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Posted 10/6/2021 4:27 PM (GMT 0)
Hi everyone, just realized i posted on a much older thread about mcas. But wanted to hear from anyone who had been a little (or a lot) frightened by mcas flare ups. I am currently taking cromyln before meals. The morning, despite doing that I got very lightheaded, weak, massive brain fog, feeling generally unwell after breakfast. I know people have mentioned all this in the past and I love all the advice on previous posts. Just wondering what you have done when you have felt scared during bouts like this.
Posted 10/6/2021 5:32 PM (GMT 0)
Yes. I have had some scary bouts this year. Mine is because of mold/mycotoxins. Even though I moved into my car, I am still exposed outside to toxins coming from the house. I can smell them. My clothes are washed and dried in the house and I use towels and washcloths from the house. All those seemingly insignificant exposures have caused increasing problems for me.

Taking Zyrtec has helped. Taking it consistently without missing doses is important for it to be effective.

Not sure how long it will continue to work. Seems like I have heard that people who rely on antihistamines for allergies, asthma, or anaphylaxis find they stop working at some point and they have to find another drug.

Post Edited (WalkingbyFaith) : 10/6/2021 11:35:27 AM (GMT-6)

Posted 10/6/2021 8:35 PM (GMT 0)
Ok. This is helpful. Going to give the antihistamine a try. Have been nervous because my new llmd recommended claritin and I am a little worried about the fillers, but I have to do something. The cromyln might be working a little, but this morning's episode was scary. I don't know how else to explain it except I just felt awful. Spent the afternoon reading Beth O'hara's story and perusing her website, mastcell360.com. She had some great resources. I loved her article about histamine and estrogen. Amazing in her explanation of how they interact and can make a person feel just miserable. Fascinating.
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