Fenbendazole experience

Hey Carl, thanks for checking on me. Sorry for the slow reply. Have had some challenges here and stopped all meds and supps for a bit. Was able to restart fenben/DMSO a week ago without much problem and am now at @400mg. Eye irritation is still the limiting factor for me.

Am I reading this right: you are at 900mg FB??? Are you adding DMSO?

What is your take on the liquid suspension vs dry?

My hopes for fenben include healing some autonomic nervous system problems. I have an atypical sleep apnea, insomnia, and orthostatic blood pressure and heart rate issues. Have also had problems with vertigo (which I see listed as a neuro bart symptom). Longterm abx stopped the vertigo several years ago, but it came back a couple months before I started the fenben protocol. Somewhere during this past crazy month, the vertigo just disappeared. This is huge for me as the vertigo really limits what I'm able to do.

Any comments or suggestions are most appreciated. Thanks to all the posters here -- this thread has been super interesting.

I'm posting an update to my fenbendazole trials as I just got the results from the monthly Comprehensive Metabolic Panel.
I feel like crap at the moment so have been changing protocol.
My lymphocytes and monocytes are up, neutrophils down. TSH is up above 4 from 3.5.
Visual improvement continues, but slowly. No change to floaters.
Abdominal ultrasound revealed a 4-5cm cyst on right kidney (doc say highly likely bart related).

I did 19 days of 900mg fenbendazole with no break. Been off for 8 days. Plan to restart. 900mg is too high for me. Expect to try 400mg fenben after I feel better.
roxithromycin - 600mg daily, day 171
minocycline - 200mg daily, day 91
rifampin - 900 mg 53 days, 600mg days 99
plaquenil - 400mg daily, day 76
enteric oregano - 300mg active carvacrol, days 35 - ended
succinic acid (amber acid)- 450mg active days 28 - ended
Added nitazoxanide (alinia) 400mg day 4, after reading paper on synergy of rifampin and alinia, and effect on cysts (tuberculin)

Hi fenbendies,

Sorry for the belated update -- have had trouble making forward progress the last couple of months. I'm working with a new doc who is not lyme literate, but smart and interested. And nearby. Have had negative reactions to two meds in a row he's wanted me to try, so several weeks of working to get back to baseline each time. Now I am fighting a bug that partner brought home. Somehow. We should have results of covid testing tomorrow.

Carl, thanks for the updates on your situation. Are you still feeling like crap? Is your doctor okay with those cmp results? And yeah, you really are taking a lot of active pharms -- yow. I totally understand why you're not doing DMSO on top of all that. If you haven't tried it, it tastes a little solvent-y. I don't mind the fenben, but the DMSO requires a little fortitude.

I think I'd like to follow your lead on trying liquid fenben. Have been checking online-- can I ask which one you are using?

'Preciate your repost of the link to the spinal cord article. Very interesting. And encouraging re neuro repair. I've been trying hard to beat down confirmed and likely infections because I keep reading that only getting rid of those will allow any ANS healing. And even then, it's iffy. I need to learn more about B cell activity. Also wondering about the mechanism of azoles as a group -- do they all work in a similar way? I keep stumbling into info on others but don't know how it might translate to fenben.

Picked up some lutein (thanks for the recommendation) but haven't wanted to start anything while I'm working through above problems.

My protocol right now is really simple. Taking a break after two years of antibiotics. The only rx meds I'm currently taking are natural thyroid, zolpidem, guanfacine because it has a little track record with hyper POTS, and desmopressin to increase blood volume. I take some common supplements: magnesium, D, selenium, K, methyl B and methyl folate. DHEA and pregnenolone. Experimenting with agmatine sulfate after reading some positive research on autonomic dysfunction. Also l-theanine. I did Stephen Buhner's lyme protocol for a year, cut back to the core lyme herbs and started his bart protocol. Most recently I added a couple herbs he recommends for babesia. Herbs have been a little iffy -- I switched to making my own tinctures to save money and have not always been well enough to keep up.

I've also been using a TENS unit to zap my left ear. Just in case it really does have some positive impact on the vagus nerve. Geez, dog de-wormer and ear zapping -- I suspect I really am crazy.

I'll be getting labs around the end of the month and will let you all know how things look. Would love to keep this thread active!

Hey carlnpa,

Thanks for posting your update. Sorry you are still feeling crappy. Did adding thyroid help at all?

'Preciate you confirming Safeguard goat suspension. That was the one I was looking at. I'm still sick with whatever bug we got in early December. It's not covid, but it's tenacious. Orthostatic problems, insomnia and bone pain continue to be bad. Canceled blood draw until I'm feeling better and sure I won't be spreading cooties.

C

dachshundlover,

Hello and welcome! Obviously, I’m not Carl but wanted to comment on what you said about Mimosa pudica. I have taken it pretty extensively for various periods and in varying methods and doses over the past few years.

