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Dumping syndrome with Lyme

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Posted 10/9/2021 7:51 PM (GMT 0)
Hi everyone, here again with another struggle. I am so grateful for this forum and really hope that I can help others someday. I recently developed symptoms of dumping syndrome during which my stomach empties very rapidly after eating causing burping, weakness, anxiety, shakiness, and sometimes imminent diarrhea. Is this something that can come along with Lyme and/or mold exposure? Is there anything that has worked to prevent this? Am going to write to my llmd about this, but won't get a response until after the 3 day weekend. This is a rough syndrome and makes me want to avoid eating simply to not have to go through the symptoms. I think there may be a vagus nerve connection to this syndrome. Maybe lyme/mold has damaged my vagus nerve...
Posted 10/9/2021 8:15 PM (GMT 0)
Is there a chance that these are MCAS or IBS episodes? Aside from the burping (which always makes me think of SIBO) I have experienced what you describe after a high-histamine or high-FODMAP meal.

Vagus nerve health is somethng I think most of us probably need to work on, so that seems like a good thing to work on, as well as calming the nervous system in general to help aid appropriate digestive signals.

Perhaps "dumping syndrome" still applies as a descriptor even if the cause is MCAS, food-triggered IBS, or SIBO? I just thought it might be helpful to look at possible causes that are common with Lyme. Do you have a history of gastric surgery? Does this happen most often when you have eaten a sugary meal?
Posted 10/9/2021 8:24 PM (GMT 0)
Thanks so much for your quick reply, Saraeli. No gastric surgery. Today it happened after a lunch of sauteed broccoli, baked chicken and brown rice. Pretty severe symptoms. Landed me back in bed. Shakey, weak, anxious, lots of burping. I asked my doc about Sibo and he said I likely have it but doesn't want to treat just yet since we are working hard to calm mcas. Do you think DNRS would help with these types of symptoms? I am open to trying it.
Posted 10/9/2021 9:08 PM (GMT 0)
DNRS might help, but not quickly. And you probably want these episodes to stop quickly! I know they are such miserable symptoms.

I have had an episode after eating broccoli (with a lot of stems) and brown rice, which are irritating for the FODMAP-sensitive. That said, I'm being driven crazy by trying to evaluate everything I eat to see what is causing which symptoms, and definitely wish I knew of a remedy to stop the symptoms and let me eat more than a few foods! The only thing that helps some days is cromolyn sodium, and I'm glad to have that, but I'd rather figure out the underlying issues rather than use a "band aid" treatment long-term. I do suspect that if I had an hour per day to devote to yoga, DNRS, and other healthful practices, and just had less stress, then I'd be doing better.

I'm going to stop implying that I know what I'm talking about. ;)

I'll be following this thread! May your intestines be reliable ASAP!
Posted 10/9/2021 9:22 PM (GMT 0)
Yes. I think the cromyln helps a bit. Need to remember to take it 30 minutes before meals. I keep forgetting and wind up taking it 5 minutes before. I feel as you do. An hour or more of yoga, meditation, qui gong, etc. would be helpful. Really might try the dnrs. Even if it is not a quick fix. Need a long fix, too!
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