured my heart rate upon standing in a long time -