You said you take it with food. Mimosa pudica should be taken on an empty stomach at least 30 minutes before food or other supplements, etc. Two capsules once a day is a low dose. I believe the standard dose is 2 capsules 2x day. I actually herxed increasingly dosing that way for months. I had to take a break for about 6 weeks before I could tolerate it again.

When I got back on it, I took it in the morning only and quickly increased to 3 and then 4 capsules and continued for a while, taking days off periodically.

I have a big problem with ropeworm, and the Mimosa pudica had me expelling them daily for months. I stopped after the ropeworms got smaller and fewer and farther between, but I never fully eradicated them.

Recently, I did Ivermectin daily for 2 weeks followed by Alinia for 2 weeks. I had already taken the Iver 1-2 days a week for about 6 weeks to start with. I tolerated it well. Unfortunately, while it was helpful, it didn’t give me the breakthrough I was hoping for.

Alinia, on the other hand, only made me feel better and improved some of my symptoms. I felt like I needed to take it longer and symptoms that had improved started returning within 2 days after finishing. I got another prescription and it’s on order.

Hope you get some real benefit with the antiparasitics. Are you taking heavy metal support like zinc, selenium, B6, P5P, etc? Are you taking binders or doing coffee enemas or colonics while you treat the parasites? I would love to go get a colonic after I do another round, but I will have to get blessed with some extra money to make that happen.

carlnpa

Thanks for the DEC information. I found an India pharmacy that sells it, so I'll try that.

I have decided to try Ivermectin 3 mgs a day. I saw in one of the FB groups a woman whose doctor had prescribed it that way. She was on it for a year and presented as doing very well.

I lost my job November 5th so cannot pursue an LLMD, and don't have health insurance. I think I'll just cycle through the suggested parasite cleanses from Bryan Rosner's Chapter 7, and see what relief I get. Hopefully I will be employed again soon.

Walking by Faith

Thank you so much for the welcome and the information about mimosa pudica. Clearly I was taking it incorrectly. I think I will try it again later on, and have stopped taking it since I read your post.

I did a very expensive detox for a month earlier as sold by the health practitioner who is the one that diagnosed me back in May. Currently I do take Zinc and many other supplements but not necessarily specified as detox.

I too only feel somewhat helped by ivermectin, and your information about Alinia gives me hope.

Warm regards~

.

Post Edited (RainyCloud) : 5/7/2022 12:29:31 AM (GMT-6)

carlnpa said...
The Merck Pharma fenbendazole products are the only source I would use.

Safeguard - as liquid or granules
https://www.u-buy.co.uk/product/9Z2N0K-merck-safeguard-goat-dewormer-125ml

Thanks carl.
I guess I'll have to find someone coming over from UK to EU to deworm my goats.

I am confused about references to the dosage for fenben. What does 222 mg "active" mean? Also, someone said that 4g of fenben equals 888 mg (and not 4,000 mg)?

got it.

I've started with 200mg of fenben on 18th of April 2022, let's see how that goes.

Hey, guys! Hoping someone can help me here. I want to get some Fenben but unsure of form or dosage other than the Panacur C Canine 1 gram packet of 222 mg of fenben like this: https://www.revivalanimal.com/product/panacur-c-canine-dewormer?sku=31450-120

My understanding is you take one 1 g packet per day regardless of your weight. Correct?

The problem with this is it doesn’t appear very cost efficient, and it appears to be available from fewer sources now (of course). The liquid suspension and the horse paste appear to be more economical, but I don’t know the proper dosing, since we aren’t going by weight.

Weight is 110 lbs (if it matters).

What dose of this liquid suspension https://www.revivalanimal.com/product/safeguard-dewormer?sku=31210-233??

What dose of this paste https://www.revivalanimal.com/product/panacur-equine-dewormer?sku=31140-778?

Thanks! Looking forward to trying this next.

I started this thread years ago now. I believe that fenbendazole is very effective as part of a treatment protocol for the tick borne diseases.

I use it one or two weeks a month still (3 days on 4 off). Most often I combine with ivermectin.

The liquid goat version is the lowest cost, but also very easy to use. Just put 2.5 ml in a syringe or pipette and put in water, slightly chalky but no taste. Best absorption with a meal.

Currently I am feeling ok, working, exercising. Still taking combo abx, but rotating through them on a montly basis ie month mino + allicin + black seed oil + roxithromycin. or clarithromycin + nitrofuratoin + rox ++++, a month of doxy +++ , repeat.

Thankful improvement in vision, its still changing for the better.

Walking - the paste dosage would be 2.5 grams, the liquid 2.5 ml. Use the liquid.

Wlad - please update when you get a chance, day 3 is when it really kicks in